The TSC Alliance supports the vital role a tuberous sclerosis complex (TSC) clinic can play in improving the lives of TSC patients. Use the resources below to find a TSC clinic near you.
The TSC Alliance has offered TSC Clinic designations to the institutions listed below in order to help serve as a resource for the TSC community to identify where comprehensive clinical care for people with TSC is available. The TSC Alliance does not accredit any TSC Clinic or TSC Center of Excellence, and the TSC Alliance does not directly provide or guide any clinical care or medical decision-making. None of the information provided by TSC Alliance, including the identification of TSC Clinics or TSC Centers of Excellence, is intended as medical advice and should not be relied upon as a substitute for professional consultation with a qualified healthcare provider familiar with a patient’s medical needs. The identification of a TSC Clinic or Center of Excellence does not constitute a recommendation or endorsement of any provider of medical care. It is important to check with your insurance carrier about in-service providers before starting care.
Please email clinicconcerns@tscalliance.org or call (240) 463-7250 to report any problems you encounter with the contact information posted below.
To view full information about each TSC Clinic, please scroll down or click on the map below:
All information listed in the map is also repeated below. Click one of the following letters to be directed to the corresponding state name.
A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z | International
ALABAMA
Birmingham – University of Alabama Birmingham Tuberous Sclerosis Clinic
- Director: E. Martina Bebin, MD, MPA
- Coordinator: Jessica Krefting, BSN, RN
- Age Range Seen: Children and Adults
- Clinic Frequency: Weekly
- Out-of-State Medicaid Policy: Some states are accepted; please contact the clinic for current policy.
- For more information about the UAB TS Clinic and to schedule an appointment, contact Jessica Krefting, BSN, RN at (205) 934-4983.
ARIZONA
Phoenix – APNNA, Arizona Pediatric Neurology & Neurogenetics Associates
- Located at 3330 N. 2nd Street, Suite 402, Phoenix, AZ 85012
- Director: Vinodh Narayanan, MD
- Administrative Coordinator: Chitra J. Narayanan
- Range Seen: Children and adults
- TSC Clinic Frequency: As needed
- For more information or to schedule an appointment, please call 602) 687-8555 or email info@azpediatricneurology.com.
ARKANSAS
Little Rock – TSC Clinic at Arkansas Children’s
- Director: Debopam Samanta, MD
- Coordinator: Anna Bevis, RN
- Age Range Seen: New patients up to age 21 years
- Clinic Frequency: Monthly
- For Clinic Information call (501) 364-4941. To schedule an appointment call (501) 361-2501.
CALIFORNIA
Loma Linda – The Tuberous Sclerosis Clinic at Loma Linda University Health Care
- Located at 250 E. Caroline St., Suite J West, San Bernardino, CA 92408
- Director: Stephen Ashwal, MD
- Coordinator: Maha Issa-Koteira
- Age Range Seen: Children and Adults
- Clinic Frequency: Every first Thursday of the month
- For more information or to schedule an appointment call (909) 835-1810. This is the phone number for the pediatric neurology specialty clinic, which includes TSC. Inform the scheduler that you are calling to make an appointment to see Dr. Ashwal.
- Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.
Los Angeles – TSC Center of Excellence at Children’s Hospital Los Angeles
- Director: Vijay Vishwanath MD PhD
- Co-Director: Tena Rosser, MD
- Coordinator: Katie Wanninger, RN, BSN
- Age Range Seen: New patients under age 18 years
- Clinic Frequency: Monthly (one day per month)
- For Clinic Information and to schedule an appointment call (323)-361-2471.
Los Angeles – TSC Center of Excellence at UCLA
- Director: Rajsekar (Raj) Rajaraman, MD
- Administrative Coordinator: Anais Ruiz ajruiz@mednet.ucla.edu
- Age Range Seen: Children and Adults
- Clinic Frequency: Weekly on Thursdays
- Out-of-State Medicaid Policy: Requires one-time agreement with UCLA
- To schedule an appointment or for information on how to get a new patient referred to the TSC clinic please call (310) 825-0867 or email uclatsc@mednet.ucla.edu.
- Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.
Oakland – UCSF Benioff Children’s Hospital Oakland Tuberous Sclerosis Clinic
- Director: Ali Mostajelean, MD
- Administrative Coordinator: Mariana Villagran
- Age Range Seen: Children
- Clinic Frequency: Daily
- To schedule an appointment, contact Mariana Villagran at (510) 428-3885 ext. 4543.
- Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.
Orange – TSC Center of Excellence at Children’s Hospital of Orange County
- Director: Donald Phillips, MD, MPH
- Co-Director: Clare Skora, MD
- Coordinator: Melissa Pajarito, RN
- Age Range Seen: Children and young adults up to age 21 years
- Clinic Frequency: Monthly
- To schedule an appointment or for more information, contact (714) 671-8469.
San Diego – TSC Multidisciplinary Clinic at Rady Children’s Hospital San Diego
- Director: Anuja Jindal, MD, MPH
- Coordinator: Marsha Harp, RN
- Age Range Seen: Children and Adults
- Clinic Frequency: Monthly every third Thursday.
- To schedule an appointment, call (858) 966-5819.
Stanford – Northern California TSC Clinic at Lucile Packard Children’s Hospital
- Stanford Hospital and Clinics
- Director: Brenda E. Porter, MD, PhD
- Co-Director: Scheherazade Le, MD
- Coordinator: Perla Bautista Muench, RN, BSN (Pediatric)
- Coordinator: Mimi Callanan, RN, MSN (Adults)
- Clinic Ambassadors: Bridget Britt, bridget.walsh216@gmail.com, Viviana Hernandez-Ferrer, vhferrer@yahoo.com
- Age Range Seen: Children will be seen by Dr. Porter at Lucile Packard Children’s Hospital. Adults will be seen by Dr. Scheherazade Le at Stanford Hospital & Clinic located at 300 Pasteur Drive, Third Floor, Room A301. Dr. Porter and Dr. Le who are specialists in neurology and epilepsy will refer patients to the appropriate specialists for evaluation and management of other issues related to TSC, as needed.
- Clinic Frequency: Weekly.
- For Appointments and Clinic Location: If you are a parent of a child 17 years or younger call (650) 723-0993. If you are an adult with TSC or parent of a dependent adult with TSC, call (650) 498-7551 for New Patient Appointments to be seen by Dr. Scheherazade Le.
- Esta clínica cuenta con un doctor o un empleado que habla un poco de español (Dr. Le).
COLORADO
Denver – TSC Clinic at Children’s Hospital Colorado & University of Colorado (Adult Program)
- Director: Susan Koh, MD at Children’s Hospital
- Co-Director: Kevin C. Ess, MD, PhD at Children’s Hospital
- Co-Director: Alexandra Atwood, MD at University Hospital
- Coordinator (pediatric): Wynne Bird, BSN, RN, CPN at Children’s Hospital
- Coordinator (adult): Yarely Galvan Martinez at University Hospital
- Clinic Ambassador: Dana Holinka, emme01@msn.com
- Age Range Seen: Children and Adults*
- Clinic Frequency: Monthly, pediatric multidisciplinary TSC program^ meets first Friday and the adult multidisciplinary TSC program meets first Tuesday AM.
- Out-of-State Medicaid Policy: No restrictions.
- To schedule an appointment for your child at the Children’s Hospital, please call (720) 777-6895. To schedule an appointment at the Adult TSC Clinic, call (720) 848-9243.
- *Adults with TSC and seizures. Adults who need other specialty care outside of epilepsy/neurology will be referred to other subspecialties with TSC expertise such as dermatology, genetics, urology, or pulmonology.
- ^Due to overwhelming interest in our monthly multidisciplinary TSC program, we are now offering patients the opportunity to schedule with all the necessary subspecialists in individual clinics within a short time frame, possibly same-day. This option minimizes wait times and gives patients all the same care and treatment as the Multidisciplinary Clinic. Please reach out to the Tuberous Sclerosis Complex Program clinic director or coordinator with any questions or concerns at (720) 777-6895.
Due to a transition in leadership at the TSC Clinic at the University of Colorado Anschutz Medical Campus, adults with TSC may experience temporary delays when trying to schedule appointments. The TSC Alliance is aware of the situation and will continue to provide updates to the Colorado TSC community. If you are having difficulty scheduling an appointment, please email support@tscalliance.org for further assistance.
CONNECTICUT
Farmington – TSC Clinic at Connecticut Children’s Medical Center
- Director: Francis DiMario, Jr., MD
- Coordinator: Samantha Witham, BSN, RN, CPN
- Age Range Seen: New patients up to age 25 years old
- Clinic Frequency: Weekly, half-day on Tuesday and half-day first Wednesday of each month
- To schedule an appointment, call (860) 837-7500.
- Esta clínica cuenta con un doctor o un empleado que habla un poco de español.
DELAWARE
Wilmington – TSC Clinic at Nemours/duPont Hospital for Children
- Director: Lily Tran, MD
- Co-Director: Ana Melikishvili, MD
- Co-Director: Judith Adelizzi-Delaney, DNP, APRN
- Coordinator: Lisa Vala, RN, BSN, REEGT
- Clinic Ambassador: Phyllis Brabender, Phyllisb2000@comcast.net
- Age Range Seen: Children
- Clinic Frequency: Weekly, every Thursday afternoon
- For clinic information contact Lisa Vala at lisa.vala@nemours.org. To schedule an appointment, call the scheduling secretary at (302) 651-5930.
DISTRICT OF COLUMBIA AREA
Washington, DC – Tuberous Sclerosis Clinic at Children’s National
- Director: William McClintock, MD
- Co-Director: Jennifer Jaskiewicz, DO
- Coordinator: Nancy Elling, RN, BSN, CPN
- Clinic Ambassador: Kathi Dills kteach599@msn.com
- Age Range Seen: Children and Adults
- Clinic Frequency: Weekly on Thursday at Children’s National Medical Center in Washington DC and monthly on the second Monday at the Regional Outpatient Center in Fairfax, VA.
- For information about the TSC Clinic contact Nancy J. Elling, RN, BSN, CPN at (703) 635-2873. To schedule an appointment, call the Neurology appointment line at (202) 476-3611.
FLORIDA
Gainesville – The UF Health Tuberous Sclerosis Center
- Director: Hans Shuhaiber, MD
- Co-Director: S. Parrish Winesett, MD
- Co-Director: Sotiris G. Mitropanopoulos, MD
- Coordinator: Kenya McHome, MSN
- Age Range Seen: Children and Adults
- Clinic Frequency: Monthly
- For information and to schedule an appointment, call (352) 294-5000.
Miami – TSC Clinic at Nicklaus Children’s Hospital Miami
- Director: Paula Schleifer, MD
- Coordinator: Maria del Pilar Gennaro, MSN, ARNP, CNRN
- Age Range Seen: Children and Young Adults up to age 25 years old
- Clinic Frequency: Monthly on third Tuesday
- Out-of-State Medicaid Policy: Does not accept for outpatient visits. A letter of agreement is required prior to inpatient admissions.
- To schedule an appointment, call (786) 624-3552.
- Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.
Orlando – Advent Health Medical Group Epilepsy at Orlando
- Director: Ki Hyeong Lee, MD
- Co-Director: Julia Henry, MD
- Age Range Seen: Children and Adults
- Clinic Frequency: Weekly on Mondays and Tuesdays
- For more information or to schedule an appointment, contact appointment scheduling at (407) 303-8127.
Orlando – Orlando Health Arnold Palmer Hospital for Children
- Director: Vikram Prakash, MD
- Co-Director: Ana Aguilar-Bonilla, MD
- Coordinator: Jennifer Graham, RN
- Age Range Seen: Children up to age 21 years old
- Clinic Frequency: Monthly
- For clinic information and to schedule an appointment please contact our team at 321-842-6671 or r-aphtsclinic@orlandohealth.com.
St. Petersburg – Neurocutaneous Disorders Clinic at Johns Hopkins All Children’s Hospital
- Director: Stacie Stapleton, MD
- Co-Director: Melissa Crenshaw, MD
- Coordinator: Sonja Steinbrueck, RN
- Age Range Seen: New patients up to age 21 years
- Clinic Frequency: Monthly, second and fourth Mondays
- For Clinic Information and to schedule an appointment call (727) 767-3675.
Tampa – H. Lee Moffitt Cancer Center
- Director: Sepideh Mokhtari, MD
- Coordinator: None
- Age Range Seen: Adults only
- Clinic Frequency: Monthly, every third Tuesday (subject to change)
- For Clinic Information call (813) 745-3980 and to schedule an appointment call (813) 745-4251
GEORGIA
Atlanta – Children’s Healthcare of Atlanta
- Located at Center for Advanced Pediatrics, 1400 Tullie Road NE, 6th Floor, Atlanta, GA 30329
- Director: David S. Wolf, MD, PhD
- Co-Director: Prabhu Patil, MD
- Coordinator: Nancy Morris, LPN
- Age Range Seen: Children and young adults up to age 21 years old
- TSC Clinic Frequency: Every first Monday and Thursday afternoon with urgent evaluations scheduled when possible.
- For information about the clinic call Nancy Morris at (404) 785-3679. To schedule an appointment call (404) 785-5437.
Augusta – TSC Clinic at the Medical College of Georgia
- Children are seen at the Wellstar Health Facility at 1120 15th Street, Augusta, GA 30912. Adults are seen at the Georgia Cancer Center, 1411 Laney Walker Boulevard, Augusta, GA 30912.
- Director: John Henson, MD
- Co-Director: Suzanne Strickland, MD
- Coordinator: Milca Alfaro, BS
- Age Range Seen: Children and Adults
- TSC Clinic Frequency: Monthly (first Tuesday of each month for children, as needed for adults)
- For more information and to schedule an appointment, call (706) 721-6458.
ILLINOIS
Chicago – University of Chicago Medical Center
- Director: James H. Tonsgard, MD
- Coordinator: Debbie Ruckman, RN, BSN, CPN, Telephone: 773-834-1927
- Age Range Seen: Children and Adults
- Clinic Frequency: One Friday afternoon per month and as needed weekly at main campus or off site locations
- Out-of-state Medicaid: Process to get approval may take several weeks. Contact clinic for details.
- For more information about the clinic or to schedule an appointment contact Debbie Ruckman at (773) 834-1927.
- Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.
Chicago – Multidisciplinary Tuberous Sclerosis Clinic at Ann & Robert H. Lurie Children’s Hospital of Chicago
- Director: Priyamvada Tatachar, MD
- Co-Director: Joyce Y. Wu, MD
- Administrative Coordinator: Clara Samaniego
- Coordinator: Kelly B. Nelson, RN
- Clinic Ambassador: Jackie Tallman, Jackie.longfield@gmail.com
- Age Range Seen: Children and young adults up to age 21 years old
- Clinic Frequency: Twice monthly on selected Tuesday afternoons
- To schedule an appointment call (312) 227-3540.
Chicago – TSC Clinic at University of Illinois at Chicago
- Director: To be named.
- Co-Director: Saba Ahmad, MD
- Coordinator: Joyce Masterton, ANP
- Age Range Seen: Children and Adults*.
- Clinic Frequency: Monthly, every first Wednesday morning (subject to change)
- For clinic information and to schedule an appointment, call (312) 996-7865. To avoid confusion with scheduling please specify you or your child has TSC. For children with TSC, schedule an appointment with Dr. Yoshii or Dr. Ahmad. *For adults with TSC, schedule an appointment with Dr. Jeffrey Loeb.
IOWA
Iowa City – University of Iowa Hospital & Clinics
- Director: Michael Ciliberto, MD
- Co-Director: Lyndsay Harshman, MD
- Co-Director: Alpa Sidhu, MBBS, PhD
- Clinic Coordinator: Liberty Taeger
- Age Range Seen: Children and Adults
- Clinic Frequency: Weekly
- For information and to schedule an appointment, call 1-888-573-5437.
KENTUCKY
Louisville – TSC Clinic at Novak Center/University of Louisville
- Director: Samir R. Karia, MD
- Co-Director: Siddarth Shah, MD
- Coordinator: Erin Beckner, RN, MSN
- Age Range Seen: Children and young adults up to age 21 years
- Clinic Frequency: Monthly (Every third Thursday)
- For clinic information, contact Erin Beckner, RN at (502) 588-3650 ext 50625. To schedule an appointment call Susan Dewitt at (502) 588-3650, extension 50032.
MARYLAND
Baltimore – TSC Clinic at Kennedy Krieger Institute
- Director: Jodi Lindsey, MD
- Coordinator: Lauren Hargis
- Clinic Ambassador: Jocelyn Cenna, portvue@comcast.net
- Administrative Coordinator: Dallas Matthews
- Age Range Seen: Children and young adults up to age 21 years
- Clinic Frequency: Twice monthly on Fridays, and as needed
For information and to schedule an appointment, call (443) 923-2746 or email TSC@kennedykrieger.org.
Baltimore – University of Maryland
- Director: Peter B. Crino, MD, PhD
- Coordinator: Dana Bridges, MSN, FNP-BC
- Clinic Ambassador: Jocelyn Cenna, portvue@comcast.net
- Age Range Seen: New patients 12 years and older
- Clinic Frequency: Weekly
- To schedule an appointment call (410) 328-3574. For clinic information and non-urgent inquiries please call the Clinic Coordinator at (410) 448-2485.
Bethesda – Mid-Atlantic Epilepsy and Sleep Center
- Director: Pavel Klein, MD
- Co-Director: Amanda Pong, MD, MSc
- Coordinator: Sheila Barton, RN
- Age Range Seen: Children and Adults
- Clinic Frequency: To be determined
- For information and to schedule an appointment, call (301) 530-9744.
MASSACHUSETTS
Boston – The Herscot Center for Tuberous Sclerosis Complex at Massachusetts General Hospital
- Director: Elizabeth Thiele, MD, PhD
- Coordinator: Erin Fonseca
- Age Range Seen: Children and Adults
- Clinic Frequency: Weekly on Fridays and every other Tuesday, as well as on an as needed basis
- To schedule an appointment please call (617) 726-6540.
Boston – Multi-Disciplinary Tuberous Sclerosis Program
- Boston Children’s Hospital
- Director: Mustafa Sahin, MD, PhD
- Coordinator: Jennifer McCrave, RN, BSN, CNRN
- Age Range Seen: Children and Young Adults up to age 25 years old
- Clinic Frequency: Every other week
- Out-of-State Medicaid Policy: Accepts Maine, New Hampshire, Rhode Island and Vermont
- To schedule an appointment please call one of our Patient Experience Representatives at (617) 355-2711. For clinic-related questions, please email Zoë Frazier, MS, CGC at zoe.frazier@childrens.harvard.edu.
MICHIGAN
Detroit – TSC Clinic at Children’s Hospital of Michigan
- Director: Aimee Luat, MD
- Co-Director: Melissa Gregory, MD
- Coordinator: Jamie MacDougall, RN, BSN, CPN
- Age Range Seen: Children and young adults up to age 21 years old
- Clinic Ambassador: Treasa Bolger-Dunlap, Mtbolger@comcast.net
- Clinic Frequency: One half-day every second Monday of the month
- Out-of-State Medicaid Policy: Accepts any that will reimburse
For information about the clinic contact Jamie at (313) 832-9610 and to schedule an appointment call Camille Hoskey at (313) 832-9620.
Grand Rapids – Corewell Health/Helen DeVos Children’s Hospital Multi-Disciplinary TSC Clinic
- Director: Robin Cook, MD, PhD
- Coordinator: Raeann Moore, RN
- Age Range Seen: Children and adults
- Clinic Ambassador: Mary Jo Cardona, mjcardona11@gmail.com
- Clinic Frequency: A multidisciplinary clinic is held every second Thursday of each month
- To schedule an appointment call the Helen DeVos Children’s Hospital Welcome Center at 616-267-2500. For Urgent Appointments contact Raeann Moore, RN at 616-267-2954.
Royal Oak – Corewell Health East/Beaumont Children’s TSC Clinic
- Director: Danielle A. Nolan, MD
- Co-Director: Anne Marie Michon, MSN, RN, CPNP-PC
- Coordinator: Rachel Eatman
- Clinic Ambassador: Tina Rossow, mrstinarossow@gmail.com
- Age Range Seen: Children and Adults
- Clinic Frequency: First and third Friday every month
- For information or to schedule an appointment call (248) 551-3302.
MINNESOTA
Minneapolis – University of Minnesota Medical Center TSC Clinic
- Director: Chris Moertel, MD
- Clinic Coordinator: Gretchen Skog, RN
- Age Range Seen: All ages
- Clinic Frequency: Weekly
- Address: M Health Fairview Masonic Children’s Hospital East Building, 9th Floor – Katie Hageboeck Children’s Cancer Research Fund Clinic, 2450 Riverside Ave, Minneapolis, MN 55454
- Clinic Phone Number: 612-365-8100
Roseville – TSC Clinic Without Walls
- Director: Doug Smith, MD
- Co-Director: Julie Hanna, MD
- Coordinator: Emily Peterson
- Age Range Seen: Children and Adults
- Clinic Frequency: Pediatric patients are seen at two dedicated half-day clinics per month and adults are seen at one dedicated full day and one half day clinic per month. Flexible to meet patient needs.
- For information and to schedule an appointment, call Lorna Justesen at (651) 241-5290.
MISSOURI
Kansas City – Tuberous Sclerosis Clinic at Children’s Mercy Hospital
- Director: Mohammed Ilyas, MD
- Co-Director: Laurel Willig, MD
- Coordinator: Beth Shepard, BSN, RN
- Clinic Ambassador: Laurisa Ballew, Laurisa.ballew@gmail.com
- Clinical Trial Coordinator I: Rajanna (RJ) Brooks, LPN
- Age Range Seen: New patients up to age 18 years
- Clinic Frequency: Monthly, every fourth Thursday (subject to change)
- For Clinic Information or to schedule an appointment call 816-234-3490.
St. Louis – Cardinal Glennon Children’s Hospital, Saint Louis University School of Medicine
- Director: Himanshu Kaulas, MD
- Coordinator: Stacey Hesse, RN
- Age Range Seen: New patients up to age 20 years
- Clinic Frequency: Monthly, every second Thursday
- For Clinic Information and to schedule an appointment call (314) 268-2737.
St. Louis – Washington University Tuberous Sclerosis Clinic
- Co-Director: Michael Wong, MD, PhD
- Co-Director: Fabio Nascimento, MD
- Age Range Seen: Children (0-17) and adults (18+)
- Pediatric Coordinator: Ashley Fasciola, RN, BSN
- Pediatric Clinic Frequency: Weekly every Wednesday morning
- For pediatric information and to schedule an appointment call (314) 454-6120 and ask for Ashley.
- Adult Coordinator: Patty Schaefer, RN
- Adult Clinic Frequency: 2-3 times a month on Mondays
- For adult care information and to schedule an appointment call 314-362-7845.
- Out-of-State Medicaid Policy: Accepts Illinois only.
NEW JERSEY
Hackensack – TSC Clinic at Northeast Regional Epilepsy Group
- Director: Eric Ségal, MD
- Coordinator: Shannon Brophy, RN, MSN, ANP-BC
- Age Range: Children and Adults
- Clinic Frequency: Weekly
- For more information and to schedule an appointment call (551) 497-5470.
Livingston – TSC Clinic at Institute of Neurology at St. Barnabas
- Co-Director: Andy Rodriguez, MD (Adult)
- Co-Director: Aliza Alter, MD (Pediatric)
- Coordinator: Munazza Malik
- Age Range Seen: Children and Adults
- Clinic Frequency: Monthly
- For clinic information and to schedule an appointment, please call (973) 322-7580.
NEW YORK
Bronx – Montefiore Medical Center
- Director: Nagma Dalvi, MD
- Co-Director: Susan Duberstein, MD
- Clinic Coordinator: Maria Guzman
- Administrative Coordinator: Erica Sierra
- Physician Assistant: Sheri Escalante, PA-C
- Age Range Seen: All ages
- Clinic Frequency: Second Friday of every month.
- To schedule an appointment, call (718) 920-4378.
- Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.
Hawthorne, Westchester and Hudson Valley – Clinic Without Walls serving NYC, Westchester, Hudson Valley & Connecticut
- Director: Steven Wolf, MD
- Co-Director: Patricia E. McGoldrick, NP, MSN, MPA
- Administrative Coordinator: Carmen Williams
- Age Range Seen: Children and Adults
- Clinic Frequency: Daily
- To schedule an appointment, call (914) 768-3970.
New York City – TSC Center at the Columbia University Irving Medical Center/New York Presbyterian
- Director: Cigdem I. Akman, MD
- Co-Director: Elena Gonzalez, PNP, MSN
- Coordinator: Elena Gonzalez, PNP, MSN
- Age Range Seen: Children and Adults
- Clinic Frequency: Appointments are scheduled as needed
- To schedule an appointment, call the TSC Center at (212) 342-1036.
New York City – The TS Center at New York University Langone Medical Center
- The TSC clinic at New York University (NYU) operates out of the NYU Comprehensive Epilepsy Center
- Director: Josiane LaJoie, MD
- Coordinator: Jack Sloane
- Age Range Seen: Children and Adults
- Clinic Frequency: Daily as needed
- For information about the TSC Clinic or to schedule an appointment call (646) 558-0808.
- Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.
Rochester – University of Rochester TSC Clinic
- Director: Jamie Capal, MD
- Co-Director: Derek Bauer, MD
- Co-Director: Emily Walsh, MD
- Coordinator: Morgan Pignone, RN
- Age Range Seen: Children and Adults
- Clinic Frequency: Monthly
- For more information and to schedule an appointment, call (585) 275-2808.
NORTH CAROLINA
Chapel Hill – UNC Hospitals Child Neurology Clinic at Chapel Hill
- Director: JoJo Yang, MD
- Co- Director: Chon Lee, MD
- Co- Director: Mary Weinstein Dunn, MSN, NP-C, OCN, RN
- Coordinator: Jennifer Harrell, RN
- Age Range Seen: Children and Adults
- Clinic Frequency and location: Children’s clinic- Fourth Friday afternoons (UNC Child Neurology Clinic at Carolina Pointe II in Chapel Hill); Adult clinic- First Thursday morning (UNC Adult Neurology Clinic at Meadowmont Village in Chapel Hill)
- For Clinic Information and to schedule an appointment call (984) 974-4401.
Charlotte – Atrium Healthcare TSC Clinic at Levine Children’s Hospital
- Director: Katherine Van Poppel, MD
- Co-Director: Chad Jacobsen, MD
- Coordinator: Kari Privette, RN
- Age Range Seen: Children and Adults
- Clinic Frequency: Fourth Friday every other month as a multidisciplinary clinic
- For Clinic Information and to schedule an appointment call (704) 403-2786.
Durham – Duke Medical Center
- Director: Klaus Georg Erich Werner, MD, PhD
- Co-Director: Alice Bryn Salter, MD
- Coordinator: Susan Markle, BSN, RN
- Clinic Ambassador: Celie Johnson, celiewjohnson@gmail.com
- Age Range Seen: Children and Adults. Dr. Werner sees all ages, however adults with commercial insurance or Medicare who have mild cognitive (i.e. IQ is 70 or higher) or psychiatric issues and are able to complete neuropsychological testing may schedule an appointment with Andrew Liu, MD, MS. Dr. Liu has clinic weekly, Monday through Wednesday, with 5 new slots designated per month to see adults with TSC.
- Clinic Frequency: Weekly
- For TSC Clinic information and to schedule an appointment call Loretta Dunn at (919) 668-0477. To schedule an appointment with Dr. Liu call his coordinator, Crystal Ballard at (919) 660-3234.
Winston-Salem – Wake Forest Baptist Medical Center Tuberous Sclerosis Clinic
- Director: Mary T. Silvia, MD
- Co-Director: Roy E. Strowd, III, MD
- Co-Director: Jane Boggs, MD
- Administrative Coordinator: Mary Jo Shirley
- Age Range Seen: Children and Adults
- Clinic Frequency: Pediatrics–2-3 Thursdays a month, subject to change. Adults–Monthly, every third Thursday.
- To schedule an appointment, call (336) 716-4101.
OHIO
Akron – TSC Clinic at Akron Children’s Hospital
- Acting Director: Michael Kohrman, MD
- Coordinator: Linn Thomson, LPN
- Age Range Seen: New patients up to age 25 years
- Clinic Frequency: Monthly, every second or fourth Wednesday
- For Clinic Information and to schedule an appointment call (330) 543-8050.
Cincinnati – The Tuberous Sclerosis Clinic
- Founding Director: David N. Franz, MD
- Director: Darcy Krueger, MD, PhD
- Co-Director: David Ritter, MD, PhD
- Coordinator: Aaron Pyle
- Age Range Seen: Children and Adults
- Clinic Frequency: Weekly every Wednesday all year round
- Out-of-state Medicaid: Accepts pending pre-authorization from the Medicaid provider. There are financial assistance programs for those living in Indiana:
- Dearborn county; Kentucky: Boone, Campbell and Kenton counties; and Ohio: Butler, Clermont, Hamilton and Warren counties. Ohio residents may qualify for the H-Cap program, which is for low income and based on federal poverty guidelines. For further questions regarding these programs contact Financial Services at (513) 636-0201.
- For clinic information or to schedule an appointment call 513-636-4222 or email TSclinic@cchmc.org.
- Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.
Cleveland – TSC Clinic at The Cleveland Clinic
- Director: Ajay Gupta, MD, FAAP
- Coordinator: Paula Klima, RN
- Clinic Ambassador: Lori Quirino, loriq@yahoo.com
- Age Range: Children and Young Adults
- Clinic Frequency: Weekly on Wednesday. Scheduling is flexible to meet patients’ needs whenever possible.
- For more information or to schedule an appointment, email tsc_care@ccf.org or call (216) 445-0601.
- Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.
Cleveland – TSC Clinic at Rainbow Babies and Children’s Hospital, University Hospitals of Cleveland Medical Center
- Director: Jennifer Waldron, DO
- Coordinator: Adina Chirla, BSN, RN
- Age Range Seen: Children and Adults
- Clinic Frequency: Consistently every fifth Wednesday of the month. Four patients seen simultaneously by a group of six providers (epilepsy, neurology, cardiology, nephrology, psychiatry and psychology).
- For clinic information and to schedule an appointment call (216) 286-6644.
Columbus – TSC Clinic at Nationwide Children’s Hospital
- Director: Megan Fredwall, MD
- Assistant Director: Stephanie Ahrens, DO
- Coordinator: Shannon Capka, RN
- Clinic Ambassador: Tarcisio Santos Moreira, tarcisiosam@gmail.com
- Age Range: Children
- Clinic Frequency: Twice monthly on Thursdays
- For more information about the clinic call (614) 722-4665 and to schedule an appointment call (614) 722-4625.
Dayton – TSC Clinic at Dayton Children’s Hospital
- Director: Rajkumar Agarwal, MD
- Co-Director: Marvin Miller, MD
- Coordinator: Sarah MacDonald, RN, BSN, CPN
- Age Range Seen: Children and young adults up to age 21 years
- Clinic Frequency: Second Monday every month – afternoon clinic
- For clinic information contact Sue Wolff at (937) 641-3800 and to schedule an appointment contact Sarah MacDonald RN, BSN, CPN at (937) 641-3497.
PENNSYLVANIA
Hershey – Penn State Health/Hershey Medical Center
- Director: Sita Paudel, MD
- Co-Director: Sunil Naik, MD
- Co-Director: Vinita Acharya, MD
- Coordinator: Stacey Miller, LPN
- Age Range Seen: Children and Adults
- Clinic Frequency: Third and fourth Wednesday every month – afternoon clinic
- For information and to schedule an appointment, call (717) 531-8790.
Philadelphia – The Hospital of the University of Pennsylvania (HUP)
- Director: Mersedeh Rohanizadegan
- Coordinator: Stephanie Asher, MS
- Age Range Seen: Pediatric and Adults
- Clinic Frequency: Weekly
- Address: 3400 Civic Center Boulevard, Philadelphia, PA 19104
- To schedule an appointment call (215) 662-4740.
Philadelphia – Children’s Hospital of Philadelphia (CHOP)
- Director: Katherine Taub, MD
- Coordinator: Cindi Skazenski
- Age Range Seen: Infant to 17 (pediatric)
- Clinic Frequency: Mondays
- Address: 3401 Civic Center Blvd, Philadelphia, PA 19104
- To schedule an appointment call (215) 590-1719.
Pittsburgh – Children’s Hospital of Pittsburgh TS Clinic
- Director: Shelley Williams, MD
- Coordinator: To be named
- Age Range Seen: Children and young adults up to age 21 years old
- Clinic Frequency: Monthly
- To schedule an appointment, call (412) 692-5520.
SOUTH CAROLINA
Columbia – TSC Clinic at Prisma Health – Columbia SC
- Director: Monica Cramer, DO
- Coordinator: Michelle Sanders, LPN
- Age Range Seen: Children and Adults
- Clinic Frequency: Monthly, first Friday
- For more information about the clinic contact Michelle Sanders at (803) 434-8333. To schedule an appointment contact Kalisha Moore at (803) 434-3572.
TENNESSEE
Memphis – Tuberous Sclerosis Center of Excellence at Le Bonheur Children’s Hospital
- Director: John J. Bissler, MD
- Co-Director: James W. Wheless, MD
- Co-Director: Sarah Weatherspoon, MD
- TAND Unit Director: Tanjala T. Gipson, MD
- Coordinator: Kristy Jones
- Clinic Ambassador: Latrice Hamilton, Lnsccou@yahoo.com
- Age Range: Children and adults
- Clinic Frequency: Daily
- Out-of-State Medicaid Policy: Accepts all that get to them
- To schedule an appointment call (901) 287-7491. For more information about the clinic call (901) 287-7492.
Nashville – The TSC Clinic at Monroe Carell, Jr. Children’s Hospital at Vanderbilt
- Director: Robert Carson, MD, PhD
- Coordinator: Jennifer Garafola, MSN, RN, CPN
- Age Range: Up to age 21 years
- Clinic Frequency: Bi-weekly, first and third Wednesday of the month
- Out-of-State Medicaid Policy: Accepts Alabama and Kentucky and evaluates others on a case-by-case basis.
- For more information or to schedule an appointment, call (615) 936-5536.
TEXAS
Austin – Dell Children’s Hospital
- Director: E. Steve Roach, MD
- Co-Director: Kristen Arredondo, MD
- Co-Director: Kristina Julich, MD
- Coordinator: Mary Smith, RN
- Clinic Ambassador: Sheryl Kubala, sheryl.kubala@gmail.com
- Age Range Seen: Children and Adults*
- *Adults will be seen for an initial diagnosis and ongoing care provided you have a primary care physician.
- Clinic Frequency: Monthly, every second Thursday
- For information or to schedule an appointment call (512) 628-1855.
Dallas – Scottish Rite for Children
- Director: Steven Sparagana, MD
- Coordinator: Catherine Thompson
- Clinic Ambassador: Tricia Bodner
- Age Range Seen: Children only
- Clinic Frequency: First Monday PM, second Tuesday AM, third and fifth Tuesdays PM every month.
- Out-of-State Medicaid Policy: Does not accept any
- For more information or to schedule an appointment call (214) 559-7828 or email TSCclinic@tsrh.org.
Dallas – Children’s Medical Center of Dallas, The University of Texas Southwestern Medical Center
- Director: Charuta Joshi, MBBS, FAES, CSCN(EEG)
- Co-Director: Alison Dolce, MD
- Coordinator: Jeremy Fields, MBA, BSN, RN
- Age Range Seen: Children
- Clinic Frequency: monthly
- For more information or to schedule an appointment call (214) 456-2768.
Ft. Worth – Cook Children’s Clinic for Tuberous Sclerosis Complex
- Director: David Shahani, MD (Pediatric)
- Co-Director: Hamid Kadiwala, MD (Adult)
- Coordinator: Amy Davis, BSN, RN
- Age Range: Children and Adults (Neurology only).
- Clinic Frequency: First Tuesday of each month
- For more information or to schedule an appointment call Amy Davis at (682) 885-2500.
Houston – McGovern Medical School, University of Texas Health Science Center at Houston
- Clinic Location: University of Texas Professional Bldg., 6410 Fannin Street, Suite 500, Houston, Texas 77030
- Director: Hope Northrup, MD
- Co-Director: Mary Kay Koenig, MD
- Coordinator: Claire Sartwell, RN, BSN
- Age Range: Children and Adults
- Clinic Frequency: Weekly on Mondays
- For more information about the TSC Clinic contact Claire Sartwell, RN, BSN at (713) 500-7149. To schedule an appointment call (713) 500-6367.
- Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.
Houston – Comprehensive Tuberous Sclerosis Clinic at Texas Children’s Hospital
- Affiliated with Texas Children’s Hospital, Baylor College of Medicine
- Director: Rohini Coorg, MD
- Co-Director: Surya Prasadarao Rednam, MD, MS
- Coordinator: Heather Ausby, BHA, BSN, RN
- Clinic Ambassador: Shalonda Alexander, Shalonda.alexander@yahoo.com, (512) 417-7329.
- Age Range: Children
- Clinic Frequency: Monthly, every third Wednesday
- For information or to schedule an appointment call (832) 822-5046.
UTAH
Salt Lake City – University of Utah TS Clinic
- Director: Shanna Swartwood, MD
- Co-Director: Vanina Taliercio, MD
- Coordinator: Melissa Mower, DNP
- Clinic Ambassador: Brittani Rich, brittanif81@gmail.com
- Age Range Seen: Children and young adults up to age 21 years
- Clinic Frequency: Coordinated Clinic is third Friday of each month. The TSC sub-specialists also see TSC patients most days of the week.
- To schedule an appointment call the Department of Pediatric Scheduling at (801) 213-3599.
VIRGINIA
Charlottesville – The University of Virginia (UVA) Tuberous Sclerosis Clinic
- Director: Erika Axeen, MD
- Coordinator: Myra Johnson, RN, BSN
- Age Range: Children and Adults
- Clinic Frequency: Monthly
- To schedule an appointment, call (434) 924-2706 and ask to speak to Caitlin Jenkins. For more information about the clinic call Brooke Henry, RN, BSN, at (434) 924-8672.
- Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.
Richmond – Virginia Commonwealth University (VCU) Health System
- Director: Lawrence Morton, MD (pediatrics)
- Co-Director: Victor Gonzalez-Montoya, MD (adults)
- Coordinators: Melissa Branham, RN (pediatrics) and Laura Sutherland, RN (adults)
- Age Range: Children and Adults
- Clinic Frequency: Monthly
- For Clinic Information and to schedule an appointment call (804) 828-2467 (Children) and (804) 828-9350 (adults).
WASHINGTON
Seattle – TSC Clinic at Seattle Children’s Hospital
- Director: Stephanie Randle, MD, MS
- Co-Director: Jason Hauptman, MD, PhD
- Coordinator: Claire Kennedy
- Clinic Ambassadors: Rebecca Racenet, rebecca.racenet@gmail.com, (907) 357-5160 and Adrienne Wasserman, abadorf@yahoo.com (415) 314-0815
- Age Range: New patients up to age 22 years
- Clinic Frequency: Monthly, second Tuesday and third Thursday
- For Clinic Information and to schedule an appointment call (206) 987-2016.
Seattle – Swedish Neuroscience Institute
- Director: Marcio Sotero de Menezes, MD
- Coordinator: Louise Morton
- Age Range: Children and Adults
- Clinic Frequency: Monday – Thursday from 1 – 4 pm (schedule subject to change)
- For more information and to schedule an appointment, call (206) 215-1440; Fax (206) 215-1441. Adults with TSC please call (206) 320-3492 to schedule an appointment with Dr. Michael Doherty.
WISCONSIN
Milwaukee – The Neurofibromatosis and RASopathy Program at Children’s Hospital of Wisconsin
- Director: Donald Basel, MD
- Coordinator: Katie Knaebe, RN, BSN
- Age Range: Children up to age 18 years
- Clinic Frequency: Weekly
- For Clinic Information call (414) 266-2935 and to schedule an appointment call (414) 266-3347.
CANADA
Hamilton, Ontario – McMaster Children’s Hospital
- Directors: Dr. Robyn Whitney and Dr. Elisabetta Trinari
- Coordinator/ Nurse Practitioner: Cynthia Sloan Birbeck, NP
- Age Range Seen: 0-18
- Clinic Frequency: Monthly
- Transition Program Available: Yes
- For clinic information please refer to Dr. Whitney at 905-521-7914, attention TSC Clinic, McMaster Children’s Hospital.
London, Ontario – London Health Sciences Centre TSC Network
- 339 Windermere Road, London, Ontario N6A 5A5
- Director: Andrew House, MD
- Coordinator: Andrew House, MD
- Age Range Seen: Adults
- Clinic Frequency: The local practice is to see patients as and when they come. Virtual options (videoconferencing, telephone) are available.
- The TSCN is a consultative clinic for adult patients with TSC, made up of specialists from a number of disciplines. Our network includes Dr. Andrew House (nephrology); Drs. Ana Suller Marti, Michelle Lee Jones and Derek Debicki (neurology/epilepsy); Drs. Stephen Pautler and Patrick Luke (urology); Dr. Marco Mura (respirology); Dr. Wei Jing Loo (dermatology); Drs. Natalya Karp and Dervla Connaughton (genetics); Dr. Raymond Lee (dentistry). Referrals to any specialist in the TSCN provides an entry point to multidisciplinary care, while undifferentiated cases can be referred to Dr. House. We are happy to accept referrals for any adult with TSC, and also to ease transition from pediatric to adult follow up for children in their late teens. For Clinic Information and to schedule an appointment call (519) 663-3167.
Montreal, Quebec – CHU Sainte-Justine, University of Montreal
- Director: Philippe Major, MD
- Coordinator: Lucie Côté RN
- Age Range Seen: Children only under age 18 years.
- Clinic Frequency: Thursdays, every 2-3 weeks.
- For Clinic Information and to schedule an appointment call (514) 345-6510.
Montreal, Quebec – TSC Adult Clinic at the Centre Hospitalier de l’Université de Montréal (CHUM)
- Director: Mark Keezer, MDCM, PhD
- Coordinator: Vanessa Léger, RN
- Age Range: Adults
- Clinic Frequency: Every second Thursday.
- For Clinic Information and to schedule an appointment call (514) 890-8000 extension 26419.
Toronto, Ontario – Comprehensive Tuberous Sclerosis Complex Clinic at The Hospital for Sick Children
- Interim Director: Elizabeth Donner, MD
- Co-Director: Maria Zak, MN, NP
- Coordinator: Eugenia Law, RN
- TSC Program Patient Navigator: Semira Kaul, RN
- Age Range Seen: Children up to age 18 years
- Clinic Frequency: One full Friday per month with additional clinics added as needed.
- For clinic Information and to schedule an appointment, call (416) 813-7654 extension 201123.
Toronto, Ontario – Adult TSC Clinic at the University Health Network
- Director: Raymond Kim, MD, PhD
- Co-Director: Monika Madan, MD
- Coordinator: Nicole Forster, MSc, CGC
- Age Range Seen: Adults 18 years and older.
- Clinic Frequency: Weekly on Wednesdays
- For clinic information contact Nicole Forster at (416) 586-4800 extension 2734 and to schedule an appointment contact adultgenetics@uhn.ca or Tabinda Nazeer at (416) 586-4800 extension 5454.
INDIA
Hyderabad, Telangana – Butterflies Child Development Centre and Paediatric Specialty Clinics
- Director: Pranathi Gutta, MBBS
- Co-Director: Nanda Kishor Kumar Vuppali, MBBS, DCH, MRCPCH
- Coordinator: Pranathi Gutta, MBBS
- Age Range Seen: Children only under age 18 years, with some flexibility to age 21 years.
- Clinic Frequency: The local practice is to see patients as and when they come.
- For Clinic information and to schedule an appointment call +91 95-50876540
Mumbai, Maharashtra – SRCC Children’s Hospital by NH
- Director: Pradnya Gadgil, MBBS, MRCPCH
- Coordinator: Ms. Kavita Singh
- Age Range Seen: New patients only under 18 years age
- Clinic Frequency: Daily as needed
- For Clinic Information call +917304443098. To schedule an appointment call +91- 22-71222777 or +91 8291903140
Patparganj, Delhi – MAX Super Specialty Hospital- Patparganj
- Director: Saurabh S. Chopra, MD
- Coordinator: Ms. Nisha Sindra
- Age Range Seen: New patients under age 16 years
- Clinic Frequency: Clinic practice is to see patients as they come.
- For Clinic information and to schedule an appointment call +91 11-43033333
ISRAEL
Be’er Shiva – The Clinic for Multidisciplinary Treatment of TS at Soroka University Medical Center
- Director: Iris Noyman, MD
- Age Range Seen: Children and Adults
- Clinic Frequency: Every 4 to 8 weeks. Patients see Dr. Noyman on a more frequent basis.
- For clinic information contact Dr. Noyman at irisn@clalit.org.il or 972-8-6400140. To schedule an appointment contact Sabrina Dekel at SabrinaDe@clalit.org.il or 972-8-6245469.
Jerusalem – Hadassah TSC Clinic
- Director: Tal Giboa, MD
- Co-Director: Oded Volovelsky, MD, PhD
- Clinic Receptionist: Moran Avraham
- Age Range Seen: Children and Adults
- Clinic Frequency: Monthly, the last Tuesday of the month
- For more information or to schedule an appointment, call 972-2-6779375.
Tel Aviv – TSC Clinic at Tel Aviv Sourasky Medical Center
- Director: Jonathan Roth, MD
- Co-Director: Hagit Toledano, MD
- Age Range Seen: Children and Adults up to 50 years of age
- Clinic Frequency: Weekly
- Clinic phone number: +97236973500
- Clinic Address: 6 Weizmann st, Tel Aviv, Israel
Tel Hashomer – TSC Clinic at Sheba Medical Center
- Director: Michal Tzadok, MD
- Coordinator: Michal Leithner Sanigou
- Age Range Seen: Children and adults
- Clinic Frequency: Every first and third Sunday
- For more information or to schedule an appointment, call 972-3-5302687 or email Michal.LeitnerSanigou@sheba.health.gov.il.
MEXICO
Merida, Yucatan – TSC Clinic at Neural Clinic Mexico
- Director: Joao Garcia, MD
- Age Range: Children and Adults up to age 60 years. At age 28 years the follow-up continues with neurologist, Dr. Mauricio Escalante.
- Clinic Frequency: Weekly, every Tuesday.
- For Clinic Information call Dr. Garcia at 52-999-9490869 and to schedule an appointment, contact Alma Martinez at 52-999-9260207 or receocionneural@gmail.com.
Monterrey, Nuevo León – Hospital Universitario “José Eleuterio González’ Universidad Autónoma de Nuevo León
- Director: Ana Beatriz Hinojosa-Amaya, MD
- Co-Director: Marisol Ibarra-Ramirez, MD
- Coordinator: Melissa Calzada, MD
- Age Range Seen: Children and Adults.
- Clinic Frequency: Monthly (Schedule subject to change).
- For Clinic Information and to schedule an appointment call +52 8183483704.
