News Archive

Announcing the 2025 TSC Canada ST Educational Series

Tuberous Sclerosis Canada Sclérose Tubéreuse (TSC Canada ST) will continue hosting an educational series in 2025 to empower patients and their families with knowledge and resources related to tuberous sclerosis

Nominate a volunteer leader in your community for a TSC Alliance Volunteer Award!

The TSC Alliance thrives on the service of selfless individuals across the count...

Announcing the 2025 Transition Webinar Series

The 2025 Transition Webinar Series will consist of six one-hour long webinars th...

Announcing the 2025 TSC Regional Conference Series

The TSC Alliance will host three TSC Regional Conferences in 2025. The series wi...

In Memoriam: Gina Lee, PhD, University of California Irvine

The TSC Alliance and the tuberous sclerosis complex (TSC) community are mourning...

Announcing the Steven Sparagana Legacy Fund

The Steven Sparagana Legacy Fund was created in honor of Steven Sparagana, MD’...

New TSC Academy course available!

A new TSC Academy course, “TSC Clinical Consensus Guidelines,” provi...

Announcing the 2024 Regional TSC Conference and Transition Workshop Series

The TSC Alliance will be hosting two Regional TSC Conferences and two Transition...

Register today for the 2024 Step Forward to Cure TSC!

Register today for the 2024 Step Forward to Cure TSC® at www.stepforwardtocu...

Meet the Future Leaders Class of 2024

The TSC Alliance is thrilled to introduce our Future Leaders class of 2024! Our ...

Caregiver Sleep Study

The University of Birmingham are conducting a study ‘Understanding Caregiver E...

New publication on International consensus recommendations for TAND

International consensus recommendations for the identification and treatment of ...

Sabril Supply Issue Recommendations

The TSC Alliance® is aware of the current supply issue with Sabril Oral Solutio...

0 to 6 months old with TSC needed for research study

Why are we doing this study? Epilepsy is very common in infants diagnosed with t...