Search Results for: What is TSC

The TSC Alliance supports the vital role a tuberous sclerosis complex (TSC) clinic can play in improving the lives of TSC patients. Use the resources below to find a TSC

Are you providing care to a patient with a suspected tuberous sclerosis complex (TSC) diagnosis? Here are five things you need to know: Early diagnosis and management are critical to

This site is intended to provide basic information about tuberous sclerosis complex (TSC). It is not intended to, nor does it, constitute medical or other advice. Readers are warned not

Approved by the TSC Alliance Executive Committee: May 4, 2018 Revisions Approved by Executive Committee:  January 30, 2019 The TSC Alliance (“TSC Alliance,” or “we”, “us”, “our”) respects your privacy. 

TSC Alliance 8737 Colesville Road, Suite 400 Silver Spring, Maryland 20910-4487 GET DIRECTIONS Staff Directory Phone Our phones are available 9-5 pm ET, Mon-Fri. Tel: (301) 562-9890 Toll-Free: 1-800-225-6872 Emergency

The TSC Alliance’s “Navigation Guides” provide essential information to help guide individuals and families through the complexities of tuberous sclerosis complex (TSC) across the lifespan. TSC uniquely affects each individual

The TSC Alliance has made our website more accessible, thanks to a partnership with accessiBe, a company devoted to educating the world about the importance of inclusivity and web accessibility.

Investment to Accelerate Research Although significant advances have been made in the diagnosis and treatment of TSC in just the last decade, the vast majority of children and adults with

Tributes Tribute gifts can be made in honor or in memory of individuals. It is a wonderful way to send a birthday or anniversary wish, or congratulations for retirement, a

Media members and anyone seeking additional information about tuberous sclerosis complex or the TSC Alliance may direct inquiries to: Jaye Isham Chief Outreach Officer TSC Alliance 8737 Colesville Road, Suite

Products Stylo Bracelet Aimant Bouteille How To Order To place an order, please email TSCanadaST@gmail.com and indicate how many and which items you would like to order.  Payment will be

There is no limit to the many different ways you can personally help to raise funds and awareness for TSC. You can easily turn a fun activity, a birthday party

A donation to Tuberous Sclerosis Canada (TS Canada ST) can make a difference in the lives of those affected by tuberous sclerosis complex (TSC) by funding research and educational forums,

Tuberous Sclerosis Canada is seeking volunteers to help us with our efforts to combat tuberous sclerosis complex (TSC). Your efforts will help us establish local, provincial and national connections for

No current events scheduled.   Past Events Did you miss the TSC Canada ST & TSC Alliance Research Collaboration Webinar?  Watch it here:

Brain & Epilepsy Organizations Canadian Epilepsy Alliance: www.epilepsymatters.com International Bureau for Epilepsy: www.ibe-epilepsy.org Epilepsy Foundation: www.epilepsyfoundation.org BC Epilepsy Society: www.bcepilepsy.com Montreal Neurological Institute and Hospital: www.mni.mcgill.ca Childrens Neurology: www.childneurologysociety.org Epilepsy

Biosample Repository and Natural History Database The TSC Natural History Database collects clinical data used to document the impact of TSC on a person’s health, over his or her lifetime. 

Bylaws TSCST bylaw Financial Statements Click here to access our latest Canadian Registered Charity Return

Cathy Evanochko, Chair Cathy Evanochko is one of the founding board members of the organization. In the days prior to the availability of the Internet, an article about Cathy’s family

Tuberous Sclerosis Canada Sclérose Tubéreuse Established 1990 Mission TS Canada ST is a voluntary, non-profit, charitable organization dedicated to the principles of raising public awareness of tuberous sclerosis complex, encouraging

Alianzas en países que son hispanoparlantes  TSC Alliance of Mexico – Alianza de Esclerosis Tuberosa en México  Facebook: https://www.facebook.com/tsallianceofmexico   Asociación Argentina de Esclerosis Tuberosa (ARGET) Email:  asociacionarget@gmail.com Facebook: https://www.facebook.com/AsociacionArget  

Clínicas especializadas en el CET que cuentan con un doctor o un empleado que habla español con fluidez: California – Loma Linda The Tuberous Sclerosis Clinic at Loma Linda University

Please complete the form below to share your story of hope. By sharing your story, you help inspire hope in everyone with tuberous sclerosis complex (TSC) and let them know

The TSC Alliance grants the Manuel R. Gomez Award to individuals who have made a significant impact on our understanding of TSC in research, and/or have impacted the delivery of

The TSC Alliance International Scientific Advisory Board (ISAB) is comprised of both U.S. and international leaders in all areas of science relating to TSC research. The mission of the ISAB

By bringing together researchers from different disciplines and representing basic, translational, and clinical science, TSC Alliance-hosted research conferences provide a truly unique space to foster collaborations, spark new ideas and

The TSC Clinical Research Consortium has been the cornerstone of Federally funded research efforts in the US for the past decade. Only through the collaborative research efforts of the TSC

The Natural History Database and Biosample Repository has been instrumental in advancing my LAM research. The extensive resources within the database have been valuable for my investigations, and the accessibility

The Natural History Database is a fantastic resource for research in TSC. It is an incredible resource for those in epidemiology, given its unparalleled size. It is an incredible resource

The TSC Alliance and the Preclinical Consortium have been instrumental partners in establishing the preclinical models and data necessary for development of our candidate therapeutic. The historical data sets, knowledge

I will forever be grateful to the TSC Alliance for funding my research and for their support throughout the grant process. Having a leading TSC organization believe in my work

The TSC Alliance draws physicians, researchers, industry partners, and the TSC community into the research process, and thus they are uniquely positioned to help drastically alter the course of this

Help us create a future where everyone with TSC can live their fullest potential The TSC Alliance offers satisfying careers for people ready to bring their talent and skills to

Operating Board of Directors The TSC Alliance Board of Directors has general oversight, fiduciary, policy development and ambassadorial responsibilities. The board develops and approves strategic plans that define the framework

To create a future where everyone affected by tuberous sclerosis complex can live their fullest lives. 2024 – 2028 Strategic Plan Throughout 2023, members of the TSC Alliance Board of

Tuberous sclerosis complex (TSC) is a complicated disorder that requires lifelong care from a variety of specialists. The TSC Alliance provides the resources below to connect healthcare providers with TSC

A gift to the TSC Alliance will make a tangible difference in the lives of those affected by tuberous sclerosis complex (TSC) in a variety of ways. Please look at

The TSC Alliance is a membership-based organization, which means members participate in the corporate governance of the organization, which includes electing the Board of Directors. As such, members have a

Your voice makes a difference! $121 million appropriated for the TSCRP since 2002 $5.725 million to support clinical care and research at TSC centers in four states 120 volunteer advocates

The tuberous sclerosis complex (TSC) community is pivotal to advancing research. When you enroll in a clinical trial, share your medical data, donate biosamples or give voice to your lived

Champion our cause:  Join the TSC Alliance volunteer movement! The tuberous sclerosis complex (TSC) community is the TSC Alliance’s strongest ally. We rely on our dedicated volunteers to help drive

Our professional Support Navigators can help guide you along your unique journey. They can help answer your questions, process, and understand your diagnosis, help find TSC recognized specialists, and discuss

Being diagnosed with tuberous sclerosis complex (TSC) can cause significant challenges within your adult life regardless of when you first received your diagnosis. The TSC Alliance is here to help.

The TSC Alliance is supported by a corps of dedicated volunteer leaders across the country. Whether you are dealing with a new diagnosis or are looking for local resources, they