Media members and anyone seeking additional information about tuberous sclerosis complex or the TSC Alliance may direct inquiries to:
Jaye Isham
Chief Outreach Officer
TSC Alliance
8737 Colesville Road, Suite 400
Silver Spring, MD 20910
Toll-free: (800) 225-6872
Main: (301) 562-9890
Direct: (240) 638-4649
E-mail: jisham@tscalliance.org
News Release Archive
- November 25, 2024: Tenth Annual Infantile Spasms Awareness Week Scheduled for December 1-7
- October 26, 2024: TSC Alliance® Announces Public Launch of Its 50 Forward Fund
- October 18, 2024: TSC Alliance® to Celebrate Its Golden Anniversary at Gala in New York City
- May 16, 2024: TSC Alliance® Establishes Steven Sparagana Legacy Fund
- May 1, 2024: 12th Annual TSC Global Awareness Day Scheduled for May 15
- March 15, 2024: TSC Alliance® to Host 23rd Annual Comedy for a Cure® on April 14 in Los Angeles
- January 26, 2024: TSC Alliance® Observes 50th Anniversary with New Vision/Mission Statements and Website Redesign
- November 27, 2023: Ninth Annual Infantile Spasms Awareness Week Scheduled for December 1-7
- July 13, 2023: TSC Alliance Lauds Alabama State Legislature for Providing Funding to Support the University of Alabama at Birmingham TSC Center of Excellence
- May 8, 2023: 11th Annual TSC Global Awareness Day Scheduled for May 15
- April 7, 2023: 21st Annual Step Forward to Cure TSC® Global Hybrid Walk-Run-Ride Scheduled for April 15 to May 21
- March 2, 2023: TSC Alliance® to Present 22nd Annual Comedy for a Cure® on April 2
- July 28, 2022: TSC Alliance® and Ramesh and Kalpana Bhatia Family Foundation Announce New TSC Research Collaboration
- May 2, 2022: Tenth Annual TSC Global Awareness Day Scheduled for May 15
- April 4, 2022: TSC Alliance® Welcomes FDA Approval of Topical Treatment for Facial Angiofibromas
- March 1, 2022: Caroline Rhea Headlines 20th Anniversary Comedy for a Cure® on April 3, 2022
- February 8, 2022: Second Annual Seizure Action Plan Awareness Week Scheduled for February 14-21
- December 20, 2021: TSC Alliance® Announces Staff Updates
- December 1, 2021: Seventh Annual Infantile Spasms Awareness Week Scheduled for December 1-7
- October 14, 2021: TSC Alliance® Debuts New TSC Navigator Online Tool
- September 22, 2021: Drew Lynch to Headline 19.5 Annual Comedy for a Cure® on October 17, 2021
- August 3, 2021: TSC Alliance Applauds Release of Updated International Guidelines for Tuberous Sclerosis Complex Diagnostic and Management Recommendations
- May 17, 2021: Tuberous Sclerosis Alliance Evolves to TSC Alliance and Unveils New Brand – New Identity Honors Organization’s History, Growth and TSC Community
- May 3, 2021: Ninth Annual TSC Global Awareness Day Scheduled for May 15
- March 3, 2021: TSC Alliance Advocates for Prioritization of Rare Disease Patients and Caregivers for COVID-19 Vaccines
- February 24, 2021: TSC Alliance and Nobelpharma to Celebrate Rare Disease Day with New Partnership
- February 1, 2021: Seizure Action Plan Awareness Week Scheduled for February 8-14
- November 17, 2020: TSC Alliance Announces Director, Medical Affairs
- November 1, 2020: New Coalition Launches to Promote Importance of Seizure Emergency Plans
- October 8, 2020: Jay Mohr to Headline 19th Annual Comedy for a Cure® Fall Virtual Edition on October 18
- July 31, 2020: TSC Alliance Lauds FDA Approval of Epidiolex® to Treat Seizures in People with Tuberous Sclerosis Complex
- June 19, 2020: TSC Alliance and Seizure Tracker™ Partner to Promote Data Sharing and Biosample Collection
- May 1, 2020: Tuberous Sclerosis Complex (TSC) Global Awareness Day Scheduled for May 15
- January 27, 2020: TSC Alliance Lauds Lundbeck and FDA for Sabril Label Expansion for Patients 2 to 10 Years Old
- December 12, 2019: Bcureful and TSC Alliance Announce Plans to Combine Efforts
- September 17, 2019: TSC Alliance to Mark 45th Anniversary at Gala in New York City
- March 22, 2019: 18th Annual Comedy for a Cure® Scheduled for April 7, 2019
- November 29, 2018: TSC Alliance Preclinical Consortium Announces New Staff and Company Members
- May 15, 2018: TSC Alliance Announces New Global Partnerships in India and Thailand
- April 30, 2018: Tuberous Sclerosis Complex Global Awareness Day Scheduled for May 15
- April 10, 2018: TSC Alliance salutes FDA approval of Afinitor® DISPERZ (everolimus) as the first adjunctive treatment approved in US for patients aged 2 years and older with tuberous sclerosis complex (TSC)-associated partial-onset seizures
- April 3, 2018: 17th Annual Comedy for a Cure Scheduled for April 8, 2018 See celebrity red carpet photos from last night’s 17th Annual Comedy for a Cure at https://bit.ly/2qjUAmN, https://gtty.im/2qg9ZoG and https://shutr.bz/2uZNn0v.
- January 4, 2018: TSC Alliance Announces New Global Partnership in Hungary
- November 14, 2017: 2017 Infantile Spasms Hope Award and Heroes Award Recipients Announced
- October 27, 2017: TSC Alliance Submits “Voice of the Patient” Report To FDA
- May 15, 2017: TSC Alliance Announces New Global Partnership in Mexico
- May 1, 2017: TSC Global Awareness Day Scheduled for May 15
- March 10, 2017: 16th Annual Comedy for a Cure® Scheduled for April 2, 2017. View Red Carpet Arrivals via Getty Images.
- February 24, 2017: “Sound Bites” Event to Raise Funds for TSC Alliance
- November 30, 2016: Infantile Spasms Awareness Week Scheduled For December 1-7
- November 14, 2016: 2016 Infantile Spasms Hope Award and Heroes Award Recipients Announced
- September 6, 2016: TSC Alliance Salutes Missouri State Legislature for Providing Funding to Expand Tuberous Sclerosis Center
- August 11, 2016: Engles Pledge $1.5 Million to Create New Tuberous Sclerosis Complex Research Fund
- May 12, 2016: Tuberous Sclerosis Canada Sclérose Tubéreuse and TSC Alliance Announce Formal Partnership
- May 11, 2016: LIDS Foundation Named as First National Title Sponsor of Step Forward to Cure TSC®