![Publication](https://www.tscalliance.org/wp-content/uploads/2024/07/Transition-of-Care-Toolkit.png)
Child Neurology Foundation Transition Of Care Toolkit
Read More: Child Neurology Foundation Transition Of Care Toolkit
![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
50th Anniversary Spotlight – Shonnie Johnson
2024 marks the 50th anniversary of the TSC Alliance, which was founded by four m...
Read More: 50th Anniversary Spotlight – Shonnie Johnson![Publication](https://www.tscalliance.org/wp-content/uploads/2023/12/intro-cover.png)
An introduction to tuberous sclerosis complex
Read More: An introduction to tuberous sclerosis complex
![Publication](https://www.tscalliance.org/wp-content/uploads/2024/01/intro-spanish-cover.png)
Una introducción al complejo de esclerosis tuberosa (CET)
Read More: Una introducción al complejo de esclerosis tuberosa (CET)
![Publication](https://www.tscalliance.org/wp-content/uploads/2024/01/diagnostic-cover.png)
TSC Diagnostic Criteria, Surveillance and Management Guidelines
Read More: TSC Diagnostic Criteria, Surveillance and Management Guidelines
![Publication](https://www.tscalliance.org/wp-content/uploads/2023/12/early-years-cover.png)
Navigating the early years of TSC (in utero to 5 years of age)
Read More: Navigating the early years of TSC (in utero to 5 years of age)
![Publication](https://www.tscalliance.org/wp-content/uploads/2023/12/school-age-cover.png)
Navigating the school age years of TSC (6 to 13 years of age)
Read More: Navigating the school age years of TSC (6 to 13 years of age)
![Publication](https://www.tscalliance.org/wp-content/uploads/2023/12/transition-cover.png)
Navigating the transition years of TSC (14 to 26 years of age)
Read More: Navigating the transition years of TSC (14 to 26 years of age)
![Publication](https://www.tscalliance.org/wp-content/uploads/2024/01/adult-years-cover.png)
Navigating the adult years of TSC
Read More: Navigating the adult years of TSC
![Publication](https://www.tscalliance.org/wp-content/uploads/2024/01/a-place-of-hope-cover.png)
A place of hope
Read More: A place of hope
![Publication](https://www.tscalliance.org/wp-content/uploads/2024/01/a-place-of-hope-cover.png)
Un lugar de esperanza
Read More: Un lugar de esperanza
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
A basic introduction to clinical trials
Read More: A basic introduction to clinical trials
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
Una introducción básica a los ensayos clínicos
Read More: Una introducción básica a los ensayos clínicos
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
Sample letter to a family member
Telling your family members about TSC can be difficult and overwhelming. Let us ...
Read More: Sample letter to a family member![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
In their own words: personal journeys with tuberous sclerosis complex (2007)
Read More: In their own words: personal journeys with tuberous sclerosis complex (2007)
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
Reproductive decision making and TSC
Read More: Reproductive decision making and TSC
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
Checklist for successful appointments and prescription management
Read More: Checklist for successful appointments and prescription management
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
Medical specialists you may encounter
Read More: Medical specialists you may encounter
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
Medication and testing
Read More: Medication and testing
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
Emergency medicine checklist
Read More: Emergency medicine checklist
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
New Diagnosis Flowchart (Childhood)
Read More: New Diagnosis Flowchart (Childhood)
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
Overcoming hurdles: insurance, scripts and specialty pharmacy
Read More: Overcoming hurdles: insurance, scripts and specialty pharmacy
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
Shared decision-making and children with disabilities: pathways to consensus
Read More: Shared decision-making and children with disabilities: pathways to consensus
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
Sample prior authorization letter for AMLs
Read More: Sample prior authorization letter for AMLs
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
Sample Prior Authorization Letter for SEGAs
Read More: Sample Prior Authorization Letter for SEGAs
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
Sample letter of medical necessity for Epidiolex
Read More: Sample letter of medical necessity for Epidiolex
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
DiRx Postcard
Read More: DiRx Postcard
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
Nobelpharma Connect Brochure
Read More: Nobelpharma Connect Brochure
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
Infantile or epileptic spasms and tuberous sclerosis complex
Read More: Infantile or epileptic spasms and tuberous sclerosis complex
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
Los espasmos infantiles o epilépticos y el complejo de esclerosis tuberosa
Read More: Los espasmos infantiles o epilépticos y el complejo de esclerosis tuberosa
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
Racial differences in the dermatological manifestations of TSC infographic
Read More: Racial differences in the dermatological manifestations of TSC infographic
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
TSC-Associated Neuropsychatric Disorders (TAND) and Education
Read More: TSC-Associated Neuropsychatric Disorders (TAND) and Education
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
Signs and symptoms of caregiver burnout
Read More: Signs and symptoms of caregiver burnout
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
Finding you caregiver zone
Read More: Finding you caregiver zone
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
How to help me worksheet
Read More: How to help me worksheet
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
Aging caregiver checklist
Read More: Aging caregiver checklist
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
Acute care decision sheet
Read More: Acute care decision sheet
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
Steps to reduce SUDEP
Read More: Steps to reduce SUDEP
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
Advance decision-making planning sheet
Read More: Advance decision-making planning sheet
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
ABCs of respite: a consumer guide for family caregivers
Read More: ABCs of respite: a consumer guide for family caregivers
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
Tuberous Sclerosis Complex Bcureful TSC Clinic Travel Assistance Program
Read More: Tuberous Sclerosis Complex Bcureful TSC Clinic Travel Assistance Program
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
TSC Bcureful Research Study Participation Travel Assistance Program
Read More: TSC Bcureful Research Study Participation Travel Assistance Program
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
TSC Natural History Database and Biosample Repository
Read More: TSC Natural History Database and Biosample Repository
![](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
Brain/tissue donation and SUPEP awareness
Read More: Brain/tissue donation and SUPEP awareness
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
TSC Navigator and Navigation Guides
Read More: TSC Navigator and Navigation Guides
![Publication](https://www.tscalliance.org/wp-content/uploads/2024/01/VAVFL-Cover.png)
Vigabatrin-associated field loss (VAVFL): what you need to know
Read More: Vigabatrin-associated field loss (VAVFL): what you need to know
![Publication](https://www.tscalliance.org/wp-content/uploads/2024/01/vavfl-cover-spanish.png)
Pérdida del campo visual relacionada con Vigabatrin (VAVFL, por sus siglas en inglés): lo que usted debe saber
Read More: Pérdida del campo visual relacionada con Vigabatrin (VAVFL, por sus siglas en inglés): lo que usted debe saber
![Publication](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-publication.jpg)
Questions to ask about canine assistance
Read More: Questions to ask about canine assistance
![Video](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-video.jpg)
Signs of infantile spasms
Read More: Signs of infantile spasms
![Video](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-video.jpg)
Signs of infantile spasms (spanish)
Read More: Signs of infantile spasms (spanish)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/05/How-to-participate-in-behavior-and-TAND-research.png)
How to participate in behavior and TAND research (2024 webinar)
The TSC Alliance hosted a webinar on May 13, 2024 about two studies on understan...
Read More: How to participate in behavior and TAND research (2024 webinar)![Video](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-video.jpg)
Baby Talk in TSC study (2023 Webinar Series)
Tanjala Gipson, MD, Director of the TSC-Associated Neuropsychiatric Disorders Cl...
Read More: Baby Talk in TSC study (2023 Webinar Series)![Video](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-video.jpg)
PREVeNT trial outcomes and where do we go from here? (2023 Webinar Series)
Read More: PREVeNT trial outcomes and where do we go from here? (2023 Webinar Series)
![Video](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-video.jpg)
Caring for a loved one with facial angiofibroma associated with TSC (2023 Webinar Series)
Facial angiofibroma is one of the most visible signs of tuberous sclerosis compl...
Read More: Caring for a loved one with facial angiofibroma associated with TSC (2023 Webinar Series)![Video](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-video.jpg)
ABCs and 1,2,3s of preparing for back to school (2023 Webinar Series)
Shelly Meitzler, Director, Outreach & Support, and Elizabeth Skufca, Communi...
Read More: ABCs and 1,2,3s of preparing for back to school (2023 Webinar Series)![Video](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-video.jpg)
RAINBOW Study (2023 Webinar Series)
This webinar discusses behaviors in TSC and the Remote Assessment and Interventi...
Read More: RAINBOW Study (2023 Webinar Series)![Video](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-video.jpg)
Sudden unexpected death in epilepsy (SUDEP) awareness and grief support (2023 Webinar Series)
Presented by: Peter Crino, MD, PhD, TSC Clinic Director at the University of Mar...
Read More: Sudden unexpected death in epilepsy (SUDEP) awareness and grief support (2023 Webinar Series)![Video](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-video.jpg)
TrustTSC study: enrolling children and adults with TSC-associated seizures (2023 Webinar Series)
Read More: TrustTSC study: enrolling children and adults with TSC-associated seizures (2023 Webinar Series)
![Video](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-video.jpg)
Racial differences in TSC skin manifestations (2023 Webinar Series)
Read More: Racial differences in TSC skin manifestations (2023 Webinar Series)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/World-Conference.png)
Global Collaborations (TANDem) and Updated Consensus Guidelines (2022 World TSC Conference)
Read More: Global Collaborations (TANDem) and Updated Consensus Guidelines (2022 World TSC Conference)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/World-Conference.png)
TSC Community Driven Research Network (TSC Alliance Research Model) (2022 World TSC Conference)
Read More: TSC Community Driven Research Network (TSC Alliance Research Model) (2022 World TSC Conference)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/World-Conference.png)
Driving the future of TSC – clinical trials and clinical care (2022 World TSC Conference)
Read More: Driving the future of TSC – clinical trials and clinical care (2022 World TSC Conference)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/World-Conference.png)
2022 World TSC Conference General Q&A: Panel of Day 1 Presenters
Read More: 2022 World TSC Conference General Q&A: Panel of Day 1 Presenters
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/World-Conference.png)
2022 World TSC Conference General Q&A: panel of day 2 presenters
Read More: 2022 World TSC Conference General Q&A: panel of day 2 presenters
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/World-Conference.png)
Seizure types and treatments (2022 World TSC Conference)
Read More: Seizure types and treatments (2022 World TSC Conference)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/World-Conference.png)
Skin and dental manifestations and treatment options (2022 World TSC Conference)
Read More: Skin and dental manifestations and treatment options (2022 World TSC Conference)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/World-Conference.png)
Genetics made simple (2022 World TSC Conference)
Read More: Genetics made simple (2022 World TSC Conference)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/World-Conference.png)
Kidney tumors, cysts & treatment options (2022 World TSC Conference)
Read More: Kidney tumors, cysts & treatment options (2022 World TSC Conference)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/World-Conference.png)
Access to TSC clinical care (2022 World TSC Conference)
Read More: Access to TSC clinical care (2022 World TSC Conference)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/World-Conference.png)
Gene therapy – hopes and hurdles (2022 World TSC Conference)
Read More: Gene therapy – hopes and hurdles (2022 World TSC Conference)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/World-Conference.png)
TAND – behavioral interventions and overview of medications (2022 World TSC Conference)
Read More: TAND – behavioral interventions and overview of medications (2022 World TSC Conference)
![](https://www.tscalliance.org/wp-content/uploads/2024/01/World-Conference.png)
Navigating the complexities for special needs care in TSC (2022 World TSC Conference)
Read More: Navigating the complexities for special needs care in TSC (2022 World TSC Conference)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/World-Conference.png)
Surgical approaches and assessments for epilepsy and SEGA (2022 World TSC Conference)
Read More: Surgical approaches and assessments for epilepsy and SEGA (2022 World TSC Conference)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/World-Conference.png)
Accessing early childhood services and non-medical therapies (2022 World TSC Conference)
Read More: Accessing early childhood services and non-medical therapies (2022 World TSC Conference)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/World-Conference.png)
TAND – ADHD, anxiety, autism (research) (2022 World TSC Conference)
Read More: TAND – ADHD, anxiety, autism (research) (2022 World TSC Conference)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/World-Conference.png)
Genetics, reproductive issues and impact on relationships (2022 World TSC Conference)
Read More: Genetics, reproductive issues and impact on relationships (2022 World TSC Conference)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/World-Conference.png)
Finding your way home – creative housing options / microboards (2022 World TSC Conference)
Read More: Finding your way home – creative housing options / microboards (2022 World TSC Conference)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/World-Conference.png)
Other organ manifestations – liver, pancreas, heart and eyes (2022 World TSC Conference)
Read More: Other organ manifestations – liver, pancreas, heart and eyes (2022 World TSC Conference)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/World-Conference.png)
Using technology to your advantage (2022 World TSC Conference)
Read More: Using technology to your advantage (2022 World TSC Conference)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/World-Conference.png)
Accessing managed and palliative care throughout your TSC journey (2022 World TSC Conference)
Read More: Accessing managed and palliative care throughout your TSC journey (2022 World TSC Conference)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/World-Conference.png)
LAM, treatment options and clinical trials (2022 World TSC Conference)
Read More: LAM, treatment options and clinical trials (2022 World TSC Conference)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/World-Conference.png)
Caregiver resources – self and respite care (2022 World TSC Conference)
Read More: Caregiver resources – self and respite care (2022 World TSC Conference)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/World-Conference.png)
Refractory epilepsy – now what? (2022 World TSC Conference)
Read More: Refractory epilepsy – now what? (2022 World TSC Conference)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/World-Conference.png)
Managing progressive kidney disease (2022 World TSC Conference)
Read More: Managing progressive kidney disease (2022 World TSC Conference)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/World-Conference.png)
Transition into adulthood – employment and higher education (2022 World TSC Conference)
Read More: Transition into adulthood – employment and higher education (2022 World TSC Conference)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2022-Research-Education-Webinar-Series.png)
The TrustTSC Phase 3 clinical trial for seizures in children and adults with TSC (2022 Research Education Webinar Series)
Read More: The TrustTSC Phase 3 clinical trial for seizures in children and adults with TSC (2022 Research Education Webinar Series)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2022-Research-Education-Webinar-Series.png)
What is facial angiofibroma associated with TSC and how can it be managed? (2022 Research Education Webinar Series)
Read More: What is facial angiofibroma associated with TSC and how can it be managed? (2022 Research Education Webinar Series)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2022-Research-Education-Webinar-Series.png)
mTOR inhibitors: past, present & future (2022 Research Education Webinar Series)
Read More: mTOR inhibitors: past, present & future (2022 Research Education Webinar Series)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2022-Research-Education-Webinar-Series.png)
Basimglurant: potential new mode of action for seizures in TSC (2022 Research Education Webinar Series)
Read More: Basimglurant: potential new mode of action for seizures in TSC (2022 Research Education Webinar Series)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2021-E-Webinar-Series.png)
Refractory epilepsy in adults with TSC (2021 E-Webinar Series)
Read More: Refractory epilepsy in adults with TSC (2021 E-Webinar Series)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2021-E-Webinar-Series.png)
Refractory epilepsy: children and surgery (2021 E-Webinar Series)
Read More: Refractory epilepsy: children and surgery (2021 E-Webinar Series)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2021-E-Webinar-Series.png)
Tumor growth – kidneys, liver and pancreas (2021 E-Webinar Series)
Read More: Tumor growth – kidneys, liver and pancreas (2021 E-Webinar Series)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2021-E-Webinar-Series.png)
Understanding the TSC genes – TSC genetics made simple (2021 E-Webinar Series)
Read More: Understanding the TSC genes – TSC genetics made simple (2021 E-Webinar Series)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2021-E-Webinar-Series.png)
LAM in TSC: surveillance, treatment and research (2021 E-Webinar Series)
Read More: LAM in TSC: surveillance, treatment and research (2021 E-Webinar Series)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2021-E-Webinar-Series.png)
Genetics and pregnancy in tuberous sclerosis complex (2021 E-Webinar Series)
Read More: Genetics and pregnancy in tuberous sclerosis complex (2021 E-Webinar Series)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2021-E-Webinar-Series.png)
Dermatologic manifestations of TSC (2021 E-Webinar Series)
Read More: Dermatologic manifestations of TSC (2021 E-Webinar Series)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2021-E-Webinar-Series.png)
Overcoming hurdles: insurance, scripts and specialty pharmacy (2021 E-Webinar Series)
Read More: Overcoming hurdles: insurance, scripts and specialty pharmacy (2021 E-Webinar Series)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2021-E-Webinar-Series.png)
Assisted living, assisted employment and day programs (2021 E-Webinar Series)
Read More: Assisted living, assisted employment and day programs (2021 E-Webinar Series)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2021-E-Webinar-Series.png)
College, housing and employment (2021 E-Webinar Series)
Read More: College, housing and employment (2021 E-Webinar Series)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2021-E-Webinar-Series.png)
Guardianship options, financial planning and government benefits (2021 E-Webinar Series)
Read More: Guardianship options, financial planning and government benefits (2021 E-Webinar Series)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2021-E-Webinar-Series.png)
Navigating the transition to adult care (2021 E-Webinar Series)
Read More: Navigating the transition to adult care (2021 E-Webinar Series)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2021-E-Webinar-Series.png)
Building the transition individualized education program (IEP) (2021 E-Webinar Series)
Read More: Building the transition individualized education program (IEP) (2021 E-Webinar Series)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2021-E-Webinar-Series.png)
Introduction to transition to adult services and overview of Child Neurology Foundation transition toolkit (2021 E-Webinar Series)
Read More: Introduction to transition to adult services and overview of Child Neurology Foundation transition toolkit (2021 E-Webinar Series)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2021-E-Webinar-Series.png)
TAND – adult-specific issues: anxiety, anger and depression (2021 E-Webinar Series)
Read More: TAND – adult-specific issues: anxiety, anger and depression (2021 E-Webinar Series)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2021-E-Webinar-Series.png)
TAND: medication options (2021 E-Webinar Series)
Read More: TAND: medication options (2021 E-Webinar Series)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2021-E-Webinar-Series.png)
TAND: sleep (2021 E-Webinar Series)
Read More: TAND: sleep (2021 E-Webinar Series)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2021-E-Webinar-Series.png)
TAND: research update (2021 E-Webinar Series)
Read More: TAND: research update (2021 E-Webinar Series)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2021-E-Webinar-Series.png)
TAND: aggressive behavior and management (2021 E-Webinar Series)
Read More: TAND: aggressive behavior and management (2021 E-Webinar Series)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2021-E-Webinar-Series.png)
TAND: early intervention (2021 E-Webinar Series)
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Managing treatment and TAND specialists (2021 E-Webinar Series)
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![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2021-E-Webinar-Series.png)
TAND: ADHD/OCD (2021 E-Webinar Series)
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![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2021-E-Webinar-Series.png)
TSC Alliance self-report portal and the TAND-SQ (2021 E-Webinar Series)
Read More: TSC Alliance self-report portal and the TAND-SQ (2021 E-Webinar Series)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2021-E-Webinar-Series.png)
Cannabidiol oral solution as an add on therapy in infants with seizures caused by TSC (2021 E-Webinar Series)
Read More: Cannabidiol oral solution as an add on therapy in infants with seizures caused by TSC (2021 E-Webinar Series)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2021-E-Webinar-Series.png)
Timber Pharmaceuticals: research update & roundtable discussion on treatment of facial angiofibromas (2021 E-Webinar Series)
Read More: Timber Pharmaceuticals: research update & roundtable discussion on treatment of facial angiofibromas (2021 E-Webinar Series)
![Video](https://www.tscalliance.org/wp-content/uploads/2024/01/2021-E-Webinar-Series.png)
Marinus, Ganaxolone and the TSC CALM study (2021 E-Webinar Series)
Read More: Marinus, Ganaxolone and the TSC CALM study (2021 E-Webinar Series)
![Video](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-video.jpg)
ABC to SAP: why your child needs a seizure action plan webinar
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![Video](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-video.jpg)
Changing the course of tuberous sclerosis complex to create a more hopeful future (May 2021)
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![Video](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-video.jpg)
Reunión para familias hispanohablantes
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![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 49: Community Spotlight – Gloria Triebenbach
In a final bonus episode in 2023, host Dan Klein connects with Gloria Triebenbac...
Read More: Episode 49: Community Spotlight – Gloria Triebenbach![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 48: Community Spotlight – Kristen Moore
In a bonus episode, host Dan Klein connects with Kristen Moore, Vice Chair of th...
Read More: Episode 48: Community Spotlight – Kristen Moore![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 47: Closing the Epilepsy Treatment Gap Worldwide
In this episode, host Dan Klein learns about Pretola Global Health and Consultin...
Read More: Episode 47: Closing the Epilepsy Treatment Gap Worldwide![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 46: Understanding drug resistant epilepsy and treatment options
In this episode of TSC Now, host Dan Klein interviews Karen Keough, MD, a child ...
Read More: Episode 46: Understanding drug resistant epilepsy and treatment options![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 45: The 2023 International TSC Research Conference
On this episode of TSC Now, host Dan Klein recaps the 2023 International TSC Res...
Read More: Episode 45: The 2023 International TSC Research Conference![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 44: Rare Conversations
Disclaimer: This episode is sponsored by Nobelpharma America LLC. The opinions e...
Read More: Episode 44: Rare Conversations![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 43: The TSC-STEPS Trial
In this episode of TSC Now, host Dan Klein dives deep on a new clinical trial in...
Read More: Episode 43: The TSC-STEPS Trial![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 42: Understanding Seizure Clusters
In the first episode of TSC Now in 2023, host Dan Klein recognizes International...
Read More: Episode 42: Understanding Seizure Clusters![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 41: Help Today, Help Tomorrow
In the final episode of TSC Now in 2022, host Dan Klein connects with two incred...
Read More: Episode 41: Help Today, Help Tomorrow![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 40: Totally Super Cool!
In a special bonus episode of TSC Now, host Dan Klein learns about a new childre...
Read More: Episode 40: Totally Super Cool!![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 39: Inspiring a World TSC Community
In a special two-part episode of TSC Now, host Dan Klein recaps the 2022 World T...
Read More: Episode 39: Inspiring a World TSC Community![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 38: Galvanizing a World TSC Community
In a special two-part episode of TSC Now, host Dan Klein recaps the 2022 World T...
Read More: Episode 38: Galvanizing a World TSC Community![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 37: The MILED Trial and the Future of LAM Research
In this episode of TSC Now, host Dan Klein celebrates Worldwide LAM Awareness Mo...
Read More: Episode 37: The MILED Trial and the Future of LAM Research![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 35: The Past, Present and Future of Autism Research in TSC
In this episode of TSC Now, host Dan Klein recognizes World Autism Month by taki...
Read More: Episode 35: The Past, Present and Future of Autism Research in TSC![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 34: Celebrating 20 Years of Comedy for a Cure
In this episode of TSC Now, host Dan Klein recognizes the 20th Anniversary Comed...
Read More: Episode 34: Celebrating 20 Years of Comedy for a Cure![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 33: Noema, Basimglurant and a New Clinical Trial for Seizures in TSC
In a very special early episode of TSC Now, host Dan Klein recognizes Internat...
Read More: Episode 33: Noema, Basimglurant and a New Clinical Trial for Seizures in TSC![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 32: The 2022 World TSC Conference
In the first episode of TSC Now in 2022, host Dan Klein provides an overview of ...
Read More: Episode 32: The 2022 World TSC Conference![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 31: The Present and Future of TSC & LAM Research
In the final episode of TSC Now in 2021, host Dan Klein recaps the 2021 Virtual ...
Read More: Episode 31: The Present and Future of TSC & LAM Research![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 30: Infantile Spasms Awareness Week 2021
In Episode 30 of TSC Now, host Dan Klein kicks of Infantile Spams Awareness Week...
Read More: Episode 30: Infantile Spasms Awareness Week 2021![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 29: The TSC Navigator
In Episode 29 of TSC Now, host Dan Klein highlights TSC Navigator, an easy-to-us...
Read More: Episode 29: The TSC Navigator![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 28: Comedy for a Cure® 2021!
In a very special episode of TSC Now, host Dan Klein provides a sneak peek of th...
Read More: Episode 28: Comedy for a Cure® 2021!![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 27: Going Back to School and Caring for the Caregiver
In Episode 27 of TSC Now, host Dan Klein learns how parents can prepare for the ...
Read More: Episode 27: Going Back to School and Caring for the Caregiver![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 26: The Road to Newborn Screening in TSC
In Episode 26 of TSC Now, host Dan Klein takes a deep dive into one of the newer...
Read More: Episode 26: The Road to Newborn Screening in TSC![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 25: Lymphangioleiomyomatosis & Worldwide LAM Awareness Month (#WWLAM)
In Episode 25 of TSC Now, host Dan Klein recognizes Worldwide LAM Awareness Mont...
Read More: Episode 25: Lymphangioleiomyomatosis & Worldwide LAM Awareness Month (#WWLAM)![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 24: Achieving Universal Health Coverage and Driving Innovative Research Through Global Collaboration
It’s the two-year anniversary of TSC Now and we’re celebrating with a new na...
Read More: Episode 24: Achieving Universal Health Coverage and Driving Innovative Research Through Global Collaboration![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 23: Autism Spectrum Disorder in TSC and TACERN
In Episode 23 of TSC Now, host Dan Klein recognizes World Autism Month and Autis...
Read More: Episode 23: Autism Spectrum Disorder in TSC and TACERN![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 22: Overcoming Hurdles with Health Plans and Specialty Pharmacies
In Episode 22 of TSC Now, host Dan Klein explores overcoming hurdles in healthca...
Read More: Episode 22: Overcoming Hurdles with Health Plans and Specialty Pharmacies![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 20: The 2021 Virtual March on Capitol Hill
In the first episode of TSC Now, host Dan Klein dives deep on the upcoming Virtu...
Read More: Episode 20: The 2021 Virtual March on Capitol Hill![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 19: Infantile Spasms Awareness Week (#ISAW2020)
In a very special early edition of TSC Now, host Dan Klein explores the topic of...
Read More: Episode 19: Infantile Spasms Awareness Week (#ISAW2020)![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 18: Understanding COVID-19’s Impact on Those with TSC & LAM
In episode 18 of TSC Now, host Dan Klein talks to Nishant Gupta, MD, Associate P...
Read More: Episode 18: Understanding COVID-19’s Impact on Those with TSC & LAM![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 17: Gene Therapy in TSC
In episode 17 of TSC Now, host Dan Klein talks to Xandra Breakefield, PhD, Profe...
Read More: Episode 17: Gene Therapy in TSC![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 16: COVID-19 and Back to School
In episode 16 of TSC Now, host Dan Klein talks to two of the TS Alliance’s Edu...
Read More: Episode 16: COVID-19 and Back to School![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 15: Managing Behaviors During COVID-19 (Part 2) + A New Partnership with SeizureTracker
In episode 15 of TSC Now, host Dan Klein continues exploring how to manage harmf...
Read More: Episode 15: Managing Behaviors During COVID-19 (Part 2) + A New Partnership with SeizureTracker![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 14: Managing Aggressive and Harmful Behaviors During COVID-19 (Part 1)
In episode 14 of TSC Now, host Dan Klein begins the first of an important two-pa...
Read More: Episode 14: Managing Aggressive and Harmful Behaviors During COVID-19 (Part 1)![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 13: TSC Global Awareness Month in the Age of COVID-19
In episode 13 of TSC Now, host Dan Klein celebrates TSC Awareness Month and one ...
Read More: Episode 13: TSC Global Awareness Month in the Age of COVID-19![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 12: Living with TSC During COVID-19
In episode 12 of TSC Now, host Dan Klein does a deep dive on the ongoing COVID-1...
Read More: Episode 12: Living with TSC During COVID-19![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 11: A #March4TSCresearch Recap & Update on COVID-19
In episode 11 of TSC Now, host Dan Klein recaps our annual March on Capitol Hill...
Read More: Episode 11: A #March4TSCresearch Recap & Update on COVID-19![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 9: The State of the TS Alliance
In episode 9 of TSC Now, host Dan Klein talks to Tuberous Sclerosis Alliance Pre...
Read More: Episode 9: The State of the TS Alliance![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 7: Common Parent/Caregiver Challenges and Advocating for Your Health
In the seventh episode of TSC Now, host Dan Klein explores common challenges par...
Read More: Episode 7: Common Parent/Caregiver Challenges and Advocating for Your Health![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 6: TSC-Associated Neuropsychiatric Disorders (TAND)
In episode 6 of TSCnow, host Dan Klein talks to Petrus de Vries, MBChB, MRCPsych...
Read More: Episode 6: TSC-Associated Neuropsychiatric Disorders (TAND)![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 5: TSC Kidney Manifestations & Consensus Guidelines for Surveillance and Treatment
In episode 5 of TSC Now, Dan Klein talks to Dr. John Bissler, MD, Clinic Directo...
Read More: Episode 5: TSC Kidney Manifestations & Consensus Guidelines for Surveillance and Treatment![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 4: Educational Issues in TSC and How to Advocate for Your Child in School
In the fourth episode of TSC Now, host Dan Klein talks to Lilian Ansari, MS, Spe...
Read More: Episode 4: Educational Issues in TSC and How to Advocate for Your Child in School![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 3: The 2019 International TSC Research Conference
In the third episode of TSC Now, host Dan Klein, Director of Digital Platforms f...
Read More: Episode 3: The 2019 International TSC Research Conference![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 2: Epilepsy in TSC and Laser Ablation Surgery with Dr. Daniel Curry
In the second episode of TSC Now host Dan Klein talks to Dr. Daniel Curry, Direc...
Read More: Episode 2: Epilepsy in TSC and Laser Ablation Surgery with Dr. Daniel Curry![A Podcast from TSC Alliance](https://www.tscalliance.org/wp-content/themes/tscalliance23/images/resource-podcast.jpg)
Episode 1: TSC Global Day, 45th Anniversary and the Future of TSC Research
Welcome to the debut episode of TSC Now, a podcast from the Tuberous Sclerosis A...
Read More: Episode 1: TSC Global Day, 45th Anniversary and the Future of TSC Research![Publication](https://www.tscalliance.org/wp-content/uploads/2024/05/Perspective-Spring2024_Page_01.jpg)
Perspective Spring 2024
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Perspective Fall 2023
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Perspective Winter 2023
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Perspective Fall 2022
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Perspective Winter 2022
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Perspective Winter 2019
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Perspective Summer 2010
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Perspective Winter 2010
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