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Swallow E, King S, Song J, Peeples M, Signorovitch JE, Liu Z, Prestifilippo J, Frost M, Kohrman M, Korf B, Krueger D, Sparagana S. Patterns of disease monitoring and treatment among patients with tuberous sclerosis complex-related angiomyolipomas. Urology. 2017;0(0). doi: 1016/j.urology.2017.02.036.

  • This paper reports that the use of MRIs increased between 2000 and 2012 among patients with TSC-AML. The majority of TSC-AML patients did not receive treatment for angiomyolipoma. Use of nephrectomy decreased over the study period and was particularly rare in patients who initiated an mTOR inhibitor.