We changed our name to the TSC Alliance to better support our goals of raising awareness of this disease. The community as well as healthcare professionals refer to this disease as “TSC” and it’s important that our name mirror that. In fact, when our staff is asked to present at conferences the organization has frequently been called “TSC Alliance” though it was not our name at the time. This shift also allows us to avoid confusion with other diseases, such as tuberculosis or Tourette’s Syndrome.
