Join the TSC Alliance: Carolinas Community Region and the Autism Society of North Carolina for a virtual information session on Tuesday, October 22, 2024, at 7 pm ET. The Autism Society of North Carolina improves the lives of individuals with autism, supports their families and educates communities across the lifespan! Services offered include: Skill-building and
Join us for an evening of progress and promise as we celebrate the 50th Anniversary of the TSC Alliance at Cipriani 42nd Street in New York City! Learn more and purchase your ticket here.
The TSC Alliance and Team TSC are proud to be an Official Charity Partner with the 2024 TCS New York City Marathon on Sunday, November 3, 2024. The TCS New York City Marathon course runs 26.2 miles through the five boroughs of NYC. The TSC Alliance is thrilled to have five runners participating in this event. Each Team TSC
One-day Regional Conferences feature leading local researchers and clinicians specializing in TSC. Topics will include sessions across the lifespan of TSC, including: Research updates, including upcoming clinical studies and trials for TSC Behavior and mental health Genetics and gene therapy Women’s health issues Seizure types and treatments Kidney involvement and treatment options Please note: Childcare
The Ask an Advocate webinar series occurs every two months on the second Monday at 8 pm ET. Join Director, Outreach and Support Shelly Meitzler and Community Programs Manager Elizabeth Skufca for an ask an advocate session. Bring your questions about evaluations, Individualized Education Programs (IEPs) or 504 plans. REGISTER
The Ask an Advocate webinar series occurs every two months on the second Monday at 8 pm ET. Join Director, Outreach and Support Shelly Meitzler and Community Programs Manager Elizabeth Skufca for an ask an advocate session. Bring your questions about evaluations, Individualized Education Programs (IEPs) or 504 plans. REGISTER
Join the TSC Alliance for the 2025 Transition Webinar Series! The first webinar of a six-part series on transitioning to adulthood will take place on Thursday, February 13, 2025 at 8 pm ET. This webinar will feature Elizabeth Thiele, MD, PhD, Director, Pediatric Epilepsy Program; Director, Carol and James Herscot Center for Tuberous Sclerosis
Join us for our April Ask an Advocate session. This month's session will feature an open forum with Shelly Meitzler, Director, Outreach & Support, where you can ask about Evaluations, Individualized Education Programs (IEPs), 504 plans and more! We look forward to seeing you on Monday, April 14 at 8 pm ET. Register for the
On Sunday, March 16, 2025, Team TSC will take to the streets of NYC and run in the 2025 United Airlines NYC Half Marathon, raising awareness and funds to support the TSC Alliance’s mission to create a future where everyone affected by tuberous sclerosis complex (TSC) can live their fullest lives. Join us in cheering
Join the TSC Alliance for the first conference in the 2025 TSC Regional Conference Series! This conference will take place in Boston, MA on Saturday, May 3, 2025, at the Bentley University Conference Center. Conference registration will be open from 8:00 to 9:30 am ET and the conference will conclude at 5:30 pm ET. This one-day conference aimed at individuals with tuberous sclerosis complex (TSC) and
We’re thrilled to announce that Jamie Capal, MD, Division Chief of Pediatric Neurology at the University of Rochester and Director of the newly established TSC Clinic, will be joining our Adult Topic Call on Tuesday, March 19, at 8 pm ET. Dr. Capal is an expert in neurogenetic conditions resulting in neurodevelopmental disabilities across the lifespan and
Tuberous Sclerosis Canada Sclérose Tubéreuse (TSC Canada ST) will continue hosting an educational series in 2025 to empower patients and their families with knowledge and resources related to tuberous sclerosis complex (TSC). All of the symposia will be held on Zoom. A link will be sent to you after registration.
