The Ask an Advocate webinar series occurs every two months on the second Monday at 8 pm ET. Join Director, Outreach and Support Shelly Meitzler and Community Programs Manager Elizabeth Skufca for an ask an advocate session. Bring your questions about evaluations, Individualized Education Programs (IEPs) or 504 plans. REGISTER
Join the TSC Alliance for the 2025 Transition Webinar Series! The first webinar of a six-part series on transitioning to adulthood will take place on Thursday, February 13, 2025 at 8 pm ET. This webinar will feature Elizabeth Thiele, MD, PhD, Director, Pediatric Epilepsy Program; Director, Carol and James Herscot Center for Tuberous Sclerosis
Join us for our April Ask an Advocate session. This month's session will feature an open forum with Shelly Meitzler, Director, Outreach & Support, where you can ask about Evaluations, Individualized Education Programs (IEPs), 504 plans and more! We look forward to seeing you on Monday, April 14 at 8 pm ET. Register for the
On Sunday, March 16, 2025, Team TSC will take to the streets of NYC and run in the 2025 United Airlines NYC Half Marathon, raising awareness and funds to support the TSC Alliance’s mission to create a future where everyone affected by tuberous sclerosis complex (TSC) can live their fullest lives. Join us in cheering
We’re thrilled to announce that Jamie Capal, MD, Division Chief of Pediatric Neurology at the University of Rochester and Director of the newly established TSC Clinic, will be joining our Adult Topic Call on Tuesday, March 19, at 8 pm ET. Dr. Capal is an expert in neurogenetic conditions resulting in neurodevelopmental disabilities across the lifespan and
Tuberous Sclerosis Canada Sclérose Tubéreuse (TSC Canada ST) will continue hosting an educational series in 2025 to empower patients and their families with knowledge and resources related to tuberous sclerosis complex (TSC). All of the symposia will be held on Zoom. A link will be sent to you after registration.
Get your tickets to Comedy for a Cure! Join us for an evening of laughter and hope that’s out of this world! Sunday, April 6, 2025 | Vibiana Learn more and get your tickets now.
We’re thrilled to announce that Step Forward to Cure TSC® is coming to Elk Grove, CA on Saturday, April 12, 2025! This exciting event, hosted by the TSC Alliance, is a chance for the California TSC community to come together, raise awareness and support the fight against tuberous sclerosis complex (TSC). Step forward to champion the TSC Alliance's
We’re thrilled to announce that Step Forward to Cure TSC® is coming to Sugar Land, TX on Sunday, April 13, 2025! This exciting event, hosted by the TSC Alliance, is a chance for the Houston area TSC community to come together, raise awareness and support the fight against tuberous sclerosis complex (TSC). Step forward to champion the TSC
Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. These calls are hosted on the third Wednesday of September, October, November, March, April and May. You can join using your computer or dial
Join Leigh Horne-Mebel, LICSW, Social Worker, at the Carol and James Herscot Center for Tuberous Sclerosis Complex at Massachusetts General Hospital, who will be leading a valuable discussion on the psychological impact on caregivers of semi-independent and dependent adults with TSC. These types of conversations can offer practical advice on navigating those who are caregivers
We’re thrilled to announce that Step Forward to Cure TSC® is coming to Chicago, IL on Sunday, April 27, 2025! This exciting event, hosted by the TSC Alliance, is a chance for the Illinois TSC community to come together, raise awareness and support the fight against tuberous sclerosis complex (TSC). Step forward to champion the TSC Alliance's efforts
