EPICOM Study: Looking Beyond Seizure Control Webinar
Read More: EPICOM Study: Looking Beyond Seizure Control Webinar
Videos
Signs of infantile spasms
Read More: Signs of infantile spasms
Los signos de espasmos infantiles
Read More: Los signos de espasmos infantiles
How to participate in behavior and TAND research (2024 webinar)
The TSC Alliance hosted a webinar on May 13, 2024 about two studies on understan...
Read More: How to participate in behavior and TAND research (2024 webinar)
Baby Talk in TSC study (2023 Webinar Series)
Tanjala Gipson, MD, Director of the TSC-Associated Neuropsychiatric Disorders Cl...
Read More: Baby Talk in TSC study (2023 Webinar Series)
PREVeNT trial outcomes and where do we go from here? (2023 Webinar Series)
Read More: PREVeNT trial outcomes and where do we go from here? (2023 Webinar Series)
Caring for a loved one with facial angiofibroma associated with TSC (2023 Webinar Series)
Facial angiofibroma is one of the most visible signs of tuberous sclerosis compl...
Read More: Caring for a loved one with facial angiofibroma associated with TSC (2023 Webinar Series)
ABCs and 1,2,3s of preparing for back to school (2023 Webinar Series)
Shelly Meitzler, Director, Outreach & Support, and Elizabeth Skufca, Communi...
Read More: ABCs and 1,2,3s of preparing for back to school (2023 Webinar Series)
RAINBOW Study (2023 Webinar Series)
This webinar discusses behaviors in TSC and the Remote Assessment and Interventi...
Read More: RAINBOW Study (2023 Webinar Series)
Sudden unexpected death in epilepsy (SUDEP) awareness and grief support (2023 Webinar Series)
Presented by: Peter Crino, MD, PhD, TSC Clinic Director at the University of Mar...
Read More: Sudden unexpected death in epilepsy (SUDEP) awareness and grief support (2023 Webinar Series)
TrustTSC study: enrolling children and adults with TSC-associated seizures (2023 Webinar Series)
Read More: TrustTSC study: enrolling children and adults with TSC-associated seizures (2023 Webinar Series)
Racial differences in TSC skin manifestations (2023 Webinar Series)
Read More: Racial differences in TSC skin manifestations (2023 Webinar Series)
Global Collaborations (TANDem) and Updated Consensus Guidelines (2022 World TSC Conference)
Read More: Global Collaborations (TANDem) and Updated Consensus Guidelines (2022 World TSC Conference)
TSC Community Driven Research Network (TSC Alliance Research Model) (2022 World TSC Conference)
Read More: TSC Community Driven Research Network (TSC Alliance Research Model) (2022 World TSC Conference)
Driving the future of TSC – clinical trials and clinical care (2022 World TSC Conference)
Read More: Driving the future of TSC – clinical trials and clinical care (2022 World TSC Conference)
2022 World TSC Conference General Q&A: Panel of Day 1 Presenters
Read More: 2022 World TSC Conference General Q&A: Panel of Day 1 Presenters
2022 World TSC Conference General Q&A: panel of day 2 presenters
Read More: 2022 World TSC Conference General Q&A: panel of day 2 presenters
Seizure types and treatments (2022 World TSC Conference)
Read More: Seizure types and treatments (2022 World TSC Conference)
Skin and dental manifestations and treatment options (2022 World TSC Conference)
Read More: Skin and dental manifestations and treatment options (2022 World TSC Conference)
Genetics made simple (2022 World TSC Conference)
Read More: Genetics made simple (2022 World TSC Conference)
Kidney tumors, cysts & treatment options (2022 World TSC Conference)
Read More: Kidney tumors, cysts & treatment options (2022 World TSC Conference)
Access to TSC clinical care (2022 World TSC Conference)
Read More: Access to TSC clinical care (2022 World TSC Conference)
Gene therapy – hopes and hurdles (2022 World TSC Conference)
Read More: Gene therapy – hopes and hurdles (2022 World TSC Conference)
TAND – behavioral interventions and overview of medications (2022 World TSC Conference)
Read More: TAND – behavioral interventions and overview of medications (2022 World TSC Conference)
Surgical approaches and assessments for epilepsy and SEGA (2022 World TSC Conference)
Read More: Surgical approaches and assessments for epilepsy and SEGA (2022 World TSC Conference)
Accessing early childhood services and non-medical therapies (2022 World TSC Conference)
Read More: Accessing early childhood services and non-medical therapies (2022 World TSC Conference)
TAND – ADHD, anxiety, autism (research) (2022 World TSC Conference)
Read More: TAND – ADHD, anxiety, autism (research) (2022 World TSC Conference)
Genetics, reproductive issues and impact on relationships (2022 World TSC Conference)
Read More: Genetics, reproductive issues and impact on relationships (2022 World TSC Conference)
Finding your way home – creative housing options / microboards (2022 World TSC Conference)
Read More: Finding your way home – creative housing options / microboards (2022 World TSC Conference)
Other organ manifestations – liver, pancreas, heart and eyes (2022 World TSC Conference)
Read More: Other organ manifestations – liver, pancreas, heart and eyes (2022 World TSC Conference)
Using technology to your advantage (2022 World TSC Conference)
Read More: Using technology to your advantage (2022 World TSC Conference)
Accessing managed and palliative care throughout your TSC journey (2022 World TSC Conference)
Read More: Accessing managed and palliative care throughout your TSC journey (2022 World TSC Conference)
LAM, treatment options and clinical trials (2022 World TSC Conference)
Read More: LAM, treatment options and clinical trials (2022 World TSC Conference)
Caregiver resources – self and respite care (2022 World TSC Conference)
Read More: Caregiver resources – self and respite care (2022 World TSC Conference)
Refractory epilepsy – now what? (2022 World TSC Conference)
Read More: Refractory epilepsy – now what? (2022 World TSC Conference)
Managing progressive kidney disease (2022 World TSC Conference)
Read More: Managing progressive kidney disease (2022 World TSC Conference)
Transition into adulthood – employment and higher education (2022 World TSC Conference)
Read More: Transition into adulthood – employment and higher education (2022 World TSC Conference)
The TrustTSC Phase 3 clinical trial for seizures in children and adults with TSC (2022 Research Education Webinar Series)
Read More: The TrustTSC Phase 3 clinical trial for seizures in children and adults with TSC (2022 Research Education Webinar Series)
What is facial angiofibroma associated with TSC and how can it be managed? (2022 Research Education Webinar Series)
Read More: What is facial angiofibroma associated with TSC and how can it be managed? (2022 Research Education Webinar Series)
mTOR inhibitors: past, present & future (2022 Research Education Webinar Series)
Read More: mTOR inhibitors: past, present & future (2022 Research Education Webinar Series)
Basimglurant: potential new mode of action for seizures in TSC (2022 Research Education Webinar Series)
Read More: Basimglurant: potential new mode of action for seizures in TSC (2022 Research Education Webinar Series)
Refractory epilepsy in adults with TSC (2021 E-Webinar Series)
Read More: Refractory epilepsy in adults with TSC (2021 E-Webinar Series)
Refractory epilepsy: children and surgery (2021 E-Webinar Series)
Read More: Refractory epilepsy: children and surgery (2021 E-Webinar Series)
Tumor growth – kidneys, liver and pancreas (2021 E-Webinar Series)
Read More: Tumor growth – kidneys, liver and pancreas (2021 E-Webinar Series)
Understanding the TSC genes – TSC genetics made simple (2021 E-Webinar Series)
Read More: Understanding the TSC genes – TSC genetics made simple (2021 E-Webinar Series)
LAM in TSC: surveillance, treatment and research (2021 E-Webinar Series)
Read More: LAM in TSC: surveillance, treatment and research (2021 E-Webinar Series)
Genetics and pregnancy in tuberous sclerosis complex (2021 E-Webinar Series)
Read More: Genetics and pregnancy in tuberous sclerosis complex (2021 E-Webinar Series)
Dermatologic manifestations of TSC (2021 E-Webinar Series)
Read More: Dermatologic manifestations of TSC (2021 E-Webinar Series)
Overcoming hurdles: insurance, scripts and specialty pharmacy (2021 E-Webinar Series)
Read More: Overcoming hurdles: insurance, scripts and specialty pharmacy (2021 E-Webinar Series)
Assisted living, assisted employment and day programs (2021 E-Webinar Series)
Read More: Assisted living, assisted employment and day programs (2021 E-Webinar Series)
College, housing and employment (2021 E-Webinar Series)
Read More: College, housing and employment (2021 E-Webinar Series)
Guardianship options, financial planning and government benefits (2021 E-Webinar Series)
Read More: Guardianship options, financial planning and government benefits (2021 E-Webinar Series)
Navigating the transition to adult care (2021 E-Webinar Series)
Read More: Navigating the transition to adult care (2021 E-Webinar Series)
Building the transition individualized education program (IEP) (2021 E-Webinar Series)
Read More: Building the transition individualized education program (IEP) (2021 E-Webinar Series)
Introduction to transition to adult services and overview of Child Neurology Foundation transition toolkit (2021 E-Webinar Series)
Read More: Introduction to transition to adult services and overview of Child Neurology Foundation transition toolkit (2021 E-Webinar Series)
TAND – adult-specific issues: anxiety, anger and depression (2021 E-Webinar Series)
Read More: TAND – adult-specific issues: anxiety, anger and depression (2021 E-Webinar Series)
TAND: medication options (2021 E-Webinar Series)
Read More: TAND: medication options (2021 E-Webinar Series)
TAND: sleep (2021 E-Webinar Series)
Read More: TAND: sleep (2021 E-Webinar Series)
TAND: research update (2021 E-Webinar Series)
Read More: TAND: research update (2021 E-Webinar Series)
TAND: aggressive behavior and management (2021 E-Webinar Series)
Read More: TAND: aggressive behavior and management (2021 E-Webinar Series)
TAND: early intervention (2021 E-Webinar Series)
Read More: TAND: early intervention (2021 E-Webinar Series)
Managing treatment and TAND specialists (2021 E-Webinar Series)
Read More: Managing treatment and TAND specialists (2021 E-Webinar Series)
TAND: ADHD/OCD (2021 E-Webinar Series)
Read More: TAND: ADHD/OCD (2021 E-Webinar Series)
TSC Alliance self-report portal and the TAND-SQ (2021 E-Webinar Series)
Read More: TSC Alliance self-report portal and the TAND-SQ (2021 E-Webinar Series)
Cannabidiol oral solution as an add on therapy in infants with seizures caused by TSC (2021 E-Webinar Series)
Read More: Cannabidiol oral solution as an add on therapy in infants with seizures caused by TSC (2021 E-Webinar Series)
Timber Pharmaceuticals: research update & roundtable discussion on treatment of facial angiofibromas (2021 E-Webinar Series)
Read More: Timber Pharmaceuticals: research update & roundtable discussion on treatment of facial angiofibromas (2021 E-Webinar Series)
Marinus, Ganaxolone and the TSC CALM study (2021 E-Webinar Series)
Read More: Marinus, Ganaxolone and the TSC CALM study (2021 E-Webinar Series)
ABC to SAP: why your child needs a seizure action plan webinar
Read More: ABC to SAP: why your child needs a seizure action plan webinar
Changing the course of tuberous sclerosis complex to create a more hopeful future (May 2021)
Read More: Changing the course of tuberous sclerosis complex to create a more hopeful future (May 2021)
Reunión para familias hispanohablantes
Read More: Reunión para familias hispanohablantes
