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Are you interested in participating in research? The University of Rochester is studying the topic of sharing research information with research participants. Participants receive $40.

You May Qualify If You Are

  • A caregiver of an individual with a rare disease

  • A clinician researcher

  • A clinician

  • An IRB representative

  • A Sponsor or drug development company representative

Participation Involves
Completing a recorded zoom interview with a member of the study team. Interviews take 60-90 minutes. During the interview, you will be asked about your ideas and suggestions related to sharing research information with research participants.

Interested?
Call the study team at 585-276-3987 or email them at ethicalror@urmc.rochester.edu.