Hamilton, Ontario
McMaster Children’s Hospital
Directors: Dr. Robyn Whitney and Dr. Elisabetta Trinari
Coordinator/ Nurse Practitioner: Cynthia Sloan Birbeck, NP
Age Range Seen: 0-18
Clinic Frequency: Monthly
Transition Program Available: Yes
For clinic information please refer to Dr. Whitney at 905-521-7914, attention TSC Clinic, McMaster Children’s Hospital.
London, Ontario
London Health Sciences Centre TSC Network
Address: 339 Windermere Road, London, Ontario N6A 5A5
Director: Andrew House, MD
Coordinator: Andrew House, MD
Age Range Seen: Adults
Clinic Frequency: The local practice is to see patients as and when they come. Virtual options (videoconferencing, telephone) are available.
The TSCN is a consultative clinic for adult patients with TSC, made up of specialists from a number of disciplines. Our network includes Dr. Andrew House (nephrology); Drs. Ana Suller Marti, Michelle Lee Jones and Derek Debicki (neurology/epilepsy); Drs. Stephen Pautler and Patrick Luke (urology); Dr. Marco Mura (respirology); Dr. Wei Jing Loo (dermatology); Drs. Natalya Karp and Dervla Connaughton (genetics); Dr. Raymond Lee (dentistry). Referrals to any specialist in the TSCN provides an entry point to multidisciplinary care, while undifferentiated cases can be referred to Dr. House. We are happy to accept referrals for any adult with TSC, and also to ease transition from pediatric to adult follow up for children in their late teens. For Clinic Information and to schedule an appointment call (519) 663-3167.
Montreal, Quebec
CHU Sainte-Justine, University of Montreal
Director: Philippe Major, MD
Coordinator: Lucie Côté RN
Age Range Seen: Children only under age 18 years.
Clinic Frequency: Thursdays, every 2-3 weeks.
For Clinic Information and to schedule an appointment call (514) 345-6510.
Montreal, Quebec
TSC Adult Clinic at the Centre Hospitalier de l’Université de Montréal (CHUM)
Director: Mark Keezer, MDCM, PhD
Coordinator: Vanessa Léger, RN
Age Range: Adults
Clinic Frequency: Every second Thursday.
For Clinic Information and to schedule an appointment call (514) 890-8000 extension 26419.
Toronto, Ontario
Comprehensive Tuberous Sclerosis Complex Clinic at The Hospital for Sick Children
Interim Director: Elizabeth Donner, MD
Co-Director: Maria Zak, MN, NP
Coordinator: Eugenia Law, RN
TSC Program Patient Navigator: Semira Kaul, RN
Age Range Seen: Children up to age 18 years
Clinic Frequency: One full Friday per month with additional clinics added as needed.
For clinic Information and to schedule an appointment, call (416) 813-7654 extension 201123.
Toronto, Ontario
Adult TSC Clinic at the University Health Network
Director: Raymond Kim, MD, PhD
Co-Director: Monika Madan, MD
Coordinator: Nicole Forster, MSc, CGC
Age Range Seen: Adults 18 years and older.
Clinic Frequency: Weekly on Wednesdays
For clinic information contact Nicole Forster at (416) 586-4800 extension 2734 and to schedule an appointment contact adultgenetics@uhn.ca or Tabinda Nazeer at (416) 586-4800 extension 5454.