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By bringing together researchers from different disciplines and representing basic, translational, and clinical science, TSC Alliance-hosted research conferences provide a truly unique space to foster collaborations, spark new ideas and come together to tackle the most challenging aspects of this disease. For trainees in my lab, the conference allows them to hear from people from across the TSC community, which provides new insights that influence their own focus area. Furthermore, allowing early career researchers the opportunity to present their work, seek advice from leading TSC experts from around the world, and interact with families affected will hopefully inspire them to continue working in TSC throughout their career.”

Rebecca Ihrie, PhD, Associate Professor, Cell & Developmental Biology and Neurological Surgery, Vanderbilt University School of Medicine

The TSC Alliance hosts an International TSC Research Conference every other year to stimulate collaborative research to address unmet medical needs of those affected by TSC and related disorders, including autism, epilepsy, lymphangioleiomyomatosis (LAM), cancer and other rare diseases with overlapping phenotypes.

Save the dates for the 2025 research conference

Mark your calendars now for the 2025 TSC International Research Conference, hosted by the TSC Alliance, scheduled for June 26-28, 2025, at the Bethesda North Marriott in Bethesda, MD. The conference will focus on structured, collaborative discussions on groundbreaking research topics.

REGISTRATION OPENING IN EARLY 2025. More details to follow.

Conference Co-Chairs:

  • Shafali Spurling Jeste, MD,Chief, Division of Neurology, Co-Director, Neurological Institute, Children’s Hospital, Los Angeles​
  • Carmen Priolo, MD, PhD, Assistant Professor, Brigham and Women’s Hospital

Organizing Committee Members:

  • Anna Jansen, MD, PhD, Professor of Child Neurology, Antwerp University Hospital
  • Howard Weiner, MD, Chief, Neurosurgery, Texas Children’s Hospital
  • William Stanford, PhD, Senior Scientist, Regenerative Medicine, Ottawa Hospital Research Institute
  • Uchenna Unachukwu, PhD, Associate Research Scientist, Columbia University
  • Kimberly Raab-Graham, PhD, Professor, Translational Research, Wake Forest University
  • Kate Richardson, MS, CGC, Assistant Professor, Division of Medical Genetics, UTHealth Houston, McGovern Medical School
  • Rajsekar Rajaraman, MD, Director, TSC Clinic, Assistant Professor, Pediatric Neurology, UCLA Mattel Children’s Hospital

In addition, the conference will provide a platform for early-career researchers to present, share and network with senior investigators. More information on the conference, including registration and abstraction submission guidelines, will be available soon.

These biennial research conferences, along with the World TSC Conferences held every 4-5 years, also provide a platform to award one outstanding TSC researcher with the Manuel R. Gomez Award recognizing their significant impact on our understanding of TSC and/or the delivery of clinical care to those affected.

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Previous TSC Alliance-organized research conferences

2023 International TSC Research Conference: Fueling the Future
September 7-9, 2023 | Washington, DC

  Conference Program Book

  Conference summary

Recap from the conference co-chairs


2021 Virtual International TSC & LAM Research Conference: Driving Discoveries Beyond Boundaries
September 28-30, 2021 | Virtual

  Conference program book

 Conference summary

Recap from the conference co-chairs


2019 International Tuberous Sclerosis Complex Research Conference: Changing the Course of TSC
June 20-22, 2019 | Toronto, ON

  Conference program book

  Conference summary

Recap from the conference co-chairs


2017 International Research Conference on TSC and LAM: Innovating Through Partnerships
September 28-30, 2017 | Washington, DC

  Conference program book

  Conference summary


2015 International Tuberous Sclerosis Complex Research Conference: From Treatment to Prevention
September 10-12, 2015 | Windsor, UK

  Conference program book

  Conference summary


2013 International Research Conference on Tuberous Sclerosis Complex and Related Disorders: Molecules to Medicine
June 20-23, 2013 | Washington, DC

  Conference program book

  Conference summary