The TSC Alliance is supported by a corps of dedicated volunteer leaders across the country. Whether you are dealing with a new diagnosis or are looking for local resources, they are here to help you!
Our volunteers are parents, relatives, adults with TSC, friends and others all dedicated to providing support to anyone affected by tuberous sclerosis complex (TSC).
In 2023, the TSC Alliance launched a new community support model to create additional opportunities for volunteers to offer tailored support in their community region and to broaden the types of resources available to individuals and families.
Learn about the Community Support Roles
Hover over the roles in the graphic below to learn more:
Locate Regional Support Coordinators
Select a region on the map to view the support coordinators, which will be displayed below. To protect the privacy of our volunteers we do not publicly share their contact information. If you would like to be connected with leaders in your region, please email communityleadership@tscalliance.org.
You are not alone on your journey with TSC.
To get connected with community volunteers in your region, please email our Support Navigators at support@tscalliance.org.
If you are interested in volunteering with the TSC Alliance, please visit our Volunteer page to learn more and complete the Volunteer Interest Application.
