April Volunteer Opportunities Available
Champion Our Cause: Join the TSC Alliance Volunteer Movement “The smallest act of kindness is worth more than than the grandest intention.” – Oscar Wilde The TSC Alliance thrives on the
Read More: April Volunteer Opportunities AvailableTuberous Sclerosis Research Opportunity
Please help us better understand factors that impact the decision to undergo epi...
Read More: Tuberous Sclerosis Research OpportunityBehavioral Research – Open to families with children with and without TSC
Tell us about your child’s emotional outbursts...
Read More: Behavioral Research – Open to families with children with and without TSCPhenotypic Variability in Tuberous Sclerosis Complex (TSC)
Dr. Narayanan and colleagues at the Translational Genomics Research Institute (T...
Read More: Phenotypic Variability in Tuberous Sclerosis Complex (TSC)Ongoing Biosample Studies
See below for ongoing studies....
Read More: Ongoing Biosample StudiesOngoing Facial Angiofibroma Trials
See below for ongoing trials....
Read More: Ongoing Facial Angiofibroma TrialsListen and Subscribe to TSC Now
TSC Now is the TSC Alliance’s podcast series, which features interviews wit...
Read More: Listen and Subscribe to TSC Now#March4TSCresearch Update
The annual TSC Alliance March on Capitol Hill to advocate for federal funding fo...
Read More: #March4TSCresearch UpdateMoving TSC Research Forward in the Face of COVID-19
On Monday, April 6, TSC Alliance staff members from our science department prese...
Read More: Moving TSC Research Forward in the Face of COVID-19TSC Clinic Experience of Care Survey
The TSC Alliance would like to know about your experience at the TSC Clinic you/...
Read More: TSC Clinic Experience of Care SurveyUpdate on TSC Biosample Repository and Natural History Database Project
Although collections are paused due to COVID-19 concerns, the TSC Alliance is ab...
Read More: Update on TSC Biosample Repository and Natural History Database ProjectTSC Alliance COVID-19 & TSC Resource
The TSC Alliance has assembled a wide range of information and resources about t...
Read More: TSC Alliance COVID-19 & TSC ResourceApril Note from the President & CEO
It is crazy to think that six short weeks ago we were wrapp...
Read More: April Note from the President & CEO