The TSC Alliance: Carolinas Community Region is excited to host a series of informal virtual get‑togethers for the Carolinas community! These calls are a chance to connect, get to know one another, share our stories, and exchange support and resources in a welcoming space. Join the Carolinas Community Region on Wednesday, May 27 at 7 PM ET for
The third pre-conference webinar, Seizure Types in TSC, will take place on Wednesday, June 3, 2026, at 12:00 pm ET, and will address seizure types across the lifespan. This webinar will feature moderator Shelly Meitzler and presenters Sam Amin, MBCHB, MRCPCH, MSc, PhD and E. Martina Bebin, MD, MPA. REGISTER HERE
Join us in Murray, UT on Saturday, June 6, 2026, at Wheeler Farm Outdoor Education Center for Step Forward to Cure TSC®! This walk brings together the TSC community from Utah—all united by hope, connection, and the drive to make a difference. Whether you join us in person or participate virtually, your presence matters. 10:00 am
Join us on Monday, June 15, 2026 at 8 pm ET for a practical and empowering Ask an Advocate session to learn how to create a One‑Page Description, a simple, person‑centered tool that helps people living with TSC be better understood and supported in medical, school, and community settings. This session will be led by
The fourth pre-conference webinar, Genetics Made Simple, will take place on Wednesday, June 17, 2026, at 8:00 pm ET, and feature moderator Danielle Nolan, MD and presenter Hope Northrup, MD. This webinar will break down the basics of TSC genetics making it easier to understand how TSC happens, why it varies from person to person, and what this
The fifth and final pre-conference webinar, mTOR Inhibitors: Past, Present and Future, will take place on Tuesday, June 30, 2026, at 8:00 pm ET, and feature moderator Elizabeth Skufca and presenters David Ritter, MD, PhD and Michael Wong, MD, PhD. This webinar will explore the evolution of mTOR inhibitors in treating TSC, from their discovery to current clinical use in
Register today for the 2026 TSC World Conference from July 30 to August 1, 2026, at the Gaylord Rockies Resort & Convention Center in Aurora, CO! Conference programming will begin at 1 pm MT on Thursday, July 30 and will conclude with a dinner and celebration in the evening on Saturday, August 1. This conference,
The TSC Alliance: Carolinas Community Region is excited to host a series of informal virtual get‑togethers for the Carolinas community! These calls are a chance to connect, get to know one another, share our stories, and exchange support and resources in a welcoming space. Join the Carolinas Community Region on Tuesday, August 4 at 7 PM ET for
Join us on Monday, August 10, 2026 at 8 pm ET for an Ask an Advocate session. Topic TBD. Register for the August 10, 2026 Ask an Advocate session here.
The September topic call will take place on Wednesday, September 16, 2026 at 8 pm ET. Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. REGISTER HERE
The TSC Alliance: Carolinas Community Region is excited to host a series of informal virtual get‑togethers for the Carolinas community! These calls are a chance to connect, get to know one another, share our stories, and exchange support and resources in a welcoming space. Join the Carolinas Community Region on Sunday, October 11 at 7 PM ET following
Join us on Monday, October 12, 2026 at 8 pm ET for an Ask an Advocate session. This month's call is an informative session designed to help students and families confidently prepare for the shift from high school to college. Led by higher education expert Dr. Theresa Orosz, this workshop will cover key differences in