50th Anniversary Gala Commemorative Program Book
Read More: 50th Anniversary Gala Commemorative Program Book
Publications
Child Neurology Foundation Transition Of Care Toolkit
Read More: Child Neurology Foundation Transition Of Care Toolkit
An introduction to tuberous sclerosis complex
Read More: An introduction to tuberous sclerosis complex
Una introducción al complejo de esclerosis tuberosa (CET)
Read More: Una introducción al complejo de esclerosis tuberosa (CET)
TSC Diagnostic Criteria, Surveillance and Management Guidelines
Read More: TSC Diagnostic Criteria, Surveillance and Management Guidelines
Navigating the early years of TSC (in utero to 5 years of age)
Read More: Navigating the early years of TSC (in utero to 5 years of age)
Navigating the school age years of TSC (6 to 13 years of age)
Read More: Navigating the school age years of TSC (6 to 13 years of age)
Navigating the transition years of TSC (14 to 26 years of age)
Read More: Navigating the transition years of TSC (14 to 26 years of age)
Navigating the adult years of TSC
Read More: Navigating the adult years of TSC
A place of hope
Read More: A place of hope
Un lugar de esperanza
Read More: Un lugar de esperanza
A basic introduction to clinical trials
Read More: A basic introduction to clinical trials
Una introducción básica a los ensayos clínicos
Read More: Una introducción básica a los ensayos clínicos
Sample letter to a family member
Telling your family members about TSC can be difficult and overwhelming. Let us ...
Read More: Sample letter to a family member
In their own words: personal journeys with tuberous sclerosis complex (2007)
Read More: In their own words: personal journeys with tuberous sclerosis complex (2007)
Reproductive decision making and TSC
Read More: Reproductive decision making and TSC
Checklist for successful appointments and prescription management
Read More: Checklist for successful appointments and prescription management
Medical specialists you may encounter
Read More: Medical specialists you may encounter
Medication and testing
Read More: Medication and testing
Emergency medicine checklist
Read More: Emergency medicine checklist
New Diagnosis Flowchart (Childhood)
Read More: New Diagnosis Flowchart (Childhood)
Overcoming hurdles: insurance, scripts and specialty pharmacy
Read More: Overcoming hurdles: insurance, scripts and specialty pharmacy
Shared decision-making and children with disabilities: pathways to consensus
Read More: Shared decision-making and children with disabilities: pathways to consensus
Sample prior authorization letter for AMLs
Read More: Sample prior authorization letter for AMLs
Sample Prior Authorization Letter for SEGAs
Read More: Sample Prior Authorization Letter for SEGAs
Sample letter of medical necessity for Epidiolex
Read More: Sample letter of medical necessity for Epidiolex
DiRx Postcard
Read More: DiRx Postcard
Nobelpharma Connect Brochure
Read More: Nobelpharma Connect Brochure
Infantile or epileptic spasms and tuberous sclerosis complex
Read More: Infantile or epileptic spasms and tuberous sclerosis complex
Los espasmos infantiles o epilépticos y el complejo de esclerosis tuberosa
Read More: Los espasmos infantiles o epilépticos y el complejo de esclerosis tuberosa
Racial differences in the dermatological manifestations of TSC infographic
Read More: Racial differences in the dermatological manifestations of TSC infographic
TSC-Associated Neuropsychatric Disorders (TAND) and Education
Read More: TSC-Associated Neuropsychatric Disorders (TAND) and Education
Signs and symptoms of caregiver burnout
Read More: Signs and symptoms of caregiver burnout
Finding you caregiver zone
Read More: Finding you caregiver zone
How to help me worksheet
Read More: How to help me worksheet
Aging caregiver checklist
Read More: Aging caregiver checklist
Acute care decision sheet
Read More: Acute care decision sheet
Steps to reduce SUDEP
Read More: Steps to reduce SUDEP
Advance decision-making planning sheet
Read More: Advance decision-making planning sheet
ABCs of respite: a consumer guide for family caregivers
Read More: ABCs of respite: a consumer guide for family caregivers
Tuberous Sclerosis Complex Bcureful TSC Clinic Travel Assistance Program
Read More: Tuberous Sclerosis Complex Bcureful TSC Clinic Travel Assistance Program
TSC Bcureful Research Study Participation Travel Assistance Program
Read More: TSC Bcureful Research Study Participation Travel Assistance Program
TSC Natural History Database and Biosample Repository
Read More: TSC Natural History Database and Biosample Repository
TSC Navigator and Navigation Guides
Read More: TSC Navigator and Navigation Guides
Vigabatrin-associated field loss (VAVFL): what you need to know
Read More: Vigabatrin-associated field loss (VAVFL): what you need to know
Pérdida del campo visual relacionada con Vigabatrin (VAVFL, por sus siglas en inglés): lo que usted debe saber
Read More: Pérdida del campo visual relacionada con Vigabatrin (VAVFL, por sus siglas en inglés): lo que usted debe saber
Questions to ask about canine assistance
Read More: Questions to ask about canine assistance
Perspective Spring 2024
Read More: Perspective Spring 2024
Perspective Fall 2023
Read More: Perspective Fall 2023
Perspective Fall 2022
Read More: Perspective Fall 2022
Perspective Winter 2022
Read More: Perspective Winter 2022
Perspective Winter 2019
Read More: Perspective Winter 2019
Perspective Summer 2010
Read More: Perspective Summer 2010
