If you would prefer a hard copy of any of these materials, please contact Rachel Wojnilower at (301) 562-9890 or rwojnilower@tscalliance.org.
TSC Alliance Board Orientation, recorded January 17, 2024
Committee Chair and Liaison training, recorded February 6, 2024
Section I: Governance — TSC Alliance
- FY 2024 Operating Board of Directors Contact List
- FY 2024 Organizational Goals
- FY 2024 Board Committee Assignments
- FY 2024 Board Meeting Schedule
- Board Responsibilities and Support, Code of Ethics and Guiding Principles
- Articles of Incorporation
- Approved and Amended By-Laws, March 3, 2022
- IRS Fiscal Year Change Letter
- IRS Tax Exempt Status Determination Letter
- IRS Address Change Notice
- Frequently Asked Questions About the TSC Alliance
Name Change Document
Strategic Planning
Policies
Proposed Review Schedule – DRAFT
- Access Control Policy
- Audit and Accountability Policy
- Audit Committee Charter
- Campaign Counting Policy
- Configuration Management Policy
- Conflict of Interest Policy and Form
- Corporate Relations Policy
- Direct Benefit to Donor Policy
- Executive Compensation and Reimbursement Policies and Practices
- Effective Assessment Policy
- FDA Policy on Organizational Participation in Hearings and Meetings
- Financial Conflict of Interest Policy for PHS-Funded Research
- Gift Acceptance Policy
- Incident Response Plan
- Investment Policy for Operating Funds
- Media Protection Policy
- Open Science Policy
- Password Policy
- Physical Security Policy
- Privacy Policy
- Reserve/Crisis Management Policy
- Reviewer COI Statement
- Revised Document Retention and Destruction Policy
- Risk Assessment Policy
- Systems Documentation
- Whistle Blower Policy and Form
TSC Clinic Guidelines
- Scope of Relationship Policy
- Standards of Care Metrics for TSC Clinics
- TSC Clinic Structure and Expertise Requirements
- TSC Patient and Family Experience of Care Survey
Section II: Governance — TSC Alliance Endowment Fund
- FY 2024 Endowment Fund Board of Directors Contact List
- FY 2024 Endowment Fund Budget
- Endowment Fund Overview
- Acknowledgement of Name Change
- Articles of Incorporation for the Endowment Fund
- Amendment to Articles of Incorporation (March 9, 2021)
- Approved and Amended Endowment Bylaws (Amended May 9, 2019)
- Endowment Fund Determination Letter
- IRS Fiscal Year Change Letter
Policies
- California Gift Annuities Investment Policy
- Endowment Fund Investment Policy
- General Purpose Endowment Statement (Named Fund Policy)
Section III: Finance and Administration
- FY 2024 TSC Alliance Operating Budget
- FY 2024 TSC Alliance Operating Budget Narrative
- Accounting Policies and Procedures Manual
- Summary of Banking Relationships
- Management Liability Policy: 2024
- TSC Alliance Commercial Insurance Summary: 2024
- Cybersecurity Assessment, December 18, 2020
Section IV: Programs and Services
- FY 2024 Organization Chart
- Staff Directory
- Constituent Services
- 2024 TSC Alliance Community Leadership
- Global Relations
- Government Relations
- Science and Medical Programs
- Research Grants Program and Currently Funded Grants
- International Scientific Advisory Board
- Professional Advisory Board
- Directory of TSC Clinics
Section V: Resource Development
- Fund Development
- Investment to Accelerate Research Case Statement, About Us and Case Study
- Graham-Pelton Campaign Study Final Report
- Graham-Pelton Campaign Planning Study Findings Memo
- Graham-Pelton Campaign Plan
- Research Business Plan
Appendix
- Employee Handbook
- Online Brand Guide
- 2022 Annual Report
- 2021 Annual Report
- 2020 Annual Report
- 2019 Annual Report
- 2018 Annual Report
- 2017 Annual Report
- 2016 Annual Report
- 2015 Annual Report
- 2014 Annual Report
- 2013 Annual Report
- 2012 Annual Report
- 2011 Annual Report
- 2010.5 Annual Report
- 2010 Annual Report
- 2009 Annual Report