fbpx
  • Dysregulated behaviors are common in TSC, have a major impact on the family and require a systematic approach.
  • It is important to understand the meaning/function of dysregulated behaviors to guide intervention.
  • It is also important to understand the intellectual and neuropsychological profile to inform the meaning/function of dysregulated behaviors and to guide intervention.
  • Perform urgent physical work-up for sudden onset of dysregulated behavior and/or rapid change in behaviors.
  • Use non-pharmacological intervention strategies as first-line treatment for dysregulated behaviors.
  • Medications should be used after a careful systematic evaluation and always alongside a non-pharmacological intervention plan.
  • Research is required to generate a TSC-specific evidence base for non-pharmacological interventions of dysregulated behaviors.