Event
Tuberous sclerosis complex clinic family fun day!
Join the Corewell Health East Beaumont Children’s team for a TSC clinic family fun day on Wednesday, July 24, 2024 from 2-5 PM EDT at the William Beaumont University Hospital
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2010 TSC Alliance Constituent Survey: Key Findings
The results from the 2010 Constituency Survey will be used to help the TSC Alliance define priorities going forward and guide us as we develop goals and objectives to reach
Event
Tri-State Area Community Gathering
Join TSC parent Emily Docktor, LCSW, for an informal, in-person meet up! This series of gatherings will provide an opportunity to talk about building connections, supporting self and others, parent-child relationships, siblings and balance, and resentment/forgiveness and self-care. These gatherings will
Event
Tri-State Area Community Gathering
Join TSC parent Emily Docktor, LCSW, for an informal, in-person meet up! This series of gatherings will provide an opportunity to talk about building connections, supporting self and others, parent-child relationships, siblings and balance, and resentment/forgiveness and self-care. These gatherings will
Event
Tri-State Area Community Gathering
Join TSC parent Emily Docktor, LCSW, for an informal, in-person meet up! This series of gatherings will provide an opportunity to talk about building connections, supporting self and others, parent-child relationships, siblings and balance, and resentment/forgiveness and self-care. These gatherings will
Event
2024 Transition Workshop Series – Salt Lake City, Utah
One-day Transition Workshops will feature local clinicians and resources specializing in the transition from pediatric to adult health care and transitions from postsecondary education that include: further education, employment, and
Event
2024 Transition Workshop Series – Memphis, TN
One-day Transition Workshops will feature local clinicians and resources specializing in the transition from pediatric to adult health care and transitions from postsecondary education that include: further education, employment, and
Event
2024 Regional TSC Conference Series – Palo Alto, CA
One-day Regional Conferences feature leading local researchers and clinicians specializing in TSC. Topics will include sessions across the lifespan of TSC, including: Research updates, including upcoming clinical studies and trials
News Item
Announcing the Steven Sparagana Legacy Fund
The Steven Sparagana Legacy Fund was created in honor of Steven Sparagana, MD’s retirement in July 2024. The fund will provide an ongoing source of revenue in support of the
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Five things healthcare providers should know
Are you providing care to a patient with a suspected tuberous sclerosis complex (TSC) diagnosis? Here are five things you need to know: Early diagnosis and management are critical to