October 2020 - TSC Alliance

Global clinical study evaluating topical rapamycin treatment for facial angiofibroma in patients with tuberous sclerosis complex

This study of a new cream for the treatment of mild to moderate facial angiofibromas is underway in the United States and across the globe. It is anticipated that approximately

Join Us For the Final Virtual TSC & LAM Conference on November 7!

The third and final Virtual TSC and LAM Conference on Saturday, November 7, 202...

Participate in a Worldwide Survey on Access to TSC Medications

Tuberous Sclerosis Complex International (TSCi) invites you to participate in a ...

October Note from the CEO

This year has challenged us to come up with new ways to bri...

Participate in the TSC Biosample Repository Project

To better understand why people are impacted so differently by this disorder and...

Ongoing Biosample Studies

See below for ongoing studies....

Have You or Your Loved One with TSC Been Diagnosed with COVID-19?

The TSC Alliance is reaching out to individuals with TSC who had COVID-19 infect...

October Volunteer Opportunities Available

Champion Our Cause: Join the TSC Alliance Volunteer Movement “The smallest act...

Ongoing Genetic Study

See below for the ongoing study....

TSC Clinic Experience of Care Survey

The TSC Alliance would like to know about your experience at the TSC Clinic you/...

Join Us for an Upcoming Adult Topic Call

Are you an independent or semi-independent adult with TSC? If so, please join us...