The TSC Alliance and The LAM Foundation are co-hosting four more Regional TSC & LAM Conferences in 2019! Focusing on patients and caregivers, conferences will take place in St. Louis (June 15), Chicago (September 7), Atlanta (September 21), and Los Angeles (November 2) in 2019.
The second Regional TSC and LAM Conference, co-hosted with The LAM Foundation is Saturday, June 15 starting at 8:30 AM at the Farrell Learning and Teaching Center (FLTC) at Washington University in St. Louis, MO! This free one-day conference will feature local leading researchers and clinicians specializing in TSC and lymphangioleiomyomatosis (LAM) including including Drs. Michael Wong, Nishant Gupta, Tanjala Gipson and Adrian Shiffrren, as well as speakers from The Arc, Child Neurology Foundation, and MassMutual discussing transition issues. They will also include networking opportunities to meet other families and individuals from the area. These full-day conferences will offer a Pediatric Track (Track 1), a Transition Track (Track 2), and an Adult Track with sessions important to adults with TSC and LAM (Track 3).
Key topics include:
- Research updates, including upcoming clinical studies and trials for TSC and LAM
- Seizure types and treatments (pediatric and adult)
- Tumor growth and treatments
- Behavior and mental health
- Transitioning into adulthood
- LAM
- Genetics
- Quality of life
- Kidneys and angiomyolipomas