April 2023 - TSC Alliance

Nominate a TSC researcher or clinician for the Manuel R. Gomez Award

The TSC Alliance is now accepting nominations for the 2023 Manuel R. Gomez Award, which will be awarded at the 2023 International TSC Research Conference. The deadline to submit a nomination is

April 2023 Message from the CEO

TSC Alliance President & CEO Kari Luther Rosbeck announces registration open...

Register today for the 2023 Regional TSC & LAM Conference Series

The TSC Alliance® and The LAM Foundation have joined together once again to co-...

Basimglurant, a new mechanism of action for control of seizures in tuberous sclerosis complex?

Do you or your loved one suffer from epileptic seizures? Noema Pharma is develop...

Congratulations to our Volunteers of the Year

Earlier this year, as part of our Volunteer Leadership Summit, the TSC Alliance...

Current Clinical Trials

See below for ongoing clinical trials. For a full list of clinical trials go to ...

Ongoing Biosample Studies

See below for ongoing studies....

Alzheimer’s in TSC study

Tuberous Sclerosis Complex (TSC) is a genetic condition due to mutations in TSC1...

Have You or Your Loved One with TSC Been Diagnosed with COVID-19?

The TSC Alliance seeks to contact individuals with TSC who had COVID-19 infectio...

Listen to the latest episode of TSC Now

Check out the newest episode of TSC Now, where host Dan Klein speaks with Justin...

TSC-STEPS trial

TSC-STEPS is a study to learn more about a drug known as Sirolimus and determine...

Tuberous Sclerosis Complex Travel and Lodging Patient Assistance Program

Bcureful’s Tuberous Sclerosis Complex Travel and Lodging Patient Assistance Pr...

Anya’s Accelerator TAND Biomarker Workshop

With support from the The Ramesh and Kalpana Bhatia Family Foundation, the TSC ...

11th Annual TSC Global Awareness Day Scheduled for May 15

On May 15, the TSC Alliance® will join tuberous sclerosis complex (TSC) orga...

#March4TSCresearch update

Thank you to all our volunteers for your efforts advocating for Tuberous Sclero...

Watch our recent webinar on SUDEP

...

TSC MRI Study

Why are we doing this study? Researchers at Johns Hopkins are seeking participan...

Join us for an upcoming Adult Topic Call

Are you an independent or semi-independent adult with TSC? If so, please join us...