Steve joined the TSC Alliance staff in 2011 as Chief Scientific Officer. In this role, Steve leads the development and execution of the TSC Alliance’s research strategy through partnerships and conversations with all stakeholders, including individuals and families affected by TSC, basic and clinical researchers in academia and industry, healthcare providers, government agencies involved in medical research, and other non-profit organizations. Steve led the implementation of the 2012 TSC Clinical Consensus Conference and an update to the consensus guidelines in 2021. Together with the CEO, CFO, and Board, he developed a seven-year Research Business Plan beginning in 2019 to grow the TSC Alliance’s research programs, including a Preclinical Consortium to accelerate testing of potential new treatments, a Biosample Repository to collect and share biosamples from individuals enrolled in the TSC Natural History Database, a Clinical Research Consortium, a TSC Learning Healthcare System, Innovation Workshops, conferences, and grants. Steve was awarded his PhD in Pharmacology from Vanderbilt University in 1992, after which he was introduced to rare disease research as a postdoctoral fellow at the University of Iowa studying the biology and genetics of muscular dystrophies. He then began a 16-year research career in the pharmaceutical industry. Immediately prior to joining the TSC Alliance, Steve was an Associate Research Fellow and project leader responsible for driving global project teams toward new human proof-of-concept studies to repurpose Pfizer compounds for new indications. Steve has three grown children and loves exploring all the history, food, and music the Washington, DC area has to offer with his wife Mary.
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