October 2019 - TSC Alliance

SPARK for Autism Research Study, Boston Children’s Hospital

Boston Children’s Hospital would like to invite individuals of all ages diagnosed with autism as well as their family members to join SPARK! SPARK, sponsored by the Simons Foundation Autism Research

45th Anniversary Flashback: The 2000s

Throughout 2019, the TSC Alliance will celebrate our sapphire, 45th anniversary....

Meet Team TSC

On Sunday, November 3, 2019, 11 members of Team TSC will be running in the 2019...

Are you an adult with TSC or a caregiver of an adult with TSC?

Dr. Agnies Van Eeghen and her research team at Erasmus Medical Centre in The Net...

Baby Brain Imaging and Behavior Study (Baby BIBS)

Researchers at the UCLA Center for Autism Research and Treatment (CART) are look...

Dr. David Kwiatkowski at the Brigham & Women’s Hospital in Boston Seeks Biospecimens for LAM/TSC Research

His research involves analyzing left over fluid and tissue samples from chest an...

Researcher Seeking Donation of Tissue Samples from Your Surgery

Dr. Elizabeth (Lisa) Henske’s laboratory has a new project to develop cellular...

Dose-Ranging Efficacy and Safety Study of Topical Rapamycin Cream for Facial Angiofibroma Associated with Tuberous Sclerosis Complex (TSC

A new clinical trial for individuals with TSC and facial angiofibromas who are 6...

Tuberous Sclerosis Research Opportunity – Please Help Us Better Understand Factors That Impact the Decision to Undergo Epilepsy Surgery

We have a brief survey (20 minutes) addressing caregiver satisfaction with epile...

Efficacy and Safety of Lacosamide as Adjunctive Therapy in Subjects ≥1 Month to <4 Years with Partial-onset Seizures

Description: UCB Biosciences, Inc. is conducting a clinical trial to evaluate th...

Engage Therapeutics Clinical Trial

Engage Therapeutics is a small biotech company working to improve life with epil...

Tuberous Sclerosis Complex Travel and Lodging Patient Assistance Program

NORD’s Tuberous Sclerosis Complex Travel and Lodging Patient Assistance Progra...

Update on State Funding in Maryland and Missouri

The Missouri State Legislature appropriated $250,000 in the state’s 2020 b...

Upcoming Community Events

TSC Family Fun Day at Pullen Park Sunday, October 20, 2019 Pullen Park; Carouse...

Join Us for a Free Webinar on SUDEP

Sudden Unexpected Death in Epilepsy (SUDEP) Presented by Douglas Smith, MD Minne...

TSC Clinic Experience of Care Survey

The TSC Alliance would like to know about your experience at the TSC Clinic you/...

Phenotypic Variability in Tuberous Sclerosis Complex (TSC)

Dr. Narayanan and colleagues at the Translational Genomics Research Institute (T...

Clinical Trial for Individuals Diagnosed with Tuberous Sclerosis Complex (TSC) and Cutaneous Angiofibromas

We are currently conducting a clinical trial for individuals diagnosed with TSC ...

Preventing Epilepsy Using Vigabatrin in Infants with Tuberous Sclerosis Complex (PREVeNT Trial)

Enrollment still open! Where: TSC Clinical Research Consortium sites at Boston C...

October Volunteer Opportunities Available

Champion Our Cause: Join the TSC Alliance Volunteer Movement “The smallest act...

Grant Opportunities for Families Impacted by Infantile Spasms

Our friends at the Child Neurology Foundation, in partnership with the Harnett ...

TSC Alliance Announces New TSC Centers of Excellence

The TSC Alliance is pleased to introduce our new “TSC Center of Excellence” ...

Join Us at the Regional TSC & LAM Conference in Los Angeles!

The fifth and final Regional TSC and LAM Conference, co-hosted with The LAM Foun...

Upcoming Step Forward to Cure TSC Walks

Sometimes simple things can make a huge difference. Like simple steps, taken by ...

TSC Research: Our Vision for 2020

As part of our 45th Anniversary Celebration, during the Fund a Cure portion of t...

Subscribe to TSC Now

TSC Now is the TSC Alliance’s podcast series, which features interviews wit...

What TSC Means to Me Drawing Contest

In September, the TSC Alliance of Indiana held a “What Tuberous Sclerosis ...

Upcoming Adult Topic Calls

Are you an independent or semi-independent adult with TSC? If so, please join us...

October Note from the President & CEO

On Thursday, October 3 the TSC Alliance celebrated our 45th Anniversary Gala at ...