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Results Reporting

Theory of Change

The TSC Alliance Theory of Change (TOC) resulted from a year-long series of critical thinking exercises by our board members and senior staff.  In general, a TOC is a specific type of methodology for planning, participation, and evaluation that is used in the philanthropy, not-for-profit and government sectors to promote social change. Our TOC defines long-term goals and then explains how a group of early and intermediate accomplishments sets the stage for producing long-range results.

Theory of Change (PDF)
Approved by TSC Alliance Board of Directors, October 13, 2023

Validators:

BBB Accredited Charity Charity Navigator - Four Star Great Non-Profits 2022 Top rated Platinum Transparency 2023 - Candid iSAN NORD Touch Neurology Advancing Collaboration Pledge RDDC Rare Epilepsy Network Neurology Live Strategic Alliance Rare Foundation Alliance Seizure Action Plan Coalition

Published Evaluations

Strategic Plan Progress Reports

Constituent Voice

State of the TSC Communities Reports

White Paper

Unlocking a Cure for TSC: An Assessment of the Scientific Progress and Research Needs

The Voice of the Patient: A Report from the Tuberous Sclerosis Alliance’s Externally-Led Patient-Focused Drug Development Meeting

Annual Reports and Financials

2023

FY 2023 Annual Report
FY 2023 Form 990 – Operating
FY 2023 Form 990 – Endowment
FY 2023 Consolidated Audit

2022

FY 2022 Annual Report
FY 2022 Form 990 – Operating
FY 2022 Form 990 – Endowment
FY 2022 Consolidated Audit

2021

FY 2021 Annual Report
FY 2021 Form 990 – Operating
FY 2021 Form 990 – Endowment
FY 2021 Consolidated Audit

2020

FY 2020 Annual Report
FY 2020 Form 990 – Operating
FY 2020 Form 990 – Endowment
FY 2020 Consolidated Audit

2019

FY 2019 Annual Report
FY 2019 Form 990 – Operating
FY 2019 Form 990 – Endowment
FY 2019 Consolidated Audit 

2018

FY 2018 Annual Report
FY 2018 Form 990 – Operating
FY 2018 Form 990 – Endowment
FY 2018 Consolidated Audit

2017

FY 2017 Annual Report
FY 2017 Form 990 – Operating
FY 2017 Form 990 – Endowment
FY 2017 Consolidated Audit

2016

FY 2016 Annual Report  
FY 2016 Form 990 – Operating

FY 2016 Form 990 – Endowment
FY 2016 Consolidated Audit

2015

FY 2015 Annual Report
FY 2015 Form 990 – Operating

FY 2015 Form 990 – Endowment
FY 2015 Consolidated Audit

2014

FY 2014 Annual Report
FY 2014 Form 990 – Operating

FY 2014 Form 990 – Endowment  
FY 2014 Consolidated Audit

2013

FY 2013 Annual Report
FY 2013 Form 990 – Operating

FY 2013 Form 990 – Endowment 
FY 2013 Consolidated Audit

2012

FY 2012 Annual Report
FY 2012 Form 990 – Operating

FY 2012 Form 990 – Endowment
FY 2012 Consolidated Audit

2011

FY 2011 Annual Report
FY 2011 Form 990 – Operating

FY 2011 Form 990 – Endowment
FY 2011 Consolidated Audit

2010.5

FY 2010.5 Annual Report
FY 2010.5 Form 990 – Operating
FY 2010.5 Form 990 – Endowment
FY 2010.5 Consolidated Audit

2010

FY 2010 Annual Report
FY 2010 Form 990 – Operating
FY 2010 From 990 – Endowment 
FY 2010 Consolidated Audit

2009

FY 2009 Annual Report
FY 2009 Form 990 – Operating 
FY 2009 Form 990 – Endowment  
FY 2009 Consolidated Audit