The 2025 TSC Transition Webinar Series will provide parents, caregivers and adults with tuberous sclerosis complex (TSC) with recommendations and resources that provide timelines and supports available, so they know how and when to start preparing for the transition to adulthood. The series is co-hosted by Mass General Brigham and the Herscot Center for TSC, and presented by Jazz Pharmaceuticals, Nobelpharma and Upsher-Smith Laboratories, LLC.
This six-part webinar series will highlight specific topics related to the transition process, including financial planning, TSC-Associated Neuropsychiatric Disorders (TAND) and the psychological impact on caregivers of semi-independent and dependent adults.
Join us for the April Transition Webinar
The second webinar in the series will take place on Thursday, April 24, 2025 at 8 pm ET and will discuss critical considerations for individuals of all ages who have a disability. This webinar will review the importance of creating a life care plan, how it can help, and who should be involved. Learn crucial information and tools to help prepare for your loved one’s financial future, including government benefits, special needs trusts, ABLE accounts, and other legal and financial structures and considerations.
The series kicked off on February 13, 2025, with a webinar featuring Elizabeth Thiele, MD, PhD, Director, Pediatric Epilepsy Program; Director, Carol and James Herscot Center for Tuberous Sclerosis Complex at Massachusetts General Hospital and Professor of Neurology, Harvard Medical School. The webinar focused on the Transition of medical care from the pediatric to adult health system and how to use a transition toolkit. A recording of the first webinar can be viewed below.
Future webinars will be scheduled for June, August, October and December. Information on future dates, topics and how to register coming soon!