International TAND Research Project Awarded Funding
Congratulations to Drs. Petrus de Vries (University of Cape Town) and Anna Jansen (UZ Brussel – Vrije Universiteit Brussel) on being awarded funding from the Tuberous Sclerosis Association and the
Read More: International TAND Research Project Awarded FundingApril Note from the President & CEO
We’re so excited to bring you the first issue of TSC Matters, our new bimonthl...
Read More: April Note from the President & CEOTAND Parent/Caregiver Survey: We Need Your Input!
As part of our TSC-Associated Neuropsychiatric Disorders (TAND) Initiative we...
Read More: TAND Parent/Caregiver Survey: We Need Your Input!IEP Season is Approaching
If you need support in understanding your rights as a parent/caregiver of a chil...
Read More: IEP Season is ApproachingCongratulations Dr. Martina Bebin!
Congratulations to Dr. Martina Bebin, former TSC Alliance Board Member and TSC C...
Read More: Congratulations Dr. Martina Bebin!#March4TSCresearch Update
Thanks to the incredible advocacy of our volunteers, over half of the House sign...
Read More: #March4TSCresearch UpdateComedy for a Cure 2019
On Sunday, April 7, 2019, the 18th Annual Comedy for a Cure® will be held at A...
Read More: Comedy for a Cure 2019Bid Now in Our Exclusive Comedy for a Cure Silent Auction!
The TSC Alliance’s 18th Annual Comedy for a Cure happens this Sunday, April 7...
Read More: Bid Now in Our Exclusive Comedy for a Cure Silent Auction!Boston Regional TSC & LAM Conference
The TSC Alliance and The LAM Foundation are co-hosting five Regional TSC ...
Read More: Boston Regional TSC & LAM ConferenceUpcoming Step Forward to Cure TSC Walks
“And that is how change happens. One gesture. One person. One moment at a time...
Read More: Upcoming Step Forward to Cure TSC WalksUpcoming Adult Topic Calls
Are you an independent or semi-independent adult with TSC? If so, please join us...
Read More: Upcoming Adult Topic CallsTSC Preclinical Consortium Meeting
The TSC Alliance launched the TSC Preclinical Consortium in 2016, in collabora...
Read More: TSC Preclinical Consortium MeetingClinical Trial for Individuals Diagnosed with Tuberous Sclerosis Complex (TSC) and Cutaneous Angiofibromas (Valid through June 2019)
We are currently conducting a clinical trial for individuals diagnosed with TSC ...
Read More: Clinical Trial for Individuals Diagnosed with Tuberous Sclerosis Complex (TSC) and Cutaneous Angiofibromas (Valid through June 2019)SPARK for Autism Research Study, Boston Children’s Hospital (Valid through March 2020)
Boston Children’s Hospital would like to invite individuals of all ages diagno...
Read More: SPARK for Autism Research Study, Boston Children’s Hospital (Valid through March 2020)Researcher Seeking Donation of Tissue Samples from Your Surgery (Valid through June 2020)
Dr. Elizabeth (Lisa) Henske’s laboratory has a new project to develop cellular...
Read More: Researcher Seeking Donation of Tissue Samples from Your Surgery (Valid through June 2020)Phenotypic Variability in Tuberous Sclerosis Complex (TSC) (Study Valid through September 1, 2021)
Dr. Narayanan and colleagues at the Translational Genomics Research Institute (T...
Read More: Phenotypic Variability in Tuberous Sclerosis Complex (TSC) (Study Valid through September 1, 2021)Dr. David Kwiatkowski at the Brigham & Women’s Hospital in Boston Seeks Biospecimens for LAM/TSC Research
His research involves analyzing left over fluid and tissue samples from chest an...
Read More: Dr. David Kwiatkowski at the Brigham & Women’s Hospital in Boston Seeks Biospecimens for LAM/TSC Research2018 Volunteers of the Year
On Thursday, March 7, 2019 the TSC Alliance held its annual Volunteer Appreciati...
Read More: 2018 Volunteers of the YearApril Volunteer Opportunities Available
Champion Our Cause: Join the TSC Alliance Volunteer Movement “The smallest act...
Read More: April Volunteer Opportunities Available45th Anniversary Flashback: The 1970s
Throughout 2019, the TSC Alliance will celebrate our sapphire, 45th anniversary....
Read More: 45th Anniversary Flashback: The 1970s