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TSC Alert

Grant Opportunity for TAND Research

In collaboration with the Fund Doctor & Mrs Charles Tournay-Dubuisson, the King Baudouin Foundation invites researchers worldwide to submit proposals related to TSC-Associated Neuropsychiatric Disorders (TAND). Up to €600,000 of

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Media

Media members and anyone seeking additional information about tuberous sclerosis complex or the TSC Alliance may direct inquiries to: Jaye Isham Chief Outreach Officer TSC Alliance 8737 Colesville Road, Suite

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Healthcare Providers

Tuberous sclerosis complex (TSC) is a complicated disorder that requires lifelong care from a variety of specialists. The TSC Alliance provides the resources below to connect healthcare providers with TSC

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LGBTQIA+ Community and TSC

The TSC Alliance supports people with tuberous sclerosis complex (TSC) who are LGBTQIA+; therefore, the unique and unfortunate challenges experienced in this community are just as important to address as

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Epilepsy in adults with TSC

People with tuberous sclerosis complex (TSC) face many medical issues as they age, including new-onset seizures or ongoing epilepsy. Studies indicate more than 80% of individuals with TSC will develop

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Diagnostic criteria

In 2021, the International Tuberous Sclerosis Complex Consensus Group reviewed prevalence and specificity of TSC-associated clinical manifestations and updated the TSC diagnostic criteria published in 2013. Clinical features of TSC

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Navigating TSC

From diagnosis through the lifespan learn how to proactively navigate medical and non-medical challenges for both those with TSC and their caregivers, while gaining insights from the lived experience of

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Additional Resources

Brain & Epilepsy Organizations Canadian Epilepsy Alliance: www.epilepsymatters.com International Bureau for Epilepsy: www.ibe-epilepsy.org Epilepsy Foundation: www.epilepsyfoundation.org BC Epilepsy Society: www.bcepilepsy.com Montreal Neurological Institute and Hospital: www.mni.mcgill.ca Childrens Neurology: www.childneurologysociety.org Epilepsy

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Organ & Tissue Donation

Biosample Repository and Natural History Database The TSC Natural History Database collects clinical data used to document the impact of TSC on a person’s health, over his or her lifetime.