Skip to content
About Us
About the TSC Alliance
Our Vision
Our Team
Our Leadership
Our Results
Corporate Policies
FAQs
Careers
Healthcare Providers
Researchers
Research Strategy
Grants & funding
Preclinical research
Natural History Database
Biosample Repository
Clinical Research Consortium
Research conferences
TSC Alert
International Scientific Advisory Board
Manuel R. Gomez Award
En Español
International
English
English
French
Spanish
Understanding TSC
What is TSC?
Genetics
Clinical Manifestations
Prognosis
Diagnostic criteria
Surveillance & treatment
Navigating TSC
Beginning Your Journey
Prenatal diagnosis
Childhood diagnosis
Adult diagnosis
Navigating Life Stages
Coordination of care
Caregiver resources
Surveillance & management
Mental health
Pharmacy Resources
Medication access issues
Medication resources
Types of pharmacies
TSC-associated neuropsychiatric disorders (TAND)
Stories of Hope
Find Support
Find a TSC Clinic
Bcureful travel & lodging assistance
Educational support
Community support network
Adult support
Connect with a Support Navigator
Resources
Resource Library
TSC Academy
Get Involved
Volunteer
Participate in research
Anya’s Accelerator
TSC Biosample Repository & Natural History Database
Seizures and TSC: your data matters!
TSC clinical trials
Government advocacy
TSC Matters E-Newsletter
Become a member
Run with Team TSC
Ways to give
News
Events
Donate
Contact the TSC Alliance
Clinic Ambassador Contact Form
Today’s Date
*
Your Name
*
Your Name
First
First
Last
Last
Are you connected with the TSC Alliance?
*
Yes
No
How are you connected? (Select all that apply)
*
I receive emails from the TSC Alliance.
I receive mail from the TSC Alliance.
I have participated in a local event with the TSC Alliance.
I follow the TSC Alliance on social media.
I’ve been in contact with a staff member of the TSC Alliance.
I’ve been in contact with a volunteer of the TSC Alliance.
Other (please specify)
Other (please specify)
Thanks for being a subscriber! Please confirm your email address.
Please confirm your address.
Please confirm your address.
Please confirm your address.
Please confirm your address.
City
City
State/Province
State/Province
Zip/Postal
Zip/Postal
Country
Afghanistan
Aland Islands
Albania
Algeria
American Samoa
Andorra
Angola
Anguilla
Antarctica
Antigua and Barbuda
Argentina
Armenia
Aruba
Australia
Austria
Azerbaijan
Bahamas
Bahrain
Bangladesh
Barbados
Belarus
Belgium
Belize
Benin
Bermuda
Bhutan
Bolivia
Bonaire, Sint Eustatius and Saba
Bosnia and Herzegovina
Botswana
Bouvet Island
Brazil
British Indian Ocean Territory
Brunei
Bulgaria
Burkina Faso
Burundi
Côte d'Ivoire
Cambodia
Cameroon
Canada
Cape Verde
Cayman Islands
Central African Republic
Chad
Chile
China
Christmas Island
Cocos (Keeling) Islands
Colombia
Comoros
Congo
Cook Islands
Costa Rica
Croatia
Cuba
Curacao
Cyprus
Czech Republic
Denmark
Djibouti
Dominica
Dominican Republic
East Timor
Ecuador
Egypt
El Salvador
Equatorial Guinea
Eritrea
Estonia
Ethiopia
Falkland Islands (Malvinas)
Faroe Islands
Fiji
Finland
France
French Guiana
French Polynesia
French Southern Territories
Gabon
Gambia
Georgia
Germany
Ghana
Gibraltar
Greece
Greenland
Grenada
Guadeloupe
Guam
Guatemala
Guernsey
Guinea
Guinea-Bissau
Guyana
Haiti
Heard Island and McDonald Islands
Holy See
Honduras
Hong Kong
Hungary
Iceland
India
Indonesia
Iran
Iraq
Ireland
Isle of Man
Israel
Italy
Jamaica
Japan
Jersey
Jordan
Kazakhstan
Kenya
Kiribati
Kosovo
Kuwait
Kyrgyzstan
Laos
Latvia
Lebanon
Lesotho
Liberia
Libya
Liechtenstein
Lithuania
Luxembourg
Macao
Macedonia
Madagascar
Malawi
Malaysia
Maldives
Mali
Malta
Marshall Islands
Martinique
Mauritania
Mauritius
Mayotte
Mexico
Micronesia
Moldova
Monaco
Mongolia
Montenegro
Montserrat
Morocco
Mozambique
Myanmar
Namibia
Nauru
Nepal
Netherlands
New Caledonia
New Zealand
Nicaragua
Niger
Nigeria
Niue
Norfolk Island
North Korea
Northern Mariana Islands
Norway
Oman
Pakistan
Palau
Palestine
Panama
Papua New Guinea
Paraguay
Peru
Philippines
Pitcairn
Poland
Portugal
Puerto Rico
Qatar
Reunion
Romania
Russia
Rwanda
Saint Barthelemy
Saint Helena, Ascension and Tristan da Cunha
Saint Kitts and Nevis
Saint Lucia
Saint Martin (French part)
Saint Pierre and Miquelon
Saint Vincent and the Grenadines
Samoa
San Marino
Sao Tome and Principe
Saudi Arabia
Senegal
Serbia
Seychelles
Sierra Leone
Singapore
Sint Maarten (Dutch part)
Slovakia
Slovenia
Solomon Islands
Somalia
South Africa
South Georgia and the South Sandwich Islands
South Korea
South Sudan
Spain
Sri Lanka
Sudan
Suriname
Svalbard and Jan Mayen
Swaziland
Sweden
Switzerland
Syria
Taiwan
Tajikistan
Tanzania
Thailand
Timor-Leste
Togo
Tokelau
Tonga
Trinidad and Tobago
Tunisia
Turkey
Turkmenistan
Turks and Caicos Islands
Tuvalu
Uganda
Ukraine
United Arab Emirates
United Kingdom
United States
United States Minor Outlying Islands
Uruguay
Uzbekistan
Vanuatu
Vatican City
Venezuela
Vietnam
Virgin Islands, British
Virgin Islands, U.S.
Wallis and Futuna
Western Sahara
Yemen
Zambia
Zimbabwe
Country
Would you like to be connected with your local TSC community?
*
Yes
No
Are you interested in learning about volunteer opportunities with the TSC Alliance?
*
Yes
No
Would you like to connect with the TSC Alliance?
*
Yes
No
Please select how you would like to connect (select all that apply).
*
I would like to receive emails from the TSC Alliance.
I would like to receive mail from the TSC Alliance.
I would like to be connected with my local TSC community.
I’m interested in volunteering with the TSC Alliance.
Other
Other
What is your preferred contact method?
*
Email
Phone Call
Text
Email
*
Phone
*
Address
*
Address
Address
Address
City
City
State/Province
Alabama
Alaska
Arkansas
Arizona
California
Colorado
Connecticut
Delaware
District of Columbia
Florida
Georgia
Hawaii
Idaho
Illinois
Indiana
Iowa
Kansas
Kentucky
Louisiana
Maine
Maryland
Massachusetts
Michigan
Minnesota
Mississippi
Missouri
Montana
Nebraska
Nevada
New Hampshire
New Jersey
New Mexico
New York
North Carolina
North Dakota
Ohio
Oklahoma
Oregon
Pennsylvania
Rhode Island
South Carolina
South Dakota
Tennessee
Texas
Utah
Vermont
Virginia
Washington
West Virginia
Wisconsin
Wyoming
State/Province
Zip/Postal
Zip/Postal
Would you like to be contacted by a TSC Alliance Support Navigator?
*
Yes
No
Our professional Support Navigators can help answer your questions, process and understand your diagnosis, help find TSC recognized specialists, provide educational support, and more.
What challenges do you need resources or support for? (select all that apply)
*
Seizure control
TSC-associated neuropsychiatric disorders (TAND) including behavior issues, autism, sleep/eating issues, cognitive delay, etc.
Accessing medication
Finding a doctor knowledgeable about TSC
Navigating the transition for childhood to adulthood (including finding adult medical care, postsecondary education, housing, etc.)
Connecting with other individuals/families with TSC
Other issues (please specify)
Other issues (please specify)
Are you experiencing new issues for which you need support? (Please explain)
What is your relationship to the person with TSC?
*
I have TSC
I’m the parent/caregiver of someone with TSC
I’m the grandparent of someone with TSC
I’m a relative of someone with TSC
Other relationship (please specify)
Other relationship (please specify)
What is the name of the person with TSC?
*
What is the name of the person with TSC?
First
First
Last
Last
What year and age were you/your loved one diagnosed with TSC?
*
Please provide further information you would like us to know about you or your loved one with TSC.
Captcha
Submit
Search
Generic filters
Hidden label
Exact matches only
Hidden label
Search in title
Hidden label
Search in content
Hidden label
Search in excerpt
Popular Search Terms:
What is TSC?
Find a TSC clinic
Diagnostic criteria
TSC-associated neuropsychiatric disorders (TAND)
Brain abnormalities
Close
Understanding TSC
▼
What is TSC?
Genetics
Clinical Manifestations
Prognosis
Diagnostic criteria
Surveillance & treatment
Navigating TSC
▼
Prenatal diagnosis
Childhood diagnosis
Adult diagnosis
Coordination of care
Caregiver resources
Mental health
Surveillance & management
Medication access issues
Medication resources
Pharmacy Resources
TAND
▼
TAND Overview
Autism in TSC
Dysregulated behaviors
Eating and sleep difficulties in TSC
Mood and anxiety difficulties in TSC
Neuropsychological issues in TSC
Overactivity and impulsivity in TSC
Scholastic difficulties in TSC
Psychosocial issues in TSC
Stories of hope
Find Support
▼
Find a TSC Clinic
Bcureful travel & lodging assistance
Educational support
Community support network
Connect with a Support Navigator
Resources
Get Involved
▼
Volunteer
Participate in research
Anya’s Accelerator
TSC Biosample Repository & Natural History Database
Seizures and TSC: your data matters!
TSC clinical trials
Government advocacy
TSC Matters E-Newsletter
Become a member
Run with Team TSC
Ways to give
News
Events
Donate
About Us
▼
About the TSC Alliance
Our Vision
Our Team
Our Leadership
Our Results
Corporate Policies
FAQs
Careers
Healthcare Providers
Researchers
▼
Research Strategy
Grants & funding
Preclinical research
Natural History Database
Biosample Repository
Clinical Research Consortium
TSC Alert
Research conferences
Manuel R. Gomez Award
En Español
International
This website uses cookies to improve your user experience. By using this site you agree to our use of cookies. Please read our
Privacy Policy
to learn more.
ACCEPT
