Fiscal Years 2010.5 & 2011 (July 1, 2010 – December 31, 2011)
Operating Board
Operating Board of Directors Meeting Minutes, June 16, 2010 (Approved Sept. 25, 2010)
Operating Board of Directors Meeting Minutes, Sept. 25, 2010 (Approved Dec. 8, 2010)
Operating Board of Directors Meeting Minutes, Dec. 8, 2010 (Approved Feb. 24, 2011)
Operating Board of Directors Meeting Minutes, Feb. 24, 2011 (Approved Sept. 24, 2011)
Operating Board of Directors Meeting Minutes, June 15, 2011 (Approved Sept. 24, 2011)
Operating Board of Directors Meeting Minutes, Sept. 24, 2011
Operating Board of Directors Meeting Minutes, Dec. 7, 2011 CEO Presentation, Sept. 24, 2011(Powerpoint)
Fall 2011 Board Meeting Agendas and Materials (PDF)CEO Presentation, Feb. 25, 2011 Board Meeting (Powerpoint)
Feb. 22-24, 2011 Downloadable Board Manual (PDF)FY 2011 Online Board Orientation Manual TS Alliance Board of Directors Member Contact List
TSC Alliance Endowment Fund Board of Directors Member Contact List Approved FY 11 Budget Approved FY 10.5 Budget FY 2011 Board Committee Assignments
FY 2011 Board Committee Goals Updated Strategic Plan, June 16, 2011
June 15, 2011 Electronic Full Board Votes
During the Board meeting tonight (6/15/11), Celia Mastbaum moved and Rita DiDomenico seconded holding an e-mail vote to approve the attached updated strategic plan. (20 e-votes in favor, motion passed 6/16/11)
During the Board meeting tonight (6/15/11), Cathy Krinsky moved and David Schenkein seconded holding an e-mail vote to approve the attached FDA Policy. (19 e-votes in favor, 1 abstention, motion passed 6/16/11)
During the Board meeting tonight (6/15/11), Julie Blum moved and Rita DiDomenico seconded holding an e-mail vote to vote to adopt the attached Corporate Authorization Resolution for Xenith Bank. (20 e-votes in favor, motion passed 6/16/11)
During the Board meeting tonight (6/15/11), Cathy Krinsky moved and Julie Blum seconded holding an e-mail vote to adopt the attached Corporate Authorization to procure and Access Safe Deposit Box for Citibank. (20 e-votes in favor, motion passed 6/16/11)
During the Board meeting tonight (6/15/11), Matt Bolger moved and Cathy Krinsky seconded holding an e-mail vote to adopt the attached Slate of Board Candidates for FY12. (20 e-votes in favor, motion passed 6/16/11)
CEO Reports
Advisory
Corporate Advisory Board
Professional Advisory Board
International Scientific Advisory Board
TSC Clinic Committee
TSC Database Steering Committee
Board Committees
Audit
Electronic Vote
Email vote on April 8, 2011 to approve the FY10.5 Audit and the Form 990 for Operating and Endowment Fund (2 e-votes, motion approved)
FY 2010 Consolidated Audit — Final
FY 2010.5 Consolidated Audit — Final
Audit Committee Draft Goals for FY 2012
Audit Committee Meeting Minutes, Feb. 25, 2010
Audit Committee Meeting Minutes, Sept. 16, 2010
Audit Committee Meeting Minutes, Sept. 24 2010
Audit Committee Meeting Minutes, Oct. 15, 2010
Audit Committee Meeting Minutes, Feb. 24, 2011
Joint Audit/Finance Commitee Meeting Minutes, April 6, 2011
Endowment
Electronic Vote
Email vote on April 7, 2011 to approve Endowment Fund Form 990 (4 e-votes in favor, motion approved)
Approved Endowment Fund Budget – FY 2012
Endowment Fund Budget – FY 2011
Endowment Transfer Calculation – FY 2011
Revised Endowment Fund Investment Policy, Approved June 6, 2011
Endowment Fund Board Meeting Minutes, Feb. 25, 2010
Endowment Fund Board Meeting Minutes, May 14, 2010
Endowment Fund Board Meeting Minutes, June 30, 2010
Endowment Fund Board Meeting Minutes, Sept. 24, 2010
Endowment Fund Board Meeting Minutes, Oct. 13, 2010
Endowment Fund Board Meeting Minutes, Jan. 18, 2011
Endowment Fund Board Meeting Minutes, Feb. 24, 2011
Endowment Fund Board Meeting Minutes, May 12, 2011
Endowment Fund Board Meeting Minutes, Sept. 23, 2011
Financials by Month
Endowment Statement of Activities, Oct. 31, 2011
Endowment Statement of Financial Position, Oct. 31, 2011
Endowment Statement of Activities, Sept. 30, 2011
Endowment Statement of Financial Position, Sept. 30, 2011
Endowment Statement of Activities, Aug. 31, 2011
Endowment Statement of Financial Position, Aug. 31, 2011
Endowment Statement of Activities, July 31, 2011
Endowment Statement of Financial Position, July 31, 2011
Endowment Statement of Activities, June 30, 2011
Endowment Statement of Financial Position, June 30, 2011
Endowment Statement of Activities, May 31, 2011
Endowment Statement of Financial Position, May 31, 2011
Endowment Statement of Activities, April 30, 2011
Endowment Statement of Financial Position, April 30, 2011
Endowment Statement of Activities, March 31, 2011
Endowment Statement of Financial Position, March 31, 2011
Endowment Statement of Activities, Feb. 28, 2011
Endowment Statement of Financial Position, Feb. 28, 2011
Endowment Statement of Activities, Dec. 31, 2010
Endowment Statement of Financial Position, Dec. 31, 2010
Endowment Statement of Activities, FY 10.5
Endowment Statement of Financial Position, FY 10.5
Endowment Statement of Activities, Nov. 30, 2010
Endowment Statement of Financial Position, Nov. 30, 2010
Endowment Statement of Activities, Oct. 31, 2010
Endowment Statement of Financial Position, Oct. 31, 2010
Endowment Statement of Activities, Sept. 30, 2010
Endowment Statement of Financial Position, Sept. 30, 2010
Endowment Statement of Activities, Aug. 31, 2010
Endowment Statement of Financial Position, Aug. 31, 2010
Endowment Statement of Activities, July 31, 2010
Endowment Statement of Financial Position, July 31, 2010
Endowment Statement of Activities, June 30, 2010
Endowment Statement of Financial Position, June 30, 2010
Reports
Portfolio Review, Aug. 4, 2011
Smith Barney Statement, Apr. 30, 2011
Endowment Investment Balances, Jan. 31, 2011
Portfolio Review, January 14, 2011
Portfolio Summary, January 14, 2011
Asset Allocation, January 14, 2011
Asset Performance Review, January 14, 2011
Portfolio Review, August 31, 2010
Portfolio Summary, August 31 2010
Asset Allocation, August 31, 2010
Asset Performance Review, July 31, 2010
Executive
Electronic Votes
Email vote on April 11, 2011 to approve the FY10.5 Audit and Operating Form 990 (5 e-votes in favor, motion approved)
Email vote on March 3, 2011 to approve TSC Scientific Project Leaders (Dr. Hope Northrup and Dr. Steve Sparagana) and Working Group Leaders (Dr. Elizabeth Thiele – Epilepsy, Dr. Bruce Korf – Genetics) with an award of $17,500 for each site for FY11 (4 e-votes of voting officers, motion passed)
Executive Committee Meeting Minutes, Aug. 4, 2010
Executive Committee Meeting Minutes, Sept. 2, 2010
Executive Committee Meeting Minutes, Sept. 25, 2010
Executive Committee Meeting Minutes, Oct. 27, 2010
Executive Committee Meeting Minutes, Nov. 12, 2010
Executive Committee Meeting Minutes, Dec. 1, 2010
Executive/Finance Joint Committee Meeting Minutes, Feb. 2, 2011
Executive/Finance Joint Committee Meeting Minutes, March 30, 2011
Executive Committee Meeting Minutes, May 6, 2011
Executive Committee Meeting Minutes, July 27, 2011
Executive/Finance Committee Meeting Minutes, Aug. 31, 2011
Executive Committee Meeting Minutes, Sept. 24, 2011
Executive Committee Meeting Minutes, Nov. 5, 2011
Finance
Finance Committee Meeting Agenda, Sept. 23, 2011
Trailing 12 Month Charts
Revenue and Expenses Dec. 2010 – July 2011
Revenue: Special Events, Major Donors, Grants June 2010-July 2011
Electronic Votes
Email vote on April 27, 2011 to approve the Joint Executive/Finance Committee Minutes from March 30, 2011 (4 e-votes in favor, motion approved)
Email vote on April 26, 2011 to approve the Finance Committee Minutes from February 24, 2011 (5 e-votes in favor, motion approved)
Email vote on April 26, 2011 to approve the revision of the Operating Funds Policy (5 e-votes in favor, motion approved)
Email vote on April 8, 2011 to approve the FY10.5 Audit and Operating Form 990 (4 e-votes in favor, motion approved)
Finance Committee Meeting Minutes, July 1, 2010
Finance Committee Meeting Minutes, July 22, 2010
Finance Committee Meeting Minutes, Aug. 31, 2010
Finance Committee Meeting Minutes, Sept. 24, 2010
Finance Committee Meeting Minutes, Oct. 26, 2010
Finance Committee Meeting Minutes, Nov. 30, 2010
Finance Committee Meeting Minutes, Dec. 21, 2010
Executive/Finance Joint Committee Meeting Minutes, Feb. 2, 2011
Finance Committee Meeting Minutes, Feb. 24, 2011
Executive/Finance Joint Committee Meeting Minutes, March 30, 2011
Finance Committee Meeting Minutes, April 26, 2011
Finance Committee Meeting Minutes, May 31, 2011
Finance Committee Meeting Minutes, June 28, 2011
Finance Committee Meeting Minutes, July 26, 2011
Executive/Finance Committee Meeting Minutes, Aug. 31, 2011
Finance Committee Meeting Minutes, Sept. 23, 2011
Financial Statements by Month
Operating Statement of Activities, Oct. 31, 2011
Operating Statement of Financial Position, Oct. 31, 2011
Operating Statement of Activities, Sept. 30, 2011
Operating Statement of Financial Position, Sept. 30, 2011
Operating Statement of Activities, Aug. 31, 2011
Operating Statement of Financial Position, Aug. 31, 2011
Operating Statement of Activities, July 31, 2011
Operating Statement of Financial Position, July 31, 2011
Operating Statement of Activities, June 30, 2011
Operating Statement of Financial Position, June 30, 2011
Operating Statement of Activities, May 31, 2011
Operating Statement of Financial Position, May 31, 2011
Operating Statement of Activities, April 30, 2011
Operating Statement of Financial Position, April 30, 2011
Operating Statement of Activities, March 31, 2011
Operating Statement of Financial Position, March 31, 2011
Operating Statement of Activities, Feb. 28, 2011
Operating Statement of Financial Position, Feb. 28, 2011
Operating Statement of Activities, Jan. 31, 2011
Operating Statement of Activities, Dec. 31, 2010
Operating Statement of Financial Position, Dec. 31, 2010
Operating Statement of Activities, FY 10.5
Operating Statement of Financial Position, FY 10.5
Operating Statement of Activities, Nov. 30, 2010
Operating Statement of Financial Position, Nov. 30, 2010
Operating Statement of Activities, Oct. 31, 2010
Operating Statement of Financial Position, Oct. 31, 2010
Operating Statement of Activities, Sept. 30, 2010
Operating Statement of Financial Position, Sept. 30, 2010
Temporary Restricted Net Assets Report, Sept. 30, 2010
Functional Expnse Report, Sept. 30, 2010
Special Events Report, Sept. 30, 2010
Operating Statement of Activities, Aug. 31, 2010
Operating Statement of Financial Position, Aug. 31, 2010
Operating Statement of Activities, July 31, 2010
Operating Statement of Financial Position, July 31, 2010
Operating Statement of Activities, June 30, 2010
Operating Statement of Financial Position, June 30, 2010
Temporary Restricted Net Assets Report, June 30, 2010
Functional Expense Report, June 30, 2010
Special Events Report, June 30, 2010
Fund Development
Development Committee Meeting Minutes, Sept. 3, 2010
Development Committee Meeting Minutes, Sept. 24, 2010
Development Committee Meeting Minutes, Nov. 8, 2010
Development Committee Meeting Minutes, Dec. 15, 2010
Development Committee Meeting Minutes, Feb. 24, 2011
Development Committee Meeting Minutes, Sept. 23, 2011
Draft Development Plan, December 2010
Development Analysis Report – September 2010
Government Relations
Tuberous Sclerosis Authorization Bill Outline
TSC Alliance Regulatory Policy Guidance
TSC Alliance FDA Policy (Approved)
Government Relations Committee Meeting Minutes, Aug. 5, 2010
Joint Government Relations & Science/Medical Subcommittee Meeting Minutes, Sep. 2, 2010
Government Relations Committee Meeting Minutes, Sept. 16, 2010
Government Relations Committee Meeting Minutes, Sept. 24, 2010
Government Relations Committee Meeting Minutes, Oct. 21, 2010
Joint Government Relations & Science/Medical Subcommittee Meeting Minutes, Oct. 28, 2010
Government Relations Committee Meeting Minutes, Oct. 6, 2011
Government Relations Committee Meeting Minutes, Nov. 14, 2011
Nominating & Governance
Board of Director Class Schedule for Year Ended Dec. 31, 2011
Outreach
Outreach Committee Meeting Minutes, April 12, 2010
Outreach Committee Meeting Minutes, Sept. 24, 2010
Outreach Committee Meeting Minutes, Feb. 24, 2011
Outreach Committee Meeting Minutes, Sept. 24, 2011
Constituent Survey Results – Full Report
Constituent Survery Results – Adults
Science & Medical
Electronic Vote
Email vote on March 3, 2011 to approve TSC Scientific Project Leaders (Dr. Hope Northrup and Dr. Steve Sparagana) and Working Group Leaders (Dr. Elizabeth Thiele – Epilepsy, Dr. Bruce Korf – Genetics) with an award of $17,500 for each site for FY11 (9 e-votes of voting officers, motion passed)
Science & Medical Committee Meeting Minutes, Sept. 21, 2010
Science & Medical Committee Meeting Minutes, Sept. 24, 2010
Joint Government Relations & Science/Medical Subcommittee Meeting Minutes, Oct. 28, 2010
Science & Medical Committee Meeting Minutes, Nov. 8, 2010
Science & Medical Committee Meeting Minutes, Jan. 24, 2011
Science & Medical Commitee Meeting Minutes, Feb. 24, 2011
Science & Medical Committee Meeting Minutes, Sept. 23, 2011
Science & Medical Committee Meeting Minutes, Oct. 26, 2011
TSC Natural History Database Overview
Timeline for Development of the Plan for Revisions of the Database
TSC Natural History Database Action Plan, Nov. 11, 2010
Joint Government Relations & Science/Medical Subcommittee Meeting Minutes, Sep. 2, 2010