EPICOM Study: Looking Beyond Seizure Control Webinar
Read More: EPICOM Study: Looking Beyond Seizure Control Webinar
How to participate in behavior and TAND research (2024 webinar)
The TSC Alliance hosted a webinar on May 13, 2024 about two studies on understan...
Read More: How to participate in behavior and TAND research (2024 webinar)
Baby Talk in TSC study (2023 Webinar Series)
Tanjala Gipson, MD, Director of the TSC-Associated Neuropsychiatric Disorders Cl...
Read More: Baby Talk in TSC study (2023 Webinar Series)
PREVeNT trial outcomes and where do we go from here? (2023 Webinar Series)
Read More: PREVeNT trial outcomes and where do we go from here? (2023 Webinar Series)
Caring for a loved one with facial angiofibroma associated with TSC (2023 Webinar Series)
Facial angiofibroma is one of the most visible signs of tuberous sclerosis compl...
Read More: Caring for a loved one with facial angiofibroma associated with TSC (2023 Webinar Series)
ABCs and 1,2,3s of preparing for back to school (2023 Webinar Series)
Shelly Meitzler, Director, Outreach & Support, and Elizabeth Skufca, Communi...
Read More: ABCs and 1,2,3s of preparing for back to school (2023 Webinar Series)
RAINBOW Study (2023 Webinar Series)
This webinar discusses behaviors in TSC and the Remote Assessment and Interventi...
Read More: RAINBOW Study (2023 Webinar Series)
Sudden unexpected death in epilepsy (SUDEP) awareness and grief support (2023 Webinar Series)
Presented by: Peter Crino, MD, PhD, TSC Clinic Director at the University of Mar...
Read More: Sudden unexpected death in epilepsy (SUDEP) awareness and grief support (2023 Webinar Series)
TrustTSC study: enrolling children and adults with TSC-associated seizures (2023 Webinar Series)
Read More: TrustTSC study: enrolling children and adults with TSC-associated seizures (2023 Webinar Series)
Racial differences in TSC skin manifestations (2023 Webinar Series)
Read More: Racial differences in TSC skin manifestations (2023 Webinar Series)
The TrustTSC Phase 3 clinical trial for seizures in children and adults with TSC (2022 Research Education Webinar Series)
Read More: The TrustTSC Phase 3 clinical trial for seizures in children and adults with TSC (2022 Research Education Webinar Series)
What is facial angiofibroma associated with TSC and how can it be managed? (2022 Research Education Webinar Series)
Read More: What is facial angiofibroma associated with TSC and how can it be managed? (2022 Research Education Webinar Series)
mTOR inhibitors: past, present & future (2022 Research Education Webinar Series)
Read More: mTOR inhibitors: past, present & future (2022 Research Education Webinar Series)
Basimglurant: potential new mode of action for seizures in TSC (2022 Research Education Webinar Series)
Read More: Basimglurant: potential new mode of action for seizures in TSC (2022 Research Education Webinar Series)
Refractory epilepsy in adults with TSC (2021 E-Webinar Series)
Read More: Refractory epilepsy in adults with TSC (2021 E-Webinar Series)
Refractory epilepsy: children and surgery (2021 E-Webinar Series)
Read More: Refractory epilepsy: children and surgery (2021 E-Webinar Series)
Tumor growth – kidneys, liver and pancreas (2021 E-Webinar Series)
Read More: Tumor growth – kidneys, liver and pancreas (2021 E-Webinar Series)
Understanding the TSC genes – TSC genetics made simple (2021 E-Webinar Series)
Read More: Understanding the TSC genes – TSC genetics made simple (2021 E-Webinar Series)
LAM in TSC: surveillance, treatment and research (2021 E-Webinar Series)
Read More: LAM in TSC: surveillance, treatment and research (2021 E-Webinar Series)
Genetics and pregnancy in tuberous sclerosis complex (2021 E-Webinar Series)
Read More: Genetics and pregnancy in tuberous sclerosis complex (2021 E-Webinar Series)
Dermatologic manifestations of TSC (2021 E-Webinar Series)
Read More: Dermatologic manifestations of TSC (2021 E-Webinar Series)
Overcoming hurdles: insurance, scripts and specialty pharmacy (2021 E-Webinar Series)
Read More: Overcoming hurdles: insurance, scripts and specialty pharmacy (2021 E-Webinar Series)
Assisted living, assisted employment and day programs (2021 E-Webinar Series)
Read More: Assisted living, assisted employment and day programs (2021 E-Webinar Series)
College, housing and employment (2021 E-Webinar Series)
Read More: College, housing and employment (2021 E-Webinar Series)
Guardianship options, financial planning and government benefits (2021 E-Webinar Series)
Read More: Guardianship options, financial planning and government benefits (2021 E-Webinar Series)
Navigating the transition to adult care (2021 E-Webinar Series)
Read More: Navigating the transition to adult care (2021 E-Webinar Series)
Building the transition individualized education program (IEP) (2021 E-Webinar Series)
Read More: Building the transition individualized education program (IEP) (2021 E-Webinar Series)
Introduction to transition to adult services and overview of Child Neurology Foundation transition toolkit (2021 E-Webinar Series)
Read More: Introduction to transition to adult services and overview of Child Neurology Foundation transition toolkit (2021 E-Webinar Series)
TAND – adult-specific issues: anxiety, anger and depression (2021 E-Webinar Series)
Read More: TAND – adult-specific issues: anxiety, anger and depression (2021 E-Webinar Series)
TAND: medication options (2021 E-Webinar Series)
Read More: TAND: medication options (2021 E-Webinar Series)
TAND: sleep (2021 E-Webinar Series)
Read More: TAND: sleep (2021 E-Webinar Series)
TAND: research update (2021 E-Webinar Series)
Read More: TAND: research update (2021 E-Webinar Series)
TAND: aggressive behavior and management (2021 E-Webinar Series)
Read More: TAND: aggressive behavior and management (2021 E-Webinar Series)
TAND: early intervention (2021 E-Webinar Series)
Read More: TAND: early intervention (2021 E-Webinar Series)
Managing treatment and TAND specialists (2021 E-Webinar Series)
Read More: Managing treatment and TAND specialists (2021 E-Webinar Series)
TAND: ADHD/OCD (2021 E-Webinar Series)
Read More: TAND: ADHD/OCD (2021 E-Webinar Series)
TSC Alliance self-report portal and the TAND-SQ (2021 E-Webinar Series)
Read More: TSC Alliance self-report portal and the TAND-SQ (2021 E-Webinar Series)
Cannabidiol oral solution as an add on therapy in infants with seizures caused by TSC (2021 E-Webinar Series)
Read More: Cannabidiol oral solution as an add on therapy in infants with seizures caused by TSC (2021 E-Webinar Series)
Timber Pharmaceuticals: research update & roundtable discussion on treatment of facial angiofibromas (2021 E-Webinar Series)
Read More: Timber Pharmaceuticals: research update & roundtable discussion on treatment of facial angiofibromas (2021 E-Webinar Series)
Marinus, Ganaxolone and the TSC CALM study (2021 E-Webinar Series)
Read More: Marinus, Ganaxolone and the TSC CALM study (2021 E-Webinar Series)
ABC to SAP: why your child needs a seizure action plan webinar
Read More: ABC to SAP: why your child needs a seizure action plan webinar
Changing the course of tuberous sclerosis complex to create a more hopeful future (May 2021)
Read More: Changing the course of tuberous sclerosis complex to create a more hopeful future (May 2021)
