Find a TSC Clinic

The TSC Alliance supports the vital role a tuberous sclerosis complex (TSC) clinic can play in improving the lives of TSC patients. Use the resources below to find a TSC clinic near you.

The TSC Alliance has offered TSC Clinic designations to the institutions listed below in order to help serve as a resource for the TSC community to identify where comprehensive clinical care for people with TSC is available. The TSC Alliance does not accredit any TSC Clinic or TSC Center of Excellence, and the TSC Alliance does not directly provide or guide any clinical care or medical decision-making. None of the information provided by TSC Alliance, including the identification of TSC Clinics or TSC Centers of Excellence, is intended as medical advice and should not be relied upon as a substitute for professional consultation with a qualified healthcare provider familiar with a patient’s medical needs. The identification of a TSC Clinic or Center of Excellence does not constitute a recommendation or endorsement of any provider of medical care. It is important to check with your insurance carrier about in-service providers before starting care.

Please email clinicconcerns@tscalliance.org or call (240) 463-7250 to report any problems you encounter with the contact information posted below.

Current standards for TSC Clinics and TSC Centers of Excellence

Questions? Contact Sam Metzger at smetzger@tscalliance.org.

TSC Clinic experience of care survey

The TSC Alliance would like to know about your experience at the TSC Clinic you/your child go to for care. The survey is anonymous; your answers will not be linked to any information that can identify you. We invite you to complete this survey any time after you’ve been to a recognized clinic or center of excellence. If you have any questions, contact Sam Metzger, Scientific Project Manager at smetzger@tscalliance.org.

To view full information about each TSC Clinic, please scroll down or click on the map below:

All information listed in the map is also repeated below. Click one of the following letters to be directed to the corresponding state name.

A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z | International

ALABAMA

Birmingham – University of Alabama Birmingham Tuberous Sclerosis Clinic

Director: E. Martina Bebin, MD, MPA
Coordinator: Jessica Krefting, BSN, RN
Age Range Seen: Children and Adults
Clinic Frequency: Weekly
Out-of-State Medicaid Policy: Some states are accepted; please contact the clinic for current policy.
For more information about the UAB TS Clinic and to schedule an appointment, contact Jessica Krefting, BSN, RN at (205) 934-4983.

ARIZONA

Phoenix – APNNA, Arizona Pediatric Neurology & Neurogenetics Associates

Located at 3330 N. 2nd Street, Suite 402, Phoenix, AZ 85012
Director: Vinodh Narayanan, MD
Administrative Coordinator: Chitra J. Narayanan
Range Seen: Children and adults
TSC Clinic Frequency: As needed
For more information or to schedule an appointment, please call 602) 687-8555 or email info@azpediatricneurology.com.

ARKANSAS

Little Rock – TSC Clinic at Arkansas Children’s

Director: Debopam Samanta, MD
Coordinator: Anna Bevis, RN
Age Range Seen: New patients up to age 21 years
Clinic Frequency: Monthly
For Clinic Information call (501) 364-4941. To schedule an appointment call (501) 361-2501.

CALIFORNIA

Loma Linda – The Tuberous Sclerosis Clinic at Loma Linda University Health Care

Located at 250 E. Caroline St., Suite J West, San Bernardino, CA 92408
Director: Stephen Ashwal, MD
Coordinator: Maha Issa-Koteira
Age Range Seen: Children and Adults
Clinic Frequency: Every first Thursday of the month
For more information or to schedule an appointment call (909) 835-1810. This is the phone number for the pediatric neurology specialty clinic, which includes TSC. Inform the scheduler that you are calling to make an appointment to see Dr. Ashwal.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Los Angeles – TSC Center of Excellence at Children’s Hospital Los Angeles

Director: Vijay Vishwanath MD PhD
Co-Director: Tena Rosser, MD
Coordinator: Katie Wanninger, RN, BSN
Age Range Seen: New patients under age 18 years
Clinic Frequency: Monthly (one day per month)
For Clinic Information and to schedule an appointment call (323)-361-2471.

Los Angeles – TSC Center of Excellence at UCLA

Director: Rajsekar (Raj) Rajaraman, MD
Administrative Coordinator: Anais Ruiz ajruiz@mednet.ucla.edu
Age Range Seen: Children and Adults
Clinic Frequency: Weekly on Thursdays
Out-of-State Medicaid Policy: Requires one-time agreement with UCLA
To schedule an appointment or for information on how to get a new patient referred to the TSC clinic please call (310) 825-0867 or email uclatsc@mednet.ucla.edu.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Oakland – UCSF Benioff Children’s Hospital Oakland Tuberous Sclerosis Clinic

Director: Ali Mostajelean, MD
Administrative Coordinator: Mariana Villagran
Age Range Seen: Children
Clinic Frequency: Daily
To schedule an appointment, contact Mariana Villagran at (510) 428-3885 ext. 4543.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Orange – TSC Center of Excellence at Children’s Hospital of Orange County

Director: Donald Phillips, MD, MPH
Co-Director: Clare Skora, MD
Coordinator: Melissa Pajarito, RN
Age Range Seen: Children and young adults up to age 21 years
Clinic Frequency: Monthly
To schedule an appointment or for more information, contact (714) 671-8469.

San Diego – TSC Multidisciplinary Clinic at Rady Children’s Hospital San Diego

Director: Anuja Jindal, MD, MPH
Coordinator: Marsha Harp, RN
Age Range Seen: Children and Adults
Clinic Frequency: Monthly every third Thursday.
To schedule an appointment, call (858) 966-5819.

Stanford – Northern California TSC Clinic at Lucile Packard Children’s Hospital

Stanford Hospital and Clinics
Director: Brenda E. Porter, MD, PhD
Co-Director: Scheherazade Le, MD
Coordinator: Perla Bautista Muench, RN, BSN (Pediatric)
Coordinator: Mimi Callanan, RN, MSN (Adults)
Clinic Ambassadors: Bridget Britt, bridget.walsh216@gmail.com, Viviana Hernandez-Ferrer, vhferrer@yahoo.com
Age Range Seen: Children will be seen by Dr. Porter at Lucile Packard Children’s Hospital. Adults will be seen by Dr. Scheherazade Le at Stanford Hospital & Clinic located at 300 Pasteur Drive, Third Floor, Room A301. Dr. Porter and Dr. Le who are specialists in neurology and epilepsy will refer patients to the appropriate specialists for evaluation and management of other issues related to TSC, as needed.
Clinic Frequency: Weekly.
For Appointments and Clinic Location: If you are a parent of a child 17 years or younger call (650) 723-0993. If you are an adult with TSC or parent of a dependent adult with TSC, call (650) 498-7551 for New Patient Appointments to be seen by Dr. Scheherazade Le.
Esta clínica cuenta con un doctor o un empleado que habla un poco de español (Dr. Le).

COLORADO

Denver – TSC Clinic at Children’s Hospital Colorado & University of Colorado (Adult Program)

Director: Susan Koh, MD at Children’s Hospital
Co-Director: Kevin C. Ess, MD, PhD at Children’s Hospital
Co-Director: Alexandra Atwood, MD at University Hospital
Coordinator (pediatric): Wynne Bird, BSN, RN, CPN at Children’s Hospital
Coordinator (adult): Yarely Galvan Martinez at University Hospital
Clinic Ambassador: Dana Holinka, emme01@msn.com
Age Range Seen: Children and Adults*
Clinic Frequency: Monthly, pediatric multidisciplinary TSC program^ meets first Friday and the adult multidisciplinary TSC program meets first Tuesday AM.
Out-of-State Medicaid Policy: No restrictions.
To schedule an appointment for your child at the Children’s Hospital, please call (720) 777-6895. To schedule an appointment at the Adult TSC Clinic, call (720) 848-9243.
*Adults with TSC and seizures. Adults who need other specialty care outside of epilepsy/neurology will be referred to other subspecialties with TSC expertise such as dermatology, genetics, urology, or pulmonology.
^Due to overwhelming interest in our monthly multidisciplinary TSC program, we are now offering patients the opportunity to schedule with all the necessary subspecialists in individual clinics within a short time frame, possibly same-day. This option minimizes wait times and gives patients all the same care and treatment as the Multidisciplinary Clinic. Please reach out to the Tuberous Sclerosis Complex Program clinic director or coordinator with any questions or concerns at (720) 777-6895.

Due to a transition in leadership at the TSC Clinic at the University of Colorado Anschutz Medical Campus, adults with TSC may experience temporary delays when trying to schedule appointments. The TSC Alliance is aware of the situation and will continue to provide updates to the Colorado TSC community. If you are having difficulty scheduling an appointment, please email support@tscalliance.org for further assistance.

CONNECTICUT

Farmington – TSC Clinic at Connecticut Children’s Medical Center

Director: Francis DiMario, Jr., MD
Coordinator: Samantha Witham, BSN, RN, CPN
Age Range Seen: New patients up to age 25 years old
Clinic Frequency: Weekly, half-day on Tuesday and half-day first Wednesday of each month
To schedule an appointment, call (860) 837-7500.
Esta clínica cuenta con un doctor o un empleado que habla un poco de español.

DELAWARE

Wilmington – TSC Clinic at Nemours/duPont Hospital for Children

Director: Lily Tran, MD
Co-Director: Ana Melikishvili, MD
Co-Director: Judith Adelizzi-Delaney, DNP, APRN
Coordinator: Lisa Vala, RN, BSN, REEGT
Clinic Ambassador: Phyllis Brabender, Phyllisb2000@comcast.net
Age Range Seen: Children
Clinic Frequency: Weekly, every Thursday afternoon
For clinic information contact Lisa Vala at lisa.vala@nemours.org. To schedule an appointment, call the scheduling secretary at (302) 651-5930.

DISTRICT OF COLUMBIA AREA

Washington, DC – Tuberous Sclerosis Clinic at Children’s National

Director: William McClintock, MD
Co-Director: Jennifer Jaskiewicz, DO
Coordinator: Nancy Elling, RN, BSN, CPN
Clinic Ambassador: Kathi Dills kteach599@msn.com
Age Range Seen: Children and Adults
Clinic Frequency: Weekly on Thursday at Children’s National Medical Center in Washington DC and monthly on the second Monday at the Regional Outpatient Center in Fairfax, VA.
For information about the TSC Clinic contact Nancy J. Elling, RN, BSN, CPN at (703) 635-2873. To schedule an appointment, call the Neurology appointment line at (202) 476-3611.

FLORIDA

Gainesville – The UF Health Tuberous Sclerosis Center

Director: Hans Shuhaiber, MD
Co-Director: S. Parrish Winesett, MD
Co-Director: Sotiris G. Mitropanopoulos, MD
Coordinator: Kenya McHome, MSN
Age Range Seen: Children and Adults
Clinic Frequency: Monthly
For information and to schedule an appointment, call (352) 294-5000.

Miami – TSC Clinic at Nicklaus Children’s Hospital Miami

Director: Paula Schleifer, MD
Coordinator: Maria del Pilar Gennaro, MSN, ARNP, CNRN
Age Range Seen: Children and Young Adults up to age 25 years old
Clinic Frequency: Monthly on third Tuesday
Out-of-State Medicaid Policy: Does not accept for outpatient visits. A letter of agreement is required prior to inpatient admissions.
To schedule an appointment, call (786) 624-3552.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Orlando – Advent Health Medical Group Epilepsy at Orlando

Director: Ki Hyeong Lee, MD
Co-Director: Julia Henry, MD
Age Range Seen: Children and Adults
Clinic Frequency: Weekly on Mondays and Tuesdays
For more information or to schedule an appointment, contact appointment scheduling at (407) 303-8127.

Orlando – Orlando Health Arnold Palmer Hospital for Children

Director: Vikram Prakash, MD
Co-Director: Ana Aguilar-Bonilla, MD
Coordinator: Jennifer Graham, RN
Age Range Seen: Children up to age 21 years old
Clinic Frequency: Monthly
For clinic information and to schedule an appointment please contact our team at 321-842-6671 or r-aphtsclinic@orlandohealth.com.

St. Petersburg – Neurocutaneous Disorders Clinic at Johns Hopkins All Children’s Hospital

Director: Stacie Stapleton, MD
Co-Director: Melissa Crenshaw, MD
Coordinator: Sonja Steinbrueck, RN
Age Range Seen: New patients up to age 21 years
Clinic Frequency: Monthly, second and fourth Mondays
For Clinic Information and to schedule an appointment call (727) 767-3675.

Tampa – H. Lee Moffitt Cancer Center

Director: Sepideh Mokhtari, MD
Coordinator: None
Age Range Seen: Adults only
Clinic Frequency: Monthly, every third Tuesday (subject to change)
For Clinic Information call (813) 745-3980 and to schedule an appointment call (813) 745-4251

GEORGIA

Atlanta – Children’s Healthcare of Atlanta

Located at Center for Advanced Pediatrics, 1400 Tullie Road NE, 6th Floor, Atlanta, GA 30329
Director: David S. Wolf, MD, PhD
Co-Director: Prabhu Patil, MD
Coordinator: Nancy Morris, LPN
Age Range Seen: Children and young adults up to age 21 years old
TSC Clinic Frequency: Every first Monday and Thursday afternoon with urgent evaluations scheduled when possible.
For information about the clinic call Nancy Morris at (404) 785-3679. To schedule an appointment call (404) 785-5437.

Augusta – TSC Clinic at the Medical College of Georgia

Children are seen at the Wellstar Health Facility at 1120 15th Street, Augusta, GA 30912. Adults are seen at the Georgia Cancer Center, 1411 Laney Walker Boulevard, Augusta, GA 30912.
Director: John Henson, MD
Co-Director: Suzanne Strickland, MD
Coordinator: Milca Alfaro, BS
Age Range Seen: Children and Adults
TSC Clinic Frequency: Monthly (first Tuesday of each month for children, as needed for adults)
For more information and to schedule an appointment, call (706) 721-6458.

ILLINOIS

Chicago – University of Chicago Medical Center

Director: James H. Tonsgard, MD
Coordinator: Debbie Ruckman, RN, BSN, CPN, Telephone: 773-834-1927
Age Range Seen: Children and Adults
Clinic Frequency: One Friday afternoon per month and as needed weekly at main campus or off site locations
Out-of-state Medicaid: Process to get approval may take several weeks. Contact clinic for details.
For more information about the clinic or to schedule an appointment contact Debbie Ruckman at (773) 834-1927.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Chicago – Multidisciplinary Tuberous Sclerosis Clinic at Ann & Robert H. Lurie Children’s Hospital of Chicago

Director: Priyamvada Tatachar, MD
Co-Director: Joyce Y. Wu, MD
Administrative Coordinator: Clara Samaniego
Coordinator: Kelly B. Nelson, RN
Clinic Ambassador: Jackie Tallman, Jackie.longfield@gmail.com
Age Range Seen: Children and young adults up to age 21 years old
Clinic Frequency: Twice monthly on selected Tuesday afternoons
To schedule an appointment call (312) 227-3540.

Chicago – TSC Clinic at University of Illinois at Chicago

Director: To be named.
Co-Director: Saba Ahmad, MD
Coordinator: Joyce Masterton, ANP
Age Range Seen: Children and Adults*.
Clinic Frequency: Monthly, every first Wednesday morning (subject to change)
For clinic information and to schedule an appointment, call (312) 996-7865. To avoid confusion with scheduling please specify you or your child has TSC. For children with TSC, schedule an appointment with Dr. Yoshii or Dr. Ahmad. *For adults with TSC, schedule an appointment with Dr. Jeffrey Loeb.

IOWA

Iowa City – University of Iowa Hospital & Clinics

Director: Michael Ciliberto, MD
Co-Director: Lyndsay Harshman, MD
Co-Director: Alpa Sidhu, MBBS, PhD
Clinic Coordinator: Liberty Taeger
Age Range Seen: Children and Adults
Clinic Frequency: Weekly
For information and to schedule an appointment, call 1-888-573-5437.

KENTUCKY

Louisville – TSC Clinic at Novak Center/University of Louisville

Director: Samir R. Karia, MD
Co-Director: Siddarth Shah, MD
Coordinator: Erin Beckner, RN, MSN
Age Range Seen: Children and young adults up to age 21 years
Clinic Frequency: Monthly (Every third Thursday)
For clinic information, contact Erin Beckner, RN at (502) 588-3650 ext 50625. To schedule an appointment call Susan Dewitt at (502) 588-3650, extension 50032.

MARYLAND

Baltimore – TSC Clinic at Kennedy Krieger Institute

Director: Jodi Lindsey, MD
Coordinator: Lauren Hargis
Clinic Ambassador: Jocelyn Cenna, portvue@comcast.net
Administrative Coordinator: Dallas Matthews
Age Range Seen: Children and young adults up to age 21 years
Clinic Frequency: Twice monthly on Fridays, and as needed
For information and to schedule an appointment, call (443) 923-2746 or email TSC@kennedykrieger.org.

Baltimore – University of Maryland

Director: Peter B. Crino, MD, PhD
Coordinator: Dana Bridges, MSN, FNP-BC
Clinic Ambassador: Jocelyn Cenna, portvue@comcast.net
Age Range Seen: New patients 12 years and older
Clinic Frequency: Weekly
To schedule an appointment call (410) 328-3574. For clinic information and non-urgent inquiries please call the Clinic Coordinator at (410) 448-2485.

Bethesda – Mid-Atlantic Epilepsy and Sleep Center

Director: Pavel Klein, MD
Co-Director: Amanda Pong, MD, MSc
Coordinator: Sheila Barton, RN
Age Range Seen: Children and Adults
Clinic Frequency: To be determined
For information and to schedule an appointment, call (301) 530-9744.

MASSACHUSETTS

Boston – The Herscot Center for Tuberous Sclerosis Complex at Massachusetts General Hospital

Director: Elizabeth Thiele, MD, PhD
Coordinator: Erin Fonseca
Age Range Seen: Children and Adults
Clinic Frequency: Weekly on Fridays and every other Tuesday, as well as on an as needed basis
To schedule an appointment please call (617) 726-6540.

Boston – Multi-Disciplinary Tuberous Sclerosis Program

Boston Children’s Hospital
Director: Mustafa Sahin, MD, PhD
Coordinator: Jennifer McCrave, RN, BSN, CNRN
Age Range Seen: Children and Young Adults up to age 25 years old
Clinic Frequency: Every other week
Out-of-State Medicaid Policy: Accepts Maine, New Hampshire, Rhode Island and Vermont
To schedule an appointment please call one of our Patient Experience Representatives at (617) 355-2711. For clinic-related questions, please email Zoë Frazier, MS, CGC at zoe.frazier@childrens.harvard.edu.

MICHIGAN

Detroit – TSC Clinic at Children’s Hospital of Michigan

Director: Aimee Luat, MD
Co-Director: Melissa Gregory, MD
Coordinator: Jamie MacDougall, RN, BSN, CPN
Age Range Seen: Children and young adults up to age 21 years old
Clinic Ambassador: Treasa Bolger-Dunlap, Mtbolger@comcast.net
Clinic Frequency: One half-day every second Monday of the month
Out-of-State Medicaid Policy: Accepts any that will reimburse
For information about the clinic contact Jamie at (313) 832-9610 and to schedule an appointment call Camille Hoskey at (313) 832-9620.

Grand Rapids – Corewell Health/Helen DeVos Children’s Hospital Multi-Disciplinary TSC Clinic

Director: Robin Cook, MD, PhD
Coordinator: Raeann Moore, RN
Age Range Seen: Children and adults
Clinic Ambassador: Mary Jo Cardona, mjcardona11@gmail.com
Clinic Frequency: A multidisciplinary clinic is held every second Thursday of each month
To schedule an appointment call the Helen DeVos Children’s Hospital Welcome Center at 616-267-2500. For Urgent Appointments contact Raeann Moore, RN at 616-267-2954.

Royal Oak – Corewell Health East/Beaumont Children’s TSC Clinic

Director: Danielle A. Nolan, MD
Co-Director: Anne Marie Michon, MSN, RN, CPNP-PC
Coordinator: Rachel Eatman
Clinic Ambassador: Tina Rossow, mrstinarossow@gmail.com
Age Range Seen: Children and Adults
Clinic Frequency: First and third Friday every month
For information or to schedule an appointment call (248) 551-3302.

MINNESOTA

Minneapolis – University of Minnesota Medical Center TSC Clinic

Director: Chris Moertel, MD
Clinic Coordinator: Gretchen Skog, RN
Age Range Seen: All ages
Clinic Frequency: Weekly
Address: M Health Fairview Masonic Children’s Hospital East Building, 9th Floor – Katie Hageboeck Children’s Cancer Research Fund Clinic, 2450 Riverside Ave, Minneapolis, MN 55454
Clinic Phone Number: 612-365-8100

Roseville – TSC Clinic Without Walls

Director: Doug Smith, MD
Co-Director: Julie Hanna, MD
Coordinator: Emily Peterson
Age Range Seen: Children and Adults
Clinic Frequency: Pediatric patients are seen at two dedicated half-day clinics per month and adults are seen at one dedicated full day and one half day clinic per month. Flexible to meet patient needs.
For information and to schedule an appointment, call Lorna Justesen at (651) 241-5290.

MISSOURI

Kansas City – Tuberous Sclerosis Clinic at Children’s Mercy Hospital

Director: Mohammed Ilyas, MD
Co-Director: Laurel Willig, MD
Coordinator: Beth Shepard, BSN, RN
Clinic Ambassador: Laurisa Ballew, Laurisa.ballew@gmail.com
Clinical Trial Coordinator I: Rajanna (RJ) Brooks, LPN
Age Range Seen: New patients up to age 18 years
Clinic Frequency: Monthly, every fourth Thursday (subject to change)
For Clinic Information or to schedule an appointment call 816-234-3490.

St. Louis – Cardinal Glennon Children’s Hospital, Saint Louis University School of Medicine

Director: Himanshu Kaulas, MD
Coordinator: Stacey Hesse, RN
Age Range Seen: New patients up to age 20 years
Clinic Frequency: Monthly, every second Thursday
For Clinic Information and to schedule an appointment call (314) 268-2737.

St. Louis – Washington University Tuberous Sclerosis Clinic

Co-Director: Michael Wong, MD, PhD
Co-Director: Fabio Nascimento, MD
Age Range Seen: Children (0-17) and adults (18+)
Pediatric Coordinator: Ashley Fasciola, RN, BSN
Pediatric Clinic Frequency: Weekly every Wednesday morning
For pediatric information and to schedule an appointment call (314) 454-6120 and ask for Ashley.
Adult Coordinator: Patty Schaefer, RN
Adult Clinic Frequency: 2-3 times a month on Mondays
For adult care information and to schedule an appointment call 314-362-7845.
Out-of-State Medicaid Policy: Accepts Illinois only.

NEW JERSEY

Hackensack – TSC Clinic at Northeast Regional Epilepsy Group

Director: Eric Ségal, MD
Coordinator: Shannon Brophy, RN, MSN, ANP-BC
Age Range: Children and Adults
Clinic Frequency: Weekly
For more information and to schedule an appointment call (551) 497-5470.

Livingston – TSC Clinic at Institute of Neurology at St. Barnabas

Co-Director:  Andy Rodriguez, MD (Adult)
Co-Director: Aliza Alter, MD (Pediatric)
Coordinator: Munazza Malik
Age Range Seen: Children and Adults
Clinic Frequency: Monthly
For clinic information and to schedule an appointment, please call (973) 322-7580.

NEW YORK

Bronx – Montefiore Medical Center

Director: Nagma Dalvi, MD
Co-Director: Susan Duberstein, MD
Clinic Coordinator: Maria Guzman
Administrative Coordinator: Erica Sierra
Physician Assistant: Sheri Escalante, PA-C
Age Range Seen: All ages
Clinic Frequency: Second Friday of every month.
To schedule an appointment, call (718) 920-4378.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Hawthorne, Westchester and Hudson Valley – Clinic Without Walls serving NYC, Westchester, Hudson Valley & Connecticut

Director: Steven Wolf, MD
Co-Director: Patricia E. McGoldrick, NP, MSN, MPA
Administrative Coordinator: Carmen Williams
Age Range Seen: Children and Adults
Clinic Frequency: Daily
To schedule an appointment, call (914) 768-3970.

New York City – TSC Center at the Columbia University Irving Medical Center/New York Presbyterian

Director: Cigdem I. Akman, MD
Co-Director: Elena Gonzalez, PNP, MSN
Coordinator: Elena Gonzalez, PNP, MSN
Age Range Seen: Children and Adults
Clinic Frequency: Appointments are scheduled as needed
To schedule an appointment, call the TSC Center at (212) 342-1036.

New York City – The TS Center at New York University Langone Medical Center

The TSC clinic at New York University (NYU) operates out of the NYU Comprehensive Epilepsy Center
Director: Josiane LaJoie, MD
Coordinator: Jack Sloane
Age Range Seen: Children and Adults
Clinic Frequency: Daily as needed
For information about the TSC Clinic or to schedule an appointment call (646) 558-0808.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Rochester – University of Rochester TSC Clinic

Director: Jamie Capal, MD
Co-Director: Derek Bauer, MD
Co-Director: Emily Walsh, MD
Coordinator: Morgan Pignone, RN
Age Range Seen: Children and Adults
Clinic Frequency: Monthly
For more information and to schedule an appointment, call (585) 275-2808.

NORTH CAROLINA

Chapel Hill – UNC Hospitals Child Neurology Clinic at Chapel Hill

Director: JoJo Yang, MD
Co- Director: Chon Lee, MD
Co- Director: Mary Weinstein Dunn, MSN, NP-C, OCN, RN
Coordinator: Jennifer Harrell, RN
Age Range Seen: Children and Adults
Clinic Frequency and location: Children’s clinic- Fourth Friday afternoons (UNC Child Neurology Clinic at Carolina Pointe II in Chapel Hill); Adult clinic- First Thursday morning (UNC Adult Neurology Clinic at Meadowmont Village in Chapel Hill)
For Clinic Information and to schedule an appointment call (984) 974-4401.

Charlotte – Atrium Healthcare TSC Clinic at Levine Children’s Hospital

Director: Katherine Van Poppel, MD
Co-Director: Chad Jacobsen, MD
Coordinator: Kari Privette, RN
Age Range Seen: Children and Adults
Clinic Frequency: Fourth Friday every other month as a multidisciplinary clinic
For Clinic Information and to schedule an appointment call (704) 403-2786.

Durham – Duke Medical Center

Director: Klaus Georg Erich Werner, MD, PhD
Co-Director: Alice Bryn Salter, MD
Coordinator: Susan Markle, BSN, RN
Clinic Ambassador: Celie Johnson, celiewjohnson@gmail.com
Age Range Seen: Children and Adults. Dr. Werner sees all ages, however adults with commercial insurance or Medicare who have mild cognitive (i.e. IQ is 70 or higher) or psychiatric issues and are able to complete neuropsychological testing may schedule an appointment with Andrew Liu, MD, MS. Dr. Liu has clinic weekly, Monday through Wednesday, with 5 new slots designated per month to see adults with TSC.
Clinic Frequency: Weekly
For TSC Clinic information and to schedule an appointment call Loretta Dunn at (919) 668-0477. To schedule an appointment with Dr. Liu call his coordinator, Crystal Ballard at (919) 660-3234.

Winston-Salem – Wake Forest Baptist Medical Center Tuberous Sclerosis Clinic

Director: Mary T. Silvia, MD
Co-Director: Roy E. Strowd, III, MD
Co-Director: Jane Boggs, MD
Administrative Coordinator: Mary Jo Shirley
Age Range Seen: Children and Adults
Clinic Frequency: Pediatrics–2-3 Thursdays a month, subject to change. Adults–Monthly, every third Thursday.
To schedule an appointment, call (336) 716-4101.

OHIO

Akron – TSC Clinic at Akron Children’s Hospital

Acting Director: Michael Kohrman, MD
Coordinator: Linn Thomson, LPN
Age Range Seen: New patients up to age 25 years
Clinic Frequency: Monthly, every second or fourth Wednesday
For Clinic Information and to schedule an appointment call (330) 543-8050.

Cincinnati – The Tuberous Sclerosis Clinic

Founding Director: David N. Franz, MD
Director: Darcy Krueger, MD, PhD
Co-Director: David Ritter, MD, PhD
Coordinator: Aaron Pyle
Age Range Seen: Children and Adults
Clinic Frequency: Weekly every Wednesday all year round
Out-of-state Medicaid: Accepts pending pre-authorization from the Medicaid provider. There are financial assistance programs for those living in Indiana:
Dearborn county; Kentucky: Boone, Campbell and Kenton counties; and Ohio: Butler, Clermont, Hamilton and Warren counties. Ohio residents may qualify for the H-Cap program, which is for low income and based on federal poverty guidelines. For further questions regarding these programs contact Financial Services at (513) 636-0201.
For clinic information or to schedule an appointment call 513-636-4222 or email TSclinic@cchmc.org.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Cleveland – TSC Clinic at The Cleveland Clinic

Director: Ajay Gupta, MD, FAAP
Coordinator: Paula Klima, RN
Clinic Ambassador: Lori Quirino, loriq@yahoo.com
Age Range: Children and Young Adults
Clinic Frequency: Weekly on Wednesday. Scheduling is flexible to meet patients’ needs whenever possible.
For more information or to schedule an appointment, email tsc_care@ccf.org or call (216) 445-0601.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Cleveland – TSC Clinic at Rainbow Babies and Children’s Hospital, University Hospitals of Cleveland Medical Center

Director: Jennifer Waldron, DO
Coordinator: Adina Chirla, BSN, RN
Age Range Seen: Children and Adults
Clinic Frequency: Consistently every fifth Wednesday of the month. Four patients seen simultaneously by a group of six providers (epilepsy, neurology, cardiology, nephrology, psychiatry and psychology).
For clinic information and to schedule an appointment call (216) 286-6644.

Columbus – TSC Clinic at Nationwide Children’s Hospital

Director: Megan Fredwall, MD
Assistant Director: Stephanie Ahrens, DO
Coordinator: Shannon Capka, RN
Clinic Ambassador: Tarcisio Santos Moreira, tarcisiosam@gmail.com
Age Range: Children
Clinic Frequency: Twice monthly on Thursdays
For more information about the clinic call (614) 722-4665 and to schedule an appointment call (614) 722-4625.

Dayton – TSC Clinic at Dayton Children’s Hospital

Director: Rajkumar Agarwal, MD
Co-Director: Marvin Miller, MD
Coordinator: Sarah MacDonald, RN, BSN, CPN
Age Range Seen: Children and young adults up to age 21 years
Clinic Frequency: Second Monday every month – afternoon clinic
For clinic information contact Sue Wolff at (937) 641-3800 and to schedule an appointment contact Sarah MacDonald RN, BSN, CPN at (937) 641-3497.

PENNSYLVANIA

Hershey – Penn State Health/Hershey Medical Center

Director: Sita Paudel, MD
Co-Director: Sunil Naik, MD
Co-Director: Vinita Acharya, MD
Coordinator: Stacey Miller, LPN
Age Range Seen: Children and Adults
Clinic Frequency: Third and fourth Wednesday every month – afternoon clinic
For information and to schedule an appointment, call (717) 531-8790.

Philadelphia – The Hospital of the University of Pennsylvania (HUP)

Director: Mersedeh Rohanizadegan
Coordinator: Stephanie Asher, MS
Age Range Seen: Pediatric and Adults
Clinic Frequency: Weekly
Address: 3400 Civic Center Boulevard, Philadelphia, PA 19104
To schedule an appointment call (215) 662-4740.

Philadelphia – Children’s Hospital of Philadelphia (CHOP)

Director: Katherine Taub, MD
Coordinator: Cindi Skazenski
Age Range Seen: Infant to 17 (pediatric)
Clinic Frequency: Mondays
Address: 3401 Civic Center Blvd, Philadelphia, PA 19104
To schedule an appointment call (215) 590-1719.

Pittsburgh – Children’s Hospital of Pittsburgh TS Clinic

Director: Shelley Williams, MD
Coordinator: To be named
Age Range Seen: Children and young adults up to age 21 years old
Clinic Frequency: Monthly
To schedule an appointment, call (412) 692-5520.

SOUTH CAROLINA

Columbia – TSC Clinic at Prisma Health – Columbia SC

Director: Monica Cramer, DO
Coordinator: Michelle Sanders, LPN
Age Range Seen: Children and Adults
Clinic Frequency: Monthly, first Friday
For more information about the clinic contact Michelle Sanders at (803) 434-8333. To schedule an appointment contact Kalisha Moore at (803) 434-3572.

TENNESSEE

Memphis – Tuberous Sclerosis Center of Excellence at Le Bonheur Children’s Hospital

Director: John J. Bissler, MD
Co-Director: James W. Wheless, MD
Co-Director: Sarah Weatherspoon, MD
TAND Unit Director: Tanjala T. Gipson, MD
Coordinator: Kristy Jones
Clinic Ambassador: Latrice Hamilton, Lnsccou@yahoo.com
Age Range: Children and adults
Clinic Frequency: Daily
Out-of-State Medicaid Policy: Accepts all that get to them
To schedule an appointment call (901) 287-7491. For more information about the clinic call (901) 287-7492.

Nashville – The TSC Clinic at Monroe Carell, Jr. Children’s Hospital at Vanderbilt

Director: Robert Carson, MD, PhD
Coordinator: Jennifer Garafola, MSN, RN, CPN
Age Range: Up to age 21 years
Clinic Frequency: Bi-weekly, first and third Wednesday of the month
Out-of-State Medicaid Policy: Accepts Alabama and Kentucky and evaluates others on a case-by-case basis.
For more information or to schedule an appointment, call (615) 936-5536.

TEXAS

Austin – Dell Children’s Hospital

Director: E. Steve Roach, MD
Co-Director: Kristen Arredondo, MD
Co-Director: Kristina Julich, MD
Coordinator: Mary Smith, RN
Clinic Ambassador: Sheryl Kubala, sheryl.kubala@gmail.com
Age Range Seen: Children and Adults*
*Adults will be seen for an initial diagnosis and ongoing care provided you have a primary care physician.
Clinic Frequency: Monthly, every second Thursday
For information or to schedule an appointment call (512) 628-1855.

Dallas – Scottish Rite for Children

Director: Steven Sparagana, MD
Coordinator: Catherine Thompson
Clinic Ambassador: Tricia Bodner
Age Range Seen: Children only
Clinic Frequency: First Monday PM, second Tuesday AM, third and fifth Tuesdays PM every month.
Out-of-State Medicaid Policy: Does not accept any
For more information or to schedule an appointment call (214) 559-7828 or email TSCclinic@tsrh.org.

Dallas – Children’s Medical Center of Dallas, The University of Texas Southwestern Medical Center

Director: Charuta Joshi, MBBS, FAES, CSCN(EEG)
Co-Director: Alison Dolce, MD
Coordinator: Jeremy Fields, MBA, BSN, RN
Age Range Seen: Children
Clinic Frequency: monthly
For more information or to schedule an appointment call (214) 456-2768.

Ft. Worth – Cook Children’s Clinic for Tuberous Sclerosis Complex

Director: David Shahani, MD (Pediatric)
Co-Director: Hamid Kadiwala, MD (Adult)
Coordinator: Amy Davis, BSN, RN
Age Range: Children and Adults (Neurology only).
Clinic Frequency: First Tuesday of each month
For more information or to schedule an appointment call Amy Davis at (682) 885-2500.

Houston – McGovern Medical School, University of Texas Health Science Center at Houston

Clinic Location: University of Texas Professional Bldg., 6410 Fannin Street, Suite 500, Houston, Texas 77030
Director: Hope Northrup, MD
Co-Director: Mary Kay Koenig, MD
Coordinator: Claire Sartwell, RN, BSN
Age Range: Children and Adults
Clinic Frequency: Weekly on Mondays
For more information about the TSC Clinic contact Claire Sartwell, RN, BSN at (713) 500-7149. To schedule an appointment call (713) 500-6367.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Houston – Comprehensive Tuberous Sclerosis Clinic at Texas Children’s Hospital

Affiliated with Texas Children’s Hospital, Baylor College of Medicine
Director: Rohini Coorg, MD
Co-Director: Surya Prasadarao Rednam, MD, MS
Coordinator: Heather Ausby, BHA, BSN, RN
Clinic Ambassador: Shalonda Alexander, Shalonda.alexander@yahoo.com, (512) 417-7329.
Age Range: Children
Clinic Frequency: Monthly, every third Wednesday
For information or to schedule an appointment call (832) 822-5046.

UTAH

Salt Lake City – University of Utah TS Clinic

Director: Shanna Swartwood, MD
Co-Director: Vanina Taliercio, MD
Coordinator: Melissa Mower, DNP
Clinic Ambassador: Brittani Rich, brittanif81@gmail.com
Age Range Seen: Children and young adults up to age 21 years
Clinic Frequency: Coordinated Clinic is third Friday of each month. The TSC sub-specialists also see TSC patients most days of the week.
To schedule an appointment call the Department of Pediatric Scheduling at (801) 213-3599.

VIRGINIA

Charlottesville – The University of Virginia (UVA) Tuberous Sclerosis Clinic

Director: Erika Axeen, MD
Coordinator: Myra Johnson, RN, BSN
Age Range: Children and Adults
Clinic Frequency: Monthly
To schedule an appointment, call (434) 924-2706 and ask to speak to Caitlin Jenkins. For more information about the clinic call Brooke Henry, RN, BSN, at (434) 924-8672.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Richmond – Virginia Commonwealth University (VCU) Health System

Director: Lawrence Morton, MD (pediatrics)
Co-Director: Victor Gonzalez-Montoya, MD (adults)
Coordinators: Melissa Branham, RN (pediatrics) and Laura Sutherland, RN (adults)
Age Range: Children and Adults
Clinic Frequency: Monthly
For Clinic Information and to schedule an appointment call (804) 828-2467 (Children) and (804) 828-9350 (adults).

WASHINGTON

Seattle – TSC Clinic at Seattle Children’s Hospital

Director: Stephanie Randle, MD, MS
Co-Director: Jason Hauptman, MD, PhD
Coordinator: Claire Kennedy
Clinic Ambassadors: Rebecca Racenet, rebecca.racenet@gmail.com, (907) 357-5160 and Adrienne Wasserman, abadorf@yahoo.com (415) 314-0815
Age Range: New patients up to age 22 years
Clinic Frequency: Monthly, second Tuesday and third Thursday
For Clinic Information and to schedule an appointment call (206) 987-2016.

Seattle – Swedish Neuroscience Institute

Director: Marcio Sotero de Menezes, MD
Coordinator: Louise Morton
Age Range: Children and Adults
Clinic Frequency: Monday – Thursday from 1 – 4 pm (schedule subject to change)
For more information and to schedule an appointment, call (206) 215-1440; Fax (206) 215-1441. Adults with TSC please call (206) 320-3492 to schedule an appointment with Dr. Michael Doherty.

WISCONSIN

Milwaukee – The Neurofibromatosis and RASopathy Program at Children’s Hospital of Wisconsin

Director: Donald Basel, MD
Coordinator: Katie Knaebe, RN, BSN
Age Range: Children up to age 18 years
Clinic Frequency: Weekly
For Clinic Information call (414) 266-2935 and to schedule an appointment call (414) 266-3347.

CANADA

Hamilton, Ontario – McMaster Children’s Hospital

Directors: Dr. Robyn Whitney and Dr. Elisabetta Trinari
Coordinator/ Nurse Practitioner: Cynthia Sloan Birbeck, NP
Age Range Seen: 0-18
Clinic Frequency: Monthly
Transition Program Available: Yes
For clinic information please refer to Dr. Whitney at 905-521-7914, attention TSC Clinic, McMaster Children’s Hospital.

London, Ontario – London Health Sciences Centre TSC Network

339 Windermere Road, London, Ontario N6A 5A5
Director: Andrew House, MD
Coordinator: Andrew House, MD
Age Range Seen: Adults
Clinic Frequency: The local practice is to see patients as and when they come. Virtual options (videoconferencing, telephone) are available.
The TSCN is a consultative clinic for adult patients with TSC, made up of specialists from a number of disciplines. Our network includes Dr. Andrew House (nephrology); Drs. Ana Suller Marti, Michelle Lee Jones and Derek Debicki (neurology/epilepsy); Drs. Stephen Pautler and Patrick Luke (urology); Dr. Marco Mura (respirology); Dr. Wei Jing Loo (dermatology); Drs. Natalya Karp and Dervla Connaughton (genetics); Dr. Raymond Lee (dentistry). Referrals to any specialist in the TSCN provides an entry point to multidisciplinary care, while undifferentiated cases can be referred to Dr. House. We are happy to accept referrals for any adult with TSC, and also to ease transition from pediatric to adult follow up for children in their late teens. For Clinic Information and to schedule an appointment call (519) 663-3167.

Montreal, Quebec – CHU Sainte-Justine, University of Montreal

Director: Philippe Major, MD
Coordinator: Lucie Côté RN
Age Range Seen: Children only under age 18 years.
Clinic Frequency: Thursdays, every 2-3 weeks.
For Clinic Information and to schedule an appointment call (514) 345-6510.

Montreal, Quebec – TSC Adult Clinic at the Centre Hospitalier de l’Université de Montréal (CHUM)

Director: Mark Keezer, MDCM, PhD
Coordinator: Vanessa Léger, RN
Age Range: Adults
Clinic Frequency: Every second Thursday.
For Clinic Information and to schedule an appointment call (514) 890-8000 extension 26419.

Toronto, Ontario – Comprehensive Tuberous Sclerosis Complex Clinic at The Hospital for Sick Children

Interim Director: Elizabeth Donner, MD
Co-Director: Maria Zak, MN, NP
Coordinator: Eugenia Law, RN
TSC Program Patient Navigator: Semira Kaul, RN
Age Range Seen: Children up to age 18 years
Clinic Frequency: One full Friday per month with additional clinics added as needed.
For clinic Information and to schedule an appointment, call (416) 813-7654 extension 201123.

Toronto, Ontario – Adult TSC Clinic at the University Health Network

Director: Raymond Kim, MD, PhD
Co-Director: Monika Madan, MD
Coordinator: Nicole Forster, MSc, CGC
Age Range Seen: Adults 18 years and older.
Clinic Frequency: Weekly on Wednesdays
For clinic information contact Nicole Forster at (416) 586-4800 extension 2734 and to schedule an appointment contact adultgenetics@uhn.ca or Tabinda Nazeer at (416) 586-4800 extension 5454.

INDIA

Hyderabad, Telangana – Butterflies Child Development Centre and Paediatric Specialty Clinics

Director: Pranathi Gutta, MBBS
Co-Director: Nanda Kishor Kumar Vuppali, MBBS, DCH, MRCPCH
Coordinator: Pranathi Gutta, MBBS
Age Range Seen: Children only under age 18 years, with some flexibility to age 21 years.
Clinic Frequency: The local practice is to see patients as and when they come.
For Clinic information and to schedule an appointment call +91 95-50876540

Mumbai, Maharashtra – SRCC Children’s Hospital by NH

Director: Pradnya Gadgil, MBBS, MRCPCH
Coordinator: Ms. Kavita Singh
Age Range Seen: New patients only under 18 years age
Clinic Frequency: Daily as needed
For Clinic Information call +917304443098. To schedule an appointment call +91- 22-71222777 or +91 8291903140

Patparganj, Delhi – MAX Super Specialty Hospital- Patparganj

Director: Saurabh S. Chopra, MD
Coordinator: Ms. Nisha Sindra
Age Range Seen: New patients under age 16 years
Clinic Frequency: Clinic practice is to see patients as they come.
For Clinic information and to schedule an appointment call +91 11-43033333

ISRAEL

Be’er Shiva – The Clinic for Multidisciplinary Treatment of TS at Soroka University Medical Center

Director: Iris Noyman, MD
Age Range Seen: Children and Adults
Clinic Frequency: Every 4 to 8 weeks. Patients see Dr. Noyman on a more frequent basis.
For clinic information contact Dr. Noyman at irisn@clalit.org.il or 972-8-6400140. To schedule an appointment contact Sabrina Dekel at SabrinaDe@clalit.org.il or 972-8-6245469.

Jerusalem – Hadassah TSC Clinic

Director: Tal Giboa, MD
Co-Director: Oded Volovelsky, MD, PhD
Clinic Receptionist: Moran Avraham
Age Range Seen: Children and Adults
Clinic Frequency: Monthly, the last Tuesday of the month
For more information or to schedule an appointment, call 972-2-6779375.

Tel Aviv – TSC Clinic at Tel Aviv Sourasky Medical Center

Director: Jonathan Roth, MD
Co-Director: Hagit Toledano, MD
Age Range Seen: Children and Adults up to 50 years of age
Clinic Frequency: Weekly
Clinic phone number: +97236973500
Clinic Address: 6 Weizmann st, Tel Aviv, Israel

Tel Hashomer – TSC Clinic at Sheba Medical Center

Director: Michal Tzadok, MD
Coordinator: Michal Leithner Sanigou
Age Range Seen: Children and adults
Clinic Frequency: Every first and third Sunday
For more information or to schedule an appointment, call 972-3-5302687 or email Michal.LeitnerSanigou@sheba.health.gov.il.

MEXICO

Merida, Yucatan – TSC Clinic at Neural Clinic Mexico

Director: Joao Garcia, MD
Age Range: Children and Adults up to age 60 years. At age 28 years the follow-up continues with neurologist, Dr. Mauricio Escalante.
Clinic Frequency: Weekly, every Tuesday.
For Clinic Information call Dr. Garcia at 52-999-9490869 and to schedule an appointment, contact Alma Martinez at 52-999-9260207 or receocionneural@gmail.com.

Monterrey, Nuevo León – Hospital Universitario “José Eleuterio González’ Universidad Autónoma de Nuevo León

Director: Ana Beatriz Hinojosa-Amaya, MD
Co-Director: Marisol Ibarra-Ramirez, MD
Coordinator: Melissa Calzada, MD
Age Range Seen: Children and Adults.
Clinic Frequency: Monthly (Schedule subject to change).
For Clinic Information and to schedule an appointment call +52 8183483704.