Home » TSC Alert » Important Update about TSC Alert in 2020
Starting in January, the TSC Alert e-newsletter will be sent out on the second Friday of the month. Furthermore, the TSC Alliance is transitioning to a new email platform in 2020. If you do not receive the January TSC Alert or have any issues with the newsletter, please let us know: tscalert@tscalliance.org.
Be sure to add TSC Alert to your safe sender list so you don’t miss future emails.
To change your email preferences, click here.
-
Topics
- Conferences
- Research Resources
- News
- Clinical Studies
- Grants
- Articles
- Clinical Resources
- Fellowships
- Episodes
- advocacy
- epilepsy
- medications
- TSC
- TSC Alliance
- tuberous sclerosis complex
- brain surgery
- drug resistant epilepsy
- epilepsy medication
- epilepsy surgery
- ketogenic diet
- neuromodulation
- refractory epilepsy
- seizures
- tuberous sclerosis
- vagus nerve stimulation
- VNS
- autism
- autism spectrum disorder
- basic research
- clinical research
- clinical trials
- epilepsy research
- medical research
- neuropsychiatric disorder
- research conference
- TAND
- translational research
- TSC research
- tsc-associated neuropsychiatric disorders
- adults with tsc
- facial angiofibroma
- rare disease
- Newborn Screening
- rescue medications
- seizure action plans
- seizure clusters
- seizure medication
- status epilepticus
- community
- educational advocacy
- guardianship
- IEPs
- Join Our Place
- legal planning
- MassMutual
- medicaid
- Our Place
- social security
- special needs
- special needs trusts
- SpecialCare
- patient advocacy
- volunteer
- philanthropy
- #WWLAM
- LAM
- lung health
- lymphangioleiomyomatosis
- The LAM Foundation
- behaviors
- coronavirus
- COVID-19
- Comedy for a Cure
- infantile spasms
- preclinical research
- world conference
- world tsc conference
- Infantile Spasms Action Network
- infantile spasms awareness
- Infantile Spasms Awareness Week
- stop is
- coverage issues
- insurance issues
- patient journey
- TSC Navigator
- Althea Grace
- American Idol
- Jim O'Heir
- Wendy Liebman
- anxiety
- depression
- IDEA Act
- IEP
- Individual Education Plans
- Individuals with Disabilities Education Act
- stress
- trauma
- assay development
- funding opportunity
- #TSCglobalday
- aggression
- TSC Awareness Month
- universal health coverage
- TS Alliance
- Tuberous Sclerosis Alliance
- medication access
- specialty pharmacies
- #march4TSCresearch
- government advocacy
- March on Capitol Hill
- IS
- natural history database
- natural history study
- vaccines
- gene therapy
- TSCRP
- Americans with Disabilities Act
- sleeplessness
- #TSCstrong
- #Unite4TSC
- awareness
- fundraising
- TS Alliance of Israel
- TSC Awareness
- TSC Global Awareness Day
- TSC NZ
- Tuberous Sclerosis Alliance of Israel
- UK TSA
- UK Tuberous Sclerosis Association
- AMLs
- telehealth
- telemedicine
- federally-funded research
- rare disease research
- Afinitor
- biosample repository
- March on the Hill
- research
- Step Forward to Cure TSC
- strategic plan
- upcoming events
- healthcare
- Lennox-Gastaut Syndrome
- transition
- angiomyolipoma
- kidney disease
- renal angiomyolipoma
- renal cell carcinoma
- renal cysts
- renal failure
- ADA
- special education
- 50 Forward
- dependent adults
- housing
-
Posts by Date
- December 2024
- October 2024
- March 2024
- September 2023
- July 2023
- April 2023
- March 2023
- January 2023
- October 2022
- September 2022
- May 2022
- April 2022
- March 2022
- June 2021
- May 2021
- April 2021
- March 2021
- February 2021
- January 2021
- December 2020
- November 2020
- October 2020
- September 2020
- August 2020
- July 2020
- May 2020
- April 2020
- March 2020
- February 2020
- January 2020
- December 2019
- November 2019
- October 2019
- September 2019
- August 2019
- July 2019
- June 2019
- May 2019
- April 2019
- March 2019
- February 2019
- January 2019
- December 2018
- November 2018
- October 2018
- September 2018
- June 2018
- May 2018
- April 2018
- March 2018
- February 2018
- January 2018
- December 2017
- November 2017
- October 2017
- September 2017
- August 2017
- July 2017
- June 2017
- May 2017
- April 2017
- March 2017
Subscribe to Receive TSC Alert via Email: